CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdomain Name

CRF Name

Displaying 76 - 100 of 1834

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3127-C59887	C59887	Vestibular head impulse test overt saccades count	Count of overt saccades encountered during vestibular head impulse testing	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3127-C59886	C59886	Vestibular head impulse test covert saccades count	Count of covert saccades encountered during vestibular head impulse testing	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C12783	C12783	Variant mutational analysis results available indicator	Indicator of whether the variant or mutational analysis results are available on this participant	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C12944	C12944	Variant mutational analysis performed indicator	Indicator of whether the variant or mutational analysis was performed on the participant	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C12784	C12784	Variant mutational analysis performed family member indicator	Indicator of whether the mutational analysis was performed on a family member	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C17896	C17896	Variant mutational analysis not performed reason	Reason for why the mutational analysis was not performed	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20289	C20289	Urgent care clinic use past year indicator	The indicator of whether the participant has used after-hours or urgent care clinic other than the emergency room in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20290	C20290	Urgent care clinic use past year count	The count of the times the participant used an after-hours or urgent care clinic other than the emergency room in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20293	C20293	Urgent care clinic use other diabetes related past year count	The count of the times the participant used an after-hours or urgent care clinic for diabetes-related reasons other than hypoglycemia or hyperglycemia in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20294	C20294	Urgent care clinic use not diabetes related past year count	The count of the times the participant used an after-hours or urgent care clinic for reasons unrelated to diabetes in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20291	C20291	Urgent care clinic use hypoglycemia past year count	The count of the times the participant used an after-hours or urgent care clinic for hypoglycemia in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20292	C20292	Urgent care clinic use hyperglycemia past year count	The count of the times the participant used an after-hours or urgent care clinic for hyperglycemia in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3127-C59867	C59867	Upward gaze perform indicator	Indicator of whether upward gaze was performed by the participant during testing	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59791	C59791	Tympanometry stimulus tone frequency type	Type of frequency of the stimulus tone used in tympanometry	Core	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59794	C59794	Tympanometry peak pressure measurement	Measurement of peak pressure obtained by tympanometry	Core	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59796	C59796	Tympanometry middle ear resonance estimate measurement	Measurement of the estimated middle ear resonance obtained by tympanometry	Supplemental-Highly Recommended	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59795	C59795	Tympanometry gradient measurement	Measurement of the gradient with an ear canal volume correction of 200 decapascals (daPa) obtained by tympanometry	Supplemental-Highly Recommended	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59792	C59792	Tympanometry ear canal volume measurement	Measurement of ear canal volume obtained by tympanometry	Core	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59793	C59793	Tympanometry compensated amplitude measurement	Measurement of compensated amplitude obtained by tympanometry	Core	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59788	C59788	Tympanometry assessment status	Status indicating that tympanometry was not assessed	Core	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C60342	C60342	Triceps skinfold thickness value	Value of the triceps skinfold (back side middle upper arm) thickness measurement	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3134-C10171	C10171	Trial number	The number representing the sequence for any repeated measure test or assessment when it is performed multiple times	Supplemental	Pulmonary Function	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C60113	C60113	Trabecular Bone Score performed indicator	Indicator of whether the Trabecular Bone Score was performed	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C60114	C60114	Trabecular Bone Score	Score that evaluates pixel gray-level variations in the lumbar spine dual x-ray absorptiometry (DXA) image, providing an indirect measure of bone microarchitecture	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C12228	C12228	Tissue specimen name	Tissue specimen name collected from the participant	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.