CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 101 - 125 of 1834
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59890 Time ventilatory anaerobic threshold elapse minute total count

Count of total elapsed minutes at which the ventilatory anaerobic threshold (VAT) was attained

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59889 Time submaximal absolute trial complete elapse minute total count

Count of total elapsed minutes at the conclusion of the Submaximal Absolute Trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59891 Time oxygen uptake peak elapse minute total count

Count of total elapsed minutes at which the participant's oxygen uptake (VO2) measurement peaked

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59893 Time exclude rest ventilatory anaerobic threshold elapse minute count

Count of total elapsed minutes, excluding rest time, at which the ventilatory anaerobic threshold (VAT) was attained

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59892 Time exclude rest submaximal absolute trial complete elapse minute count

Count of total elapsed minutes, excluding rest time, at the conclusion of the Submaximal Absolute Trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59894 Time exclude rest oxygen uptake peak elapse minute count

Count of total elapsed minutes, excluding rest time, at which the participant's oxygen uptake (VO2) measurement peaked

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59906 Tidal volume body temperature pressure saturate ventilatory anaerobic threshold measurement

Measurement of body temperature, pressure, saturated tidal volume, in liters (Vt BTPS (L)), when the ventilatory anaerobic threshold (VAT) was attained

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60005 Tidal volume body temperature pressure saturate trial start measurement

Measurement, in liters per minute (L/min), of body temperature, pressure, saturated tidal volume (Vt BTPS) at the beginning of the exercise trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60046 Tidal volume body temperature pressure saturate trial recovery start measurement

Measurement, in liters per minute (L/min), of body temperature, pressure, saturated tidal volume (Vt BTPS) at the beginning of the trial recovery period

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60019 Tidal volume body temperature pressure saturate trial other timepoint measurement

Measurement, in liters per minute (L/min), of body temperature, pressure, saturated tidal volume (Vt BTPS) at the specified timepoint during the exercise trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59905 Tidal volume body temperature pressure saturate submaximal absolute trial measurement

Measurement of body temperature, pressure, saturated tidal volume, in liters (Vt BTPS (L)), during the Submaximal Absolute Trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60033 Tidal volume body temperature pressure saturate submaximal absolute trial end measurement

Measurement, in liters per minute (L/min), of body temperature, pressure, saturated tidal volume (Vt BTPS) at the conclusion of the Submaximal Absolute Trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59908 Tidal volume body temperature pressure saturate submaximal absolute trial complete oxygen uptake peak ratio value

Value, as a percentage, of the ratio of the body temperature, pressure, saturated tidal volume ((in liters) (Vt BTPS (L)) during the Submaximal Absolute Trial to the Vt BTPS (L) at the time oxygen uptake (VO2) peaked

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59907 Tidal volume body temperature pressure saturate oxygen uptake peak measurement

Measurement of body temperature, pressure, saturated tidal volume, in liters (Vt BTPS (L)), at attainment of peak oxygen uptake (VO2)

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C01580 Temperature unit of measure

Unit of measure for the temperature numerical value

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C59710 Temperature unit agnostic value

Measurement of the participant's body temperature

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C59711 Temperature measurement anatomic site other text

The free-text field related to 'Temperature measurement anatomic site' specifying other text.

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C01550 Temperature measurement anatomic site

Anatomic site on or within the body where the temperature was measured

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C19582 Tanner stage pubic hair scale

The scale defining physical measurements of development based on external primary and secondary sex characteristics, such as the development of pubic hair to characterize stages of physical development in children, adolescents and adults

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C19583 Tanner stage genitalia scale

The scale defining physical measurements of development based on external primary and secondary sex characteristics, such as the size of the breasts and genitalia to characterize stages of physical development in children, adolescents and adults

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C59694 Tachycardia episode unit of measure

Unit of measure for the episode of tachycardia

Supplemental Holter Examination Mitochondrial Disease Mitochondrial Disease
C10500 Symptom onset age value

Age when symptoms first experienced

Core Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C60343 Subscapular skinfold thickness value

Value of the subscapular skinfold (under the lowest point of the shoulder blade) thickness measurement

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C60025 Submaximal absolute trial end minute count

Count of elapsed minutes at the conclusion of the Submaximal Absolute Trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C21117 Subject name

Name of subject/participant

Supplemental Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A) Mitochondrial Disease Mitochondrial Disease
Displaying 101 - 125 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.