CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 126 - 150 of 903
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20084 Mitochondrial disease prior vomit blood clot indicator

Indicator of whether participant's/subject's vomit had blood clots

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20085 Mitochondrial disease prior stool black indicator

Indicator of whether participant's/subject's stools were black

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20086 Mitochondrial disease prior pain abdominal before vomit indicator

Indicator of whether participant/subject experienced abdominal pain before vomiting

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20118 Mitochondrial disease prior oral regurgitation stop specific text

The free text field to specify when participant's/subject's past oral regurgitation stopped

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20116 Mitochondrial disease prior oral regurgitation onset age category

The category of participant/subject's age at onset of prior oral regurgitation episodes

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20122 Mitochondrial disease prior oral regurgitation occurrence timing type

The type of timing of the participant/subject's prior episodes of oral regurgitation with respect to meals

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20121 Mitochondrial disease prior oral regurgitation frequency other text

The free text field to specify past frequency of participant's/subject's other oral regurgitation

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20120 Mitochondrial disease prior oral regurgitation frequency

The frequency with which participant/subject had oral regurgitation in the past

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20123 Mitochondrial disease prior oral regurgitation detail text

The free text field to specify additional details about participant's/subject's past oral regurgitation symptoms

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20119 Mitochondrial disease prior oral regurgitation consistent day to day indicator

Indicator of whether past symptoms of oral regurgitation were consistent day to day

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20104 Mitochondrial disease prior GI symptom consistent day to day indicator

Indicator of whether past symptoms of GERD, heartburn, mid-line chest pain, esophageal burning were consistent day to day

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20108 Mitochondrial disease prior GI detail text

The free text field to specify additional details about participant's/subject's past GERD, heartburn, mid-line chest pain, esophageal burning symptoms

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20105 Mitochondrial disease prior GERD heartburn mid-line chest pain esophogeal burning frequency

The frequency of the participant/subject's prior GERD, heartburn, mid-line chest pain, esophageal burning

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20102 Mitochondrial disease prior GERD heartburn mid-line chest pain esophageal burning stop age category

Select the pre-specified age of participant/subject when past GERD, heartburn, mid-line chest pain, esophageal burning stopped

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20101 Mitochondrial disease prior GERD heartburn mid-line chest pain esophageal burning onset age category

The category of the participant/subject's age at prior past GERD, heartburn, mid-line chest, pain esophageal burning onset

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20107 Mitochondrial disease prior GERD heartburn mid-line chest pain esophageal burn wake indicator

Indicator of whether past GERD, heartburn, mid-line chest pain, esophageal burning woke participant/subject from sleep

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20103 Mitochondrial disease prior GERD heartburn mid-line chest pain esophageal burn stop reason

The free text field to specify when participant's/subject's past GERD heartburn mid-line chest pain esophageal burning stopped

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20106 Mitochondrial disease prior GERD heartburn mid-line chest pain esophageal burn disrupt activity indicator

Indicator of whether past GERD, heartburn, mid-line chest pain, esophageal burning disrupted activity

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20133 Mitochondrial disease prior burp stopped specific text

The free text field to specify when participant's/subject's past burping stopped

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20132 Mitochondrial disease prior burp stop age category

The category of participant/subject's age at the end of prior burping episodes

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20136 Mitochondrial disease prior burp specific drink food indicator

Indicator of whether participant's/subject's past burping occurred with specific drinks or food

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20135 Mitochondrial disease prior burp reflux abdominal distention accompany type

The type of reflux or abdominal distention that accompanied prior burping episodes for the participant/subject

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20131 Mitochondrial disease prior burp onset age category

The category of participant/subject's age at onset of prior burping episodes

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20138 Mitochondrial disease prior burp detail text

The free text field to specify additional details about participant's/subject's past burping symptoms

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20134 Mitochondrial disease prior burp consistent day to day indicator

Indicator of whether past burping was consistent day to day

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
Displaying 126 - 150 of 903

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.