CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 76 - 100 of 1649
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C18168 Total cholesterol value

Total cholesterol level measured

Supplemental Laboratory Tests and Non-Imaging Diagnostics (Diabetes) Mitochondrial Disease Mitochondrial Disease
C16160 Tobacco smoked 100 cigarettes indicator

Indicator for whether participant/subject has smoked at least 100 cigarettes in entire life

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C00709 Tobacco cigarettes smoked daily average number

Average number of cigarettes the participant/subject smokes daily (On the days you smoked cigarettes during the past 30 days, how many cigarettes did you smoke per day, on average?)

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C01550 Temperature measurement anatomic site

Anatomic site on or within the body where the temperature was measured

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C01539 Temperature measurement

Measurement of the participant's/subject's body temperature

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C19582 Tanner stage pubic hair scale

The scale defining physical measurements of development based on external primary and secondary sex characteristics, such as the size of the breasts, genitalia, and development of pubic hair to characterize stages of physical development in children, adolescents and adults

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C19583 Tanner stage genitalia scale

The scale defining physical measurements of development based on external primary and secondary sex characteristics, such as the size of the breasts, genitalia, and development of pubic hair to characterize stages of physical development in children, adolescents and adults

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C21117 Subject name

Name of subject/participant

Supplemental Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) Mitochondrial Disease Mitochondrial Disease
C21117 Subject name

Name of subject/participant

Supplemental Children's Depression Inventory - 2 (CDI-2) Mitochondrial Disease Mitochondrial Disease
C21117 Subject name

Name of subject/participant

Supplemental Behavior Rating Inventory of Executive Function (BRIEF) - Second Edition (BRIEF-2) Mitochondrial Disease Mitochondrial Disease
C19247 Subject ID

Subject identification ID

Supplemental Children's Depression Inventory - 2 (CDI-2) Mitochondrial Disease Mitochondrial Disease
C51672 Subject age value

Value for the subject's age, calculated as the elapsed time since his/her birth in years

Supplemental Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) Mitochondrial Disease Mitochondrial Disease
C51673 Subject age month value

Value for the number of months that have elapsed since the subject's last birthday

Supplemental Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) Mitochondrial Disease Mitochondrial Disease
C17499 Special education indicator

Indicator as to whether the participant/subject has or had special education

Supplemental Behavior Rating Inventory of Executive Function (BRIEF) - Second Edition (BRIEF-2) Mitochondrial Disease Mitochondrial Disease
C10177 Slow vital capacity percent of predicted normal value

Value representing the percentage of the predicted normal value of Slow Vital Capacity (sVC) to grade the severity of the abnormality, where sVC is the total amount of air that can be blown out leisurely after a maximal deep breath

Supplemental Pulmonary Function Mitochondrial Disease Mitochondrial Disease
C17402 Site name

The name of the site for the study

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C20013 Short stature diagnosis indicator

The indicator related to being diagnosed for short stature or height

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C14964 Sedation used indicator

Whether the participant/subject was administered any sedation

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C51670 School name

The name of the school that the subject currently attends, if applicable

Supplemental Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) Mitochondrial Disease Mitochondrial Disease
C20011 Rickets diagnosis indicator

The indicator for diagnosis of rickets which is caused by vitamin D or calcium deficiency

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C01535 Respiratory rate

Rate of the participant/subject's breathing (inhalation and exhalation)

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C19611 References text

List of references

Supplemental Genetics Testing Short Form Mitochondrial Disease Mitochondrial Disease
C17769 Rater name

Name of rater

Supplemental Apathy Scale (AS) Mitochondrial Disease Mitochondrial Disease
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core General Core Mitochondrial Disease Mitochondrial Disease
C17964 Pulmonic stenosis regurgitation comment text

The text detailing the comments of the degree of stenosis and regurgitation for the pulmonic valve

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
Displaying 76 - 100 of 1649

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.