CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1451 - 1475 of 1834
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C60131 Dual X-ray absorptiometry R1 lateral distal femur bone mineral content value

Absolute value of the amount of bone mineral content (BMC) for dual X-ray absorptiometry (DXA) in the anterior distal metaphysis (R1) of the lateral distal femur

 Supplemental DXA False Mitochondrial Disease Mitochondrial Disease
C60134 Dual X-ray absorptiometry R1 lateral distal femur areal bone mineral density z score

Z-score of the areal bone mineral density (aBMD) for dual X-ray absorptiometry (DXA) in the anterior distal metaphysis (R1) of the lateral distal femur

 Supplemental DXA False Mitochondrial Disease Mitochondrial Disease
C60133 Dual X-ray absorptiometry R1 lateral distal femur areal bone mineral density value

Absolute value of the areal bone mineral density (aBMD) for dual X-ray absorptiometry (DXA) in the anterior distal metaphysis (R1) of the lateral distal femur

 Supplemental DXA False Mitochondrial Disease Mitochondrial Disease
C12175 Dual X-ray absorptiometry performed date

Date the dual X-ray absorptiometry (DXA) was performed

 Supplemental DXA False Mitochondrial Disease Mitochondrial Disease
C60108 Dual X-ray absorptiometry lumbar spine bone mineral content z score

Z-score of the bone mineral content (BMC) for dual X-ray absorptiometry (DXA) in the lumbar spine (L1-L4 vertebrae)

 Supplemental DXA False Mitochondrial Disease Mitochondrial Disease
C60107 Dual X-ray absorptiometry lumbar spine bone mineral content value

Absolute value of the bone mineral content (BMC) for dual X-ray absorptiometry (DXA) in the lumbar spine (L1-L4 vertebrae)

 Supplemental DXA False Mitochondrial Disease Mitochondrial Disease
C60112 Dual X-ray absorptiometry lumbar spine bone mineral apparent density z score

Z-score of the bone mineral apparent density (BMAD) for dual X-ray absorptiometry (DXA) in the lumbar spine (L1-L4 vertebrae)

 Supplemental DXA False Mitochondrial Disease Mitochondrial Disease
C60111 Dual X-ray absorptiometry lumbar spine bone mineral apparent density value

Absolute value of the bone mineral apparent density (BMAD) for dual X-ray absorptiometry (DXA) in the lumbar spine (L1-L4 vertebrae)

 Supplemental DXA False Mitochondrial Disease Mitochondrial Disease
C60110 Dual X-ray absorptiometry lumbar spine areal bone mineral density z score

Z-score of the areal bone mineral density (aBMD) for dual X-ray absorptiometry (DXA) in the lumbar spine (L1-L4 vertebrae)

 Supplemental DXA False Mitochondrial Disease Mitochondrial Disease
C60109 Dual X-ray absorptiometry lumbar spine areal bone mineral density value

Absolute value of the areal bone mineral density (aBMD) for dual X-ray absorptiometry (DXA) in the lumbar spine (L1-L4 vertebrae)

 Supplemental DXA False Mitochondrial Disease Mitochondrial Disease
C60120 Dual X-ray absorptiometry femoral neck bone mineral content z score

Z-score of the bone mineral content (BMC) for dual X-ray absorptiometry (DXA) in the femoral neck

 Supplemental DXA False Mitochondrial Disease Mitochondrial Disease
C60119 Dual X-ray absorptiometry femoral neck bone mineral content value

Absolute value of the bone mineral content (BMC) for dual X-ray absorptiometry (DXA) in the femoral neck

 Supplemental DXA False Mitochondrial Disease Mitochondrial Disease
C60122 Dual X-ray absorptiometry femoral neck areal bone mineral density z score

Z-score of the areal bone mineral density (aBMD) for dual X-ray absorptiometry (DXA) in the femoral neck

 Supplemental DXA False Mitochondrial Disease Mitochondrial Disease
C60121 Dual X-ray absorptiometry femoral neck areal bone mineral density value

Absolute value of the areal bone mineral density (aBMD) for dual X-ray absorptiometry (DXA) in the femoral neck

 Supplemental DXA False Mitochondrial Disease Mitochondrial Disease
C60124 Dual X-ray absorptiometry distal one-third radius bone mineral content z score

Z-score of the bone mineral content (BMC) for dual X-ray absorptiometry (DXA) in the distal one-third (1/3) radius

 Supplemental DXA False Mitochondrial Disease Mitochondrial Disease
C60123 Dual X-ray absorptiometry distal one-third radius bone mineral content value

Absolute value of the bone mineral content (BMC) for dual X-ray absorptiometry (DXA) in the distal one-third (1/3) radius

 Supplemental DXA False Mitochondrial Disease Mitochondrial Disease
C60126 Dual X-ray absorptiometry distal one-third radius areal bone mineral density z score

Z-score of the areal bone mineral density (aBMD) for dual X-ray absorptiometry (DXA) in the distal one-third (1/3) radius

 Supplemental DXA False Mitochondrial Disease Mitochondrial Disease
C60125 Dual X-ray absorptiometry distal one-third radius areal bone mineral density value

Absolute value of the areal bone mineral density (aBMD) for dual X-ray absorptiometry (DXA) in the distal one-third (1/3) radius

 Supplemental DXA False Mitochondrial Disease Mitochondrial Disease
C60102 Dual X-ray absorptiometry analysis perform date

Date the dual X-ray absorptiometry (DXA) analysis was performed

 Supplemental DXA False Mitochondrial Disease Mitochondrial Disease
C60265 DNA type

Type of DNA

 Core Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C59078 DNA known variant status

Status of known variant(s) in participant's DNA

 Supplemental Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C59079 DNA known variant description text

The free-text field describing the presence or absence of known variant(s) in participant's DNA

 Supplemental Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C19614 DNA change text

The free-text field listing DNA change

 Core Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C20308 Dietician consult past year indicator

The indicator of whether the participant consulted a dietician in the past 12 months

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20309 Dietician consult past year count

The count of times that the participant consulted a dietician in the past 12 months

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
Displaying 1451 - 1475 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.