CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Show All
Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 151 - 175 of 903
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20211 Mitochondrial disease prior bowel movement other treatment text

Indicate whether participant/subject used other treatments for bowel movements in the past

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20197 Mitochondrial disease prior bloat abdominal distension time of day type

The type, as time of day, at which prior abdominal bloating/distension was worse for the participant/subject

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20199 Mitochondrial disease prior bloat abdominal distension text

The free text field to specify additional details about the participant's/subject's past abdominal bloating/distension

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20196 Mitochondrial disease prior bloat abdominal distension stop text

The free text field to specify what stopped participant's/subject's past abdominal bloating/distension

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20195 Mitochondrial disease prior bloat abdominal distension stop age category

The category of the participant/subject's age at cessation of prior abdominal bloating/distension

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20194 Mitochondrial disease prior bloat abdominal distension onset age category

The category of the participant/subject's age at onset of prior abdominal bloating/distension

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20185 Mitochondrial disease prior abdominal pain worsen text

The free text field to specify about what specifically made the participant's/subject's prior abdominal pain worse

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20183 Mitochondrial disease prior abdominal pain wake indicator

Indicator of whether participant's/subject's prior abdominal pain woke self/child from sleep

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20180 Mitochondrial disease prior abdominal pain trigger type

The type of trigger of the participant's/subject's prior abdominal pain

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20181 Mitochondrial disease prior abdominal pain trigger text

The free text field to specify additional details about participant's/subject's past abdominal pain triggers

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20172 Mitochondrial disease prior abdominal pain stop text

The free text field to specify what stopped participant's/subject's past abdominal pain

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20171 Mitochondrial disease prior abdominal pain stop age category

The category of the participant/subject's age at the end of prior abdominal pain episodes

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20173 Mitochondrial disease prior abdominal pain reason

The reason the participant/subject thinks they or their child experienced prior abdominal pain

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20186 Mitochondrial disease prior abdominal pain other text

The free text field to specify additional details about the participant's/subject's past abdominal pain

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20170 Mitochondrial disease prior abdominal pain onset age category

The category of the participant/subject's age at onset of prior abdominal pain

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20184 Mitochondrial disease prior abdominal pain improve text

The free text field to specify about what specifically made the participant's/subject's prior abdominal pain better

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20177 Mitochondrial disease prior abdominal pain frequency other text

The free text field to specify past frequency of participant's/subject's other abdominal pain

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20176 Mitochondrial disease prior abdominal pain frequency

The frequency with which the participant/subject had prior abdominal pain

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20178 Mitochondrial disease prior abdominal pain duration type

Select the length of time participant/subject had past abdominal pain

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20179 Mitochondrial disease prior abdominal pain duration text

The free text field to specify additional details about participant's/subject's past abdominal pain duration

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20182 Mitochondrial disease prior abdominal pain disrupt activity indicator

Indicator of whether participant's/subject's prior abdominal pain disrupted activity

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20174 Mitochondrial disease prior abdominal pain detail text

The free text field to specify additonal details about participant's/subject's past abdominal pain

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20175 Mitochondrial disease prior abdominal pain anatomic site

Select where participant's/subject's past abdominal pain was located

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20198 Mitochondrial disease prior abdominal distension cause air stool reason

The reason the participant/subject thought the belly was distended in prior episodes

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20051 Mitochondrial disease present vomit trigger other text

The free text field to specify the other trigger the participant/subject may have had when symptoms began

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
Displaying 151 - 175 of 903

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.