CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Sub Domain Name

CRF Name

Displaying 76 - 100 of 1649

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C18168	Total cholesterol value	Total cholesterol level measured	Supplemental	Laboratory Tests and Non-Imaging Diagnostics (Diabetes)	False	Mitochondrial Disease	Mitochondrial Disease
C16160	Tobacco smoked 100 cigarettes indicator	Indicator for whether participant/subject has smoked at least 100 cigarettes in entire life	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C00709	Tobacco cigarettes smoked daily average number	Average number of cigarettes the participant/subject smokes daily (On the days you smoked cigarettes during the past 30 days, how many cigarettes did you smoke per day, on average?)	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C01550	Temperature measurement anatomic site	Anatomic site on or within the body where the temperature was measured	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
C01539	Temperature measurement	Measurement of the participant's/subject's body temperature	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
C19582	Tanner stage pubic hair scale	The scale defining physical measurements of development based on external primary and secondary sex characteristics, such as the size of the breasts, genitalia, and development of pubic hair to characterize stages of physical development in children, adolescents and adults	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
C19583	Tanner stage genitalia scale	The scale defining physical measurements of development based on external primary and secondary sex characteristics, such as the size of the breasts, genitalia, and development of pubic hair to characterize stages of physical development in children, adolescents and adults	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
C21117	Subject name	Name of subject/participant	Supplemental	Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI)	True	Mitochondrial Disease	Mitochondrial Disease
C21117	Subject name	Name of subject/participant	Supplemental	Children's Depression Inventory - 2 (CDI-2)	True	Mitochondrial Disease	Mitochondrial Disease
C21117	Subject name	Name of subject/participant	Supplemental	Behavior Rating Inventory of Executive Function (BRIEF) - Second Edition (BRIEF-2)	True	Mitochondrial Disease	Mitochondrial Disease
C19247	Subject ID	Subject identification ID	Supplemental	Children's Depression Inventory - 2 (CDI-2)	True	Mitochondrial Disease	Mitochondrial Disease
C51672	Subject age value	Value for the subject's age, calculated as the elapsed time since his/her birth in years	Supplemental	Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI)	True	Mitochondrial Disease	Mitochondrial Disease
C51673	Subject age month value	Value for the number of months that have elapsed since the subject's last birthday	Supplemental	Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI)	True	Mitochondrial Disease	Mitochondrial Disease
C17499	Special education indicator	Indicator as to whether the participant/subject has or had special education	Supplemental	Behavior Rating Inventory of Executive Function (BRIEF) - Second Edition (BRIEF-2)	True	Mitochondrial Disease	Mitochondrial Disease
C10177	Slow vital capacity percent of predicted normal value	Value representing the percentage of the predicted normal value of Slow Vital Capacity (sVC) to grade the severity of the abnormality, where sVC is the total amount of air that can be blown out leisurely after a maximal deep breath	Supplemental	Pulmonary Function	False	Mitochondrial Disease	Mitochondrial Disease
C17402	Site name	The name of the site for the study	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
C20013	Short stature diagnosis indicator	The indicator related to being diagnosed for short stature or height	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
C14964	Sedation used indicator	Whether the participant/subject was administered any sedation	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
C51670	School name	The name of the school that the subject currently attends, if applicable	Supplemental	Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI)	True	Mitochondrial Disease	Mitochondrial Disease
C20011	Rickets diagnosis indicator	The indicator for diagnosis of rickets which is caused by vitamin D or calcium deficiency	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
C01535	Respiratory rate	Rate of the participant/subject's breathing (inhalation and exhalation)	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
C19611	References text	List of references	Supplemental	Genetics Testing Short Form	False	Mitochondrial Disease	Mitochondrial Disease
C17769	Rater name	Name of rater	Supplemental	Apathy Scale (AS)	True	Mitochondrial Disease	Mitochondrial Disease
C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	General Core	False	Mitochondrial Disease	Mitochondrial Disease
C17964	Pulmonic stenosis regurgitation comment text	The text detailing the comments of the degree of stenosis and regurgitation for the pulmonic valve	Supplemental	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.