CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 151 - 175 of 1649
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C16172 Pregnant current indicator

Whether the female participant/subject is currently pregnant

 Supplemental Reproductive and Hormonal History False Mitochondrial Disease Mitochondrial Disease
C16168 Pregnancy self or spouse number

Number of each pregnancy of participant/subject or participant/subject's partner

 Supplemental Reproductive and Hormonal History False Mitochondrial Disease Mitochondrial Disease
C16169 Pregnancy outcome type

Type of outcome of the pregnancy experienced by the participant/subject

 Supplemental Reproductive and Hormonal History False Mitochondrial Disease Mitochondrial Disease
C16193 Pregnancy outcome date

The date and time (if applicable and known) of the outcome (i.e., delivery of live birth, miscarriage, etc.) of the pregnancy experienced by the participant/subject or the participant/subject's partner

 Supplemental Reproductive and Hormonal History False Mitochondrial Disease Mitochondrial Disease
C16173 Pregnancy estimated delivery date and time

The date and time (if applicable) the participant/subject is estimated to deliver the pregnancy

 Supplemental Reproductive and Hormonal History False Mitochondrial Disease Mitochondrial Disease
C16179 Post-menopausal surgery date

The date and time (if applicable and known) of the surgery that induced the post-menopausal period

 Supplemental Reproductive and Hormonal History False Mitochondrial Disease Mitochondrial Disease
C16177 Post-menopausal indicator

Indicates whether participant/subject is post-menopausal

 Supplemental Reproductive and Hormonal History False Mitochondrial Disease Mitochondrial Disease
C16178 Post-menopausal cause type

Cause or reason for the post-menopausal period in the female participant/subject

 Supplemental Reproductive and Hormonal History False Mitochondrial Disease Mitochondrial Disease
C20256 Physical activity 20 minute day during week count

The count of days in a typical week on which the participant/subject spends at least 20 minutes doing physical activities or exercise

 Supplemental Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C21962 Pediatric Quality of Life Inventory(PedsQL) - Total score

Total Score as a part of Pediatric Quality of Life Inventory (PedsQL)

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Mitochondrial Disease Mitochondrial Disease
C21954 Pediatric Quality of Life Inventory(PedsQL) - Psychosocial health summary score

Psychosocial Health Summary Score as a part of Pediatric Quality of Life Inventory (PedsQL)

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Mitochondrial Disease Mitochondrial Disease
C21953 Pediatric Quality of Life Inventory(PedsQL) - Physical health summary score

Summary Score of the Physical Functioning Scale Score as a part of Pediatric Quality of Life Inventory (PedsQL)

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Mitochondrial Disease Mitochondrial Disease
C21965 Pediatric Quality of Life Inventory (PedsQL) - Problem worry self difficulty scale

Scale of problems worrying about what will happen to you, as part of the Pediatric Quality of Life Inventory (PedsQL)

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Mitochondrial Disease Mitochondrial Disease
C21964 Pediatric Quality of Life Inventory (PedsQL) - Problem walk greater than one block difficulty scale

Scale of problems with walking more than one block, as part of the Pediatric Quality of Life Inventory (PedsQL)

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Mitochondrial Disease Mitochondrial Disease
C21951 Pediatric Quality of Life Inventory (PedsQL) - Problem unable social activity skill peer difficulty scale

Scale of problems with not being able to do things that other teens/kids their age can do, as part of the Pediatric Quality of Life Inventory (PedsQL)

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Mitochondrial Disease Mitochondrial Disease
C21960 Pediatric Quality of Life Inventory (PedsQL) - Problem sport activity exercise participation difficulty scale

Scale of problems with participating in sports activity or exercise, as part of the Pediatric Quality of Life Inventory (PedsQL)

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Mitochondrial Disease Mitochondrial Disease
C21959 Pediatric Quality of Life Inventory (PedsQL) - Problem sleep trouble scale

Scale of problems with trouble sleeping, as part of the Pediatric Quality of Life Inventory (PedsQL)

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Mitochondrial Disease Mitochondrial Disease
C21945 Pediatric Quality of Life Inventory (PedsQL) - Problem schoolwork difficulty scale

Scale of problems keeping up with schoolwork, as part of the Pediatric Quality of Life Inventory (PedsQL)

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Mitochondrial Disease Mitochondrial Disease
C21935 Pediatric Quality of Life Inventory (PedsQL) - Problem school class attention difficulty scale

Scale of problems paying attention in class, as part of the Pediatric Quality of Life Inventory (PedsQL)

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Mitochondrial Disease Mitochondrial Disease
C21950 Pediatric Quality of Life Inventory (PedsQL) - Problem school absent unwell difficulty scale

Scale of problems with missing school because of not feeling well, as part of the Pediatric Quality of Life Inventory (PedsQL)

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Mitochondrial Disease Mitochondrial Disease
C21956 Pediatric Quality of Life Inventory (PedsQL) - Problem sad difficulty scale

Scale of problems with feeling sad or blue, as part of the Pediatric Quality of Life Inventory (PedsQL)

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Mitochondrial Disease Mitochondrial Disease
C21955 Pediatric Quality of Life Inventory (PedsQL) - Problem run difficulty scale

Scale of problems with running, as part of the Pediatric Quality of Life Inventory (PedsQL)

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Mitochondrial Disease Mitochondrial Disease
C21946 Pediatric Quality of Life Inventory (PedsQL) - Problem play energy peer difficulty scale

Scale of problems with keeping up when playing with other children, as part of the Pediatric Quality of Life Inventory (PedsQL)

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Mitochondrial Disease Mitochondrial Disease
C21961 Pediatric Quality of Life Inventory (PedsQL) - Problem peer teasing difficulty scale

Scale of problems with getting teased by other teen/kids, as part of the Pediatric Quality of Life Inventory (PedsQL)

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Mitochondrial Disease Mitochondrial Disease
C21957 Pediatric Quality of Life Inventory (PedsQL) - Problem peer school activity difficulty scale

Scale of frequency of difficulties doing the same school activities as peers, as part of the Pediatric Quality of Life Inventory (PedsQL)

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Mitochondrial Disease Mitochondrial Disease
Displaying 151 - 175 of 1649

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.