CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 126 - 150 of 1834
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C21117 Subject name

Name of subject/participant

 Supplemental Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A) True Mitochondrial Disease Mitochondrial Disease
C52339 Subject initial text

The free-text field related to the initials of the subject

 Exploratory 12-Item Short Form Health Survey (SF-12) True Mitochondrial Disease Mitochondrial Disease
C19247 Subject ID

Subject identification ID

 Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) True Mitochondrial Disease Mitochondrial Disease
C19247 Subject ID

Subject identification ID

 Exploratory 12-Item Short Form Health Survey (SF-12) True Mitochondrial Disease Mitochondrial Disease
C59862 Sternocleidomastoid muscle activity monitor indicator

Indicator of whether sternocleidomastoid muscle (SCM) activity was monitored during the testing

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C60347 Step average daily count

Count of the average number of steps taken by the participant daily

 Supplemental-Highly Recommended Exercise Wearables False Mitochondrial Disease Mitochondrial Disease
C59874 Step acceleration test 60 degree per second time constant value

Value of the time constant for the 60 degree per second step acceleration tested

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C59873 Step acceleration test 60 degree per second condition type

Type of 60 degree per second step acceleration condition tested

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C59875 Step acceleration test 240 degree per second condition type

Type of 240 degree per second step acceleration condition tested

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C59876 Step acceleration test 240 degree per second asymmetry value

Value of the asymmetry for the 240 degree per second step acceleration tested

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C57113 Start recovery time

Time of the start of recovery

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C57112 Start exercise time

Time of the start of exercise

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C59902 Speed ventilatory anaerobic threshold measurement

Measurement of instantaneous speed, in revolutions per minute (RPM), when the ventilatory anaerobic threshold (VAT) was attained

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C59901 Speed submaximal absolute trial measurement

Measurement of speed, in revolutions per minute (RPM), during the Submaximal Absolute Trial

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C59904 Speed submaximal absolute trial complete oxygen uptake peak ratio value

Value, as a percentage, of the ratio of the speed (in revolutions per minute, RPM) during the Submaximal Absolute Trial to the instantaneous speed (in RPM) at the time oxygen uptake (VO2) peaked

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C59903 Speed oxygen uptake peak measurement

Measurement of instantaneous speed, in revolutions per minute (RPM), when peak oxygen uptake (VO2) was attained

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C60350 Sleep total average duration

Duration of total average sleep during the recording period

 Supplemental Exercise Wearables False Mitochondrial Disease Mitochondrial Disease
C60351 Sleep stage 4 average duration

Duration of average time in sleep stage 4 during the recording period

 Supplemental Exercise Wearables False Mitochondrial Disease Mitochondrial Disease
C60352 Sleep efficiency score

Score for the participant's sleep efficiency calculated by wearable technology software algorithm

 Exploratory Exercise Wearables False Mitochondrial Disease Mitochondrial Disease
C17402 Site name

The name of the site for the study

 Core Brain Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C17402 Site name

The name of the site for the study

 Core Head Computed Tomography (CT) False Mitochondrial Disease Mitochondrial Disease
C06000 Site identifier number

Unique identification number given to the study site to distinguish the location where data is recorded

 Exploratory 12-Item Short Form Health Survey (SF-12) True Mitochondrial Disease Mitochondrial Disease
C59869 Sinusoidal harmonic acceleration velocity measurement

Measurement of the velocity used in sinusoidal harmonic acceleration (SHA) rotational vestibular testing

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C20013 Short stature diagnosis indicator

The indicator related to being diagnosed for short stature or height

 Supplemental Reproductive and Hormonal History False Mitochondrial Disease Mitochondrial Disease
C59715 Sex steroid receive indicator

Indicator of whether the participant received sex steroids

 Supplemental Reproductive and Hormonal History False Mitochondrial Disease Mitochondrial Disease
Displaying 126 - 150 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.