CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 76 - 100 of 903

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1931-C20090	C20090	Mitochondrial disease vomit diagnosis cyclic indicator	Indicator of whether the participant/subject has a cyclic vomiting diagnosis	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20048	C20048	Mitochondrial disease vomit current prior status	The status of whether the participant/subject's vomiting is current or past	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20063	C20063	Mitochondrial disease vomit color blood category	The category of color of the blood present in participant's/subject's vomit	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20060	C20060	Mitochondrial disease vomit bright green yellow indicator	Indicator of whether participant's/subject's vomit is bright green or yellow	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20061	C20061	Mitochondrial disease vomit bright green yellow frequency	The frequency with which the participant's/subject's vomit is green or yellow	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20062	C20062	Mitochondrial disease vomit blood indicator	Indicator of whether participant/subject has ever vomited blood	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20064	C20064	Mitochondrial disease vomit blood clot indicator	Indicator of whether participant's/subject's vomit has blood clots	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20093	C20093	Mitochondrial disease vision change aura experience type	The type of vision change or aura experienced by the participant/subject	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20203	C20203	Mitochondrial disease toilet diaper use type	Select whether the participant/subject uses a toilet or diaper	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20229	C20229	Mitochondrial disease time GI symptom occur prior diagnosis text	The free text field to provide how long participant/subject had GI symptoms before being diagnosed with Mitochondrial disease	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20052	C20052	Mitochondrial disease symptom consistent indicator	Indicator of whether symptoms are consistent day to day	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20140	C20140	Mitochondrial disease swallow problem onset age category	The category of the participant/subject's age at onset of difficulty or pain with swallowing	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20141	C20141	Mitochondrial disease swallow problem occur liquid solid type	The type of consistency with which the participant/subject has problems swallowing	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20142	C20142	Mitochondrial disease swallow problem frequency	The frequency with which the participant/subject has problems swallowing	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20147	C20147	Mitochondrial disease swallow pain text	The free text field to specify comments about participant's/subject's pain with swallowing	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20145	C20145	Mitochondrial disease swallow pain frequency	The frequency with which the participant/subject has pain with swallowing	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20146	C20146	Mitochondrial disease swallow pain disrupt activity wake type	The type of activity or sleep disrupted by the participant/subject's swallowing pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20139	C20139	Mitochondrial disease swallow difficult pain type	The type of difficulty or pain experienced by the participant/subject when swallowing	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20192	C20192	Mitochondrial disease swallow air indicator	Indicator of whether participant/subject are air swallowers	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20226	C20226	Mitochondrial disease surgery type detail text	The free text field to provide additional details about the type of surgery participant/subject had	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20225	C20225	Mitochondrial disease surgery type	Select the type of surgery participant/subject had	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20224	C20224	Mitochondrial disease surgery ever indicator	Indicator of whether the participant/subject has had surgery	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20206	C20206	Mitochondrial disease stool blood indicator	Indicator of whether the participant/subject has blood in their stools	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20207	C20207	Mitochondrial disease stool blood color category	The category of color of blood in participant's/subject's stool	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20208	C20208	Mitochondrial disease stool blood amount result	The result of blood in the stool, as an amount	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.