CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 101 - 125 of 903

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1931-C20043	C20043	Mitochondrial disease special diet type	Select the type of specialized diet of the participant/subject	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20330	C20330	Mitochondrial disease special diet reason text	The free text field to specify why the participant/subject is on a specialized diet	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20044	C20044	Mitochondrial disease special diet other text	The free text field to specify the type of specialized diet if not listed	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20046	C20046	Mitochondrial disease special diet affect symptom text	The free text field to specify whether specialized diet affected participant/subject symptoms	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20232	C20232	Mitochondrial disease significant GI symptom prior diagnosis text	The free text field to provide significant GI symptoms before mitochondrial diseas diagnosis	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20331	C20331	Mitochondrial disease severe vomit symptom type	The type of symptom that was most severe with the patient/subject's vomiting episodes	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20042	C20042	Mitochondrial disease restrict diet indicator	Indicator of whether participant/subject are on a restricted diet	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20150	C20150	Mitochondrial disease remove food pill esophagus indicator	Indicator of whether participant/subject has food or pill removed from esophagus	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20151	C20151	Mitochondrial disease remove food pill esophagus count	The number of times participant/subject has had food or pill removed from esophagus	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20037	C20037	Mitochondrial disease problem type	Select the type of problems that participant/subject have	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20049	C20049	Mitochondrial disease problem start age category	The age category of the participant/subject when problems began	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20088	C20088	Mitochondrial disease prior vomit trigger other text	The free text field to specify additional details about what triggered the participant's/subject's past vomiting symptoms	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20076	C20076	Mitochondrial disease prior vomit time of day category	The time-of-day category of the participant/subject's prior episodes of vomiting	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20071	C20071	Mitochondrial disease prior vomit stop reason	The reason why the participant's/subject's prior vomiting stopped	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20070	C20070	Mitochondrial disease prior vomit stop age category	The age category of the participant/subject when prior vomiting stopped	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20079	C20079	Mitochondrial disease prior vomit prior problem type	The types of problems that frequently occur prior to vomiting during participant's/subject's prior episodes of vomiting	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20089	C20089	Mitochondrial disease prior vomit other text	The free text field to specify additional details about participant's/subject's past vomiting symptoms	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20087	C20087	Mitochondrial disease prior vomit onset trigger type	The type of trigger present at symptom onset of the participant's/subject's prior episodes of vomiting	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20069	C20069	Mitochondrial disease prior vomit onset age category	The age category of the participant/subject when prior vomiting began	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20081	C20081	Mitochondrial disease prior vomit green yellow color frequency	The frequency with which the participant's/subject's vomit was green or yellow in prior episodes of vomiting	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20073	C20073	Mitochondrial disease prior vomit frequency	The frequency of the participant/subject's prior episodes of vomiting	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20078	C20078	Mitochondrial disease prior vomit episode trigger text	The free text field to specify the participant's/subject's past vomiting episode triggers	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20077	C20077	Mitochondrial disease prior vomit episode trigger indicator	Indicator of whether there were particular triggers that induced prior vomiting episodes in participant/subject	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20083	C20083	Mitochondrial disease prior vomit color blood category	The category of color of the blood present in participant's/subject's vomit during prior episodes of vomiting	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20080	C20080	Mitochondrial disease prior vomit bright green yellow indicator	Indicator of whether participant's/subject's past vomit was bright green or yellow	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.