CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3085-C20277	C20277	Emergency room use past year indicator	The indicator of whether the participant has used the emergency room in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20278	C20278	Emergency room use past year count	The count of the times the participant used the emergency room in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20281	C20281	Emergency room use other diabetes related past year count	The count of the times the participant used the emergency room for diabetes-related reasons other than hypoglycemia or hyperglycemia in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20282	C20282	Emergency room use not diabetes related past year count	The count of the times the participant used the emergency room for reasons unrelated to diabetes in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20279	C20279	Emergency room use hypoglycemia past year count	The count of the times the participant used the emergency room for hypoglycemia in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20280	C20280	Emergency room use hyperglycemia past year count	The count of the times the participant used the emergency room for hyperglycemia in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59833	C59833	Electrocochleography type	Type of electrocochleography test	Exploratory	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59835	C59835	Electrocochleography result status	Status of the result of the electrocochleography test performed	Exploratory	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59834	C59834	Electrocochleography perform status	Status of whether electrocochleography was performed	Exploratory	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59836	C59836	Electrocochleography abnormal result text	Free-text field describing the abnormal result of the electrocochleography test	Exploratory	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C60231	C60231	EKG type	Type of EKG (electrocardiogram) performed	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F1807-C00015	C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	Mitochondrial Disease	Mitochondrial Disease
F1968-C00012	C00012	Education level USA type	Highest grade or level of school participant/subject has completed or the highest degree received	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Mitochondrial Disease	Mitochondrial Disease
F3137-C12873	C12873	Echocardiogram tricuspid valve stenosis degree status	Status of the degree of tricuspid valve stenosis as assessed by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C10743	C10743	Echocardiogram tricuspid valve regurgitation degree status	Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the tricuspid valve as assessed by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C10751	C10751	Echocardiogram tissue doppler mitral annulus E' velocity measurement	Measurement of tissue doppler mitral annulus E' velocity obtained by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12913	C12913	Echocardiogram study quality type	Type of quality of the echocardiogram study	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12909	C12909	Echocardiogram right ventricular systolic pressure measurement	Measurement of right ventricular systolic pressure estimate obtained by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C10733	C10733	Echocardiogram right ventricular systolic dysfunction status	Status of right ventricular systolic dysfunction on the echocardiogram	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C54235	C54235	Echocardiogram right ventricular posterior wall thickness end diastole measurement	Measurement of right ventricular end - diastolic posterior wall thickness (PWTd) obtained by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12895	C12895	Echocardiogram right ventricular internal dimension end systole measurement	Measurement of right ventricular end - systolic internal dimension (RVIDs) obtained by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12894	C12894	Echocardiogram right ventricular internal dimension end diastole measurement	Measurement of right ventricular end - diastolic internal dimension (RVIDd) obtained by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C10732	C10732	Echocardiogram right ventricular enlargement status	Status of right ventricular enlargement on the echocardiogram	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12893	C12893	Echocardiogram right ventricle wall motion abnormal indicator	Indicator of wall motion abnormalities in the right ventricle on the echocardiogram	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C18877	C18877	Echocardiogram right ventricle systolic pressure estimation type other text	The free-text field related to 'Echocardiogram systolic pressure estimation type' specifying other text. Type of technique used to estimate the right ventricular systolic pressure	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.