CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 126 - 150 of 1649
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C17206 Problem Behaviours Assessment - Short Form (PBA-S) - lack initiative apathy frequency score

The frequency score for lack of initiative (apathy) as part of the Problem Behaviours Assessment - Short Form (PBA-S)

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Mitochondrial Disease Mitochondrial Disease
C17201 Problem Behaviours Assessment - Short Form (PBA-S) - irritability worst score

The worst score for irritability over the last four weeks as part of the Problem Behaviours Assessment - Short Form (PBA-S)

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Mitochondrial Disease Mitochondrial Disease
C17199 Problem Behaviours Assessment - Short Form (PBA-S) - irritability severity score

The severity score for irritability as part of the Problem Behaviours Assessment - Short Form (PBA-S)

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Mitochondrial Disease Mitochondrial Disease
C17200 Problem Behaviours Assessment - Short Form (PBA-S) - irritability frequency score

The frequency score for irritability frequencies as part of the Problem Behaviours Assessment - Short Form (PBA-S)

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Mitochondrial Disease Mitochondrial Disease
C17224 Problem Behaviours Assessment - Short Form (PBA-S) - informant relationship code

The relationship of the informant to the participant/subject as part of the Problem Behaviours Assessment - Short Form (PBA-S)

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Mitochondrial Disease Mitochondrial Disease
C17225 Problem Behaviours Assessment - Short Form (PBA-S) - informant household member status

The status whether the informant is a member of the participant's/subject's household as part of the Problem Behaviours Assessment - Short Form (PBA-S)

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Mitochondrial Disease Mitochondrial Disease
C17219 Problem Behaviours Assessment - Short Form (PBA-S) - hallucinations worst score

The worst score for hallucinations as part of the Problem Behaviours Assessment - Short Form (PBA-S)

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Mitochondrial Disease Mitochondrial Disease
C17217 Problem Behaviours Assessment - Short Form (PBA-S) - hallucinations severity score

The severity score for Hallucinations as part of the Problem Behaviours Assessment - Short Form (PBA-S)

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Mitochondrial Disease Mitochondrial Disease
C17220 Problem Behaviours Assessment - Short Form (PBA-S) - hallucinations modality type

The modality type of hallucinations as part of the Problem Behaviours Assessment - Short Form (PBA-S)

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Mitochondrial Disease Mitochondrial Disease
C17218 Problem Behaviours Assessment - Short Form (PBA-S) - hallucinations frequency score

The frequency score for hallucinations as part of the Problem Behaviours Assessment - Short Form (PBA-S)

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Mitochondrial Disease Mitochondrial Disease
C17223 Problem Behaviours Assessment - Short Form (PBA-S) - disoriented behaviours worst score

The worst score disoriented behaviour as part of the Problem Behaviours Assessment - Short Form (PBA-S)

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Mitochondrial Disease Mitochondrial Disease
C17222 Problem Behaviours Assessment - Short Form (PBA-S) - disoriented behaviours frequency score

The severity score disoriented behaviour as part of the Problem Behaviours Assessment - Short Form (PBA-S)

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Mitochondrial Disease Mitochondrial Disease
C17221 Problem Behaviours Assessment - Short Form (PBA-S) - disoriented behaviour severity score

The severity score for disoriented behaviour as part of the Problem Behaviours Assessment - Short Form (PBA-S)

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Mitochondrial Disease Mitochondrial Disease
C17192 Problem Behaviours Assessment - Short Form (PBA-S) - depressed mood worst rating score

The worst score for severity of Depressive Mood as part of the Problem Behaviours Assessment - Short Form (PBA-S)

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Mitochondrial Disease Mitochondrial Disease
C17190 Problem Behaviours Assessment - Short Form (PBA-S) - depressed mood severity score

The score for severity of average depressed mood change over past four weeks as part of the Problem Behaviours Assessment - Short Form (PBA-S)

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Mitochondrial Disease Mitochondrial Disease
C17191 Problem Behaviours Assessment - Short Form (PBA-S) - depressed mood frequency score

The score for frequency of average depressed mood change over past four weeks as part of the Problem Behaviours Assessment - Short Form (PBA-S)

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Mitochondrial Disease Mitochondrial Disease
C17216 Problem Behaviours Assessment - Short Form (PBA-S) - delusions paranoid thinking worst score

The worst score for Delusions/Paranoid Thinking as part of the Problem Behaviours Assessment - Short Form (PBA-S)

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Mitochondrial Disease Mitochondrial Disease
C17214 Problem Behaviours Assessment - Short Form (PBA-S) - delusions paranoid thinking severity score

Scores for severities of Delusions/Paranoid Thinking as part of the Problem Behaviours Assessment - Short Form (PBA-S)

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Mitochondrial Disease Mitochondrial Disease
C17215 Problem Behaviours Assessment - Short Form (PBA-S) - delusions paranoid thinking frequency score

The frequency score for Delusions/Paranoid Thinking as part of the Problem Behaviours Assessment - Short Form (PBA-S)

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Mitochondrial Disease Mitochondrial Disease
C17198 Problem Behaviours Assessment - Short Form (PBA-S) - anxiety worst score

The worst score for anxiety since patient was last seen as part of the Problem Behaviours Assessment - Short Form (PBA-S)

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Mitochondrial Disease Mitochondrial Disease
C17196 Problem Behaviours Assessment - Short Form (PBA-S) - anxiety severity score

The severity score for anxiety as part of the Problem Behaviours Assessment - Short Form (PBA-S)

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Mitochondrial Disease Mitochondrial Disease
C17197 Problem Behaviours Assessment - Short Form (PBA-S) - anxiety frequency score

The frequency score for anxiety as part of the Problem Behaviours Assessment - Short Form (PBA-S)

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Mitochondrial Disease Mitochondrial Disease
C17204 Problem Behaviours Assessment - Short Form (PBA-S) - angry aggressive behaviour worst score

The worst score for angry or aggressive behaviour as part of the Problem Behaviours Assessment - Short Form (PBA-S)

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Mitochondrial Disease Mitochondrial Disease
C17202 Problem Behaviours Assessment - Short Form (PBA-S) - angry aggressive behaviour severity score

The severity score for angry or aggressive behaviour as part of the Problem Behaviours Assessment - Short Form (PBA-S)

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Mitochondrial Disease Mitochondrial Disease
C17203 Problem Behaviours Assessment - Short Form (PBA-S) - angry aggressive behaviour frequency score

The frequency score for angry or aggressive behaviour as part of the Problem Behaviours Assessment - Short Form (PBA-S)

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Mitochondrial Disease Mitochondrial Disease
Displaying 126 - 150 of 1649

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.