CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 101 - 125 of 903
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20043 Mitochondrial disease special diet type

Select the type of specialized diet of the participant/subject

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20330 Mitochondrial disease special diet reason text

The free text field to specify why the participant/subject is on a specialized diet

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20044 Mitochondrial disease special diet other text

The free text field to specify the type of specialized diet if not listed

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20046 Mitochondrial disease special diet affect symptom text

The free text field to specify whether specialized diet affected participant/subject symptoms

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20232 Mitochondrial disease significant GI symptom prior diagnosis text

The free text field to provide significant GI symptoms before mitochondrial diseas diagnosis

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20331 Mitochondrial disease severe vomit symptom type

The type of symptom that was most severe with the patient/subject's vomiting episodes

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20042 Mitochondrial disease restrict diet indicator

Indicator of whether participant/subject are on a restricted diet

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20150 Mitochondrial disease remove food pill esophagus indicator

Indicator of whether participant/subject has food or pill removed from esophagus

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20151 Mitochondrial disease remove food pill esophagus count

The number of times participant/subject has had food or pill removed from esophagus

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20037 Mitochondrial disease problem type

Select the type of problems that participant/subject have

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20049 Mitochondrial disease problem start age category

The age category of the participant/subject when problems began

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20088 Mitochondrial disease prior vomit trigger other text

The free text field to specify additional details about what triggered the participant's/subject's past vomiting symptoms

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20076 Mitochondrial disease prior vomit time of day category

The time-of-day category of the participant/subject's prior episodes of vomiting

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20071 Mitochondrial disease prior vomit stop reason

The reason why the participant's/subject's prior vomiting stopped

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20070 Mitochondrial disease prior vomit stop age category

The age category of the participant/subject when prior vomiting stopped

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20079 Mitochondrial disease prior vomit prior problem type

The types of problems that frequently occur prior to vomiting during participant's/subject's prior episodes of vomiting

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20089 Mitochondrial disease prior vomit other text

The free text field to specify additional details about participant's/subject's past vomiting symptoms

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20087 Mitochondrial disease prior vomit onset trigger type

The type of trigger present at symptom onset of the participant's/subject's prior episodes of vomiting

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20069 Mitochondrial disease prior vomit onset age category

The age category of the participant/subject when prior vomiting began

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20081 Mitochondrial disease prior vomit green yellow color frequency

The frequency with which the participant's/subject's vomit was green or yellow in prior episodes of vomiting

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20073 Mitochondrial disease prior vomit frequency

The frequency of the participant/subject's prior episodes of vomiting

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20078 Mitochondrial disease prior vomit episode trigger text

The free text field to specify the participant's/subject's past vomiting episode triggers

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20077 Mitochondrial disease prior vomit episode trigger indicator

Indicator of whether there were particular triggers that induced prior vomiting episodes in participant/subject

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20083 Mitochondrial disease prior vomit color blood category

The category of color of the blood present in participant's/subject's vomit during prior episodes of vomiting

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20080 Mitochondrial disease prior vomit bright green yellow indicator

Indicator of whether participant's/subject's past vomit was bright green or yellow

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
Displaying 101 - 125 of 903

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.