CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3127-C59839	C59839	Left eye vision status	Status of the participant's vision using the left eye	Supplemental	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3127-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3089-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Core	Imaging - Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F1056-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C56163	C56163	Last calibration date time	The date and time of the last time the machine was calibrated	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59734	C59734	Lactose intolerant indicator	Indicator of whether that the participant is lactose intolerant	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3092-C19728	C19728	Laboratory procedure VLDL cholesterol measurement	Measurement of the amount of very low density lipoprotein (VLDL) cholesterol in the participant's blood	Supplemental	Diabetes Labs	False	Mitochondrial Disease	Mitochondrial Disease
F3092-C19729	C19729	Laboratory procedure vitamin D twenty five hydroxy measurement	Measurement of the amount of vitamin D twenty five hydroxy in the participant's blood	Exploratory	Diabetes Labs	False	Mitochondrial Disease	Mitochondrial Disease
F3092-C19725	C19725	Laboratory procedure two hour glucose measurement	Measurement of the amount of glucose in the participant's blood 2 hours after a 75-gram glucose drink has been ingested	Supplemental	Diabetes Labs	False	Mitochondrial Disease	Mitochondrial Disease
F3092-C18169	C18169	Laboratory procedure triglycerides measurement	Measurement of the amount of triglycerides in the participant's blood	Supplemental	Diabetes Labs	False	Mitochondrial Disease	Mitochondrial Disease
F3092-C18168	C18168	Laboratory procedure total cholesterol measurement	Measurement of the total amount of cholesterol in the participant's blood	Supplemental	Diabetes Labs	False	Mitochondrial Disease	Mitochondrial Disease
F3092-C57974	C57974	Laboratory procedure random glucose measurement	Measurement of the amount of glucose in the participant's blood at a random/non-fasting time	Supplemental	Diabetes Labs	False	Mitochondrial Disease	Mitochondrial Disease
F3092-C19730	C19730	Laboratory procedure microalbumin urine measurement	Measurement of the amount of microalbumin in the participant's urine	Supplemental	Diabetes Labs	False	Mitochondrial Disease	Mitochondrial Disease
F3092-C18147	C18147	Laboratory procedure LDL cholesterol measurement	Measurement of the amount of low density lipoprotein (LDL) cholesterol in the participant's blood	Supplemental	Diabetes Labs	False	Mitochondrial Disease	Mitochondrial Disease
F3092-C18146	C18146	Laboratory procedure HDL cholesterol measurement	Measurement of the amount of high density lipoprotein (HDL) cholesterol in the participant's blood	Supplemental	Diabetes Labs	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C19722	C19722	Laboratory procedure glycosylated hemoglobin measurement	Measurement of the amount of glycosylated hemoglobin (hemoglobin A1C) in the participant's blood	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3092-C19722	C19722	Laboratory procedure glycosylated hemoglobin measurement	Measurement of the amount of glycosylated hemoglobin (hemoglobin A1C) in the participant's blood	Supplemental-Highly Recommended	Diabetes Labs	False	Mitochondrial Disease	Mitochondrial Disease
F3092-C19726	C19726	Laboratory procedure fasting insulin measurement	Measurement of the amount of insulin in the participant's blood when fasting	Supplemental	Diabetes Labs	False	Mitochondrial Disease	Mitochondrial Disease
F3092-C19724	C19724	Laboratory procedure fasting glucose measurement	Measurement of the amount of glucose in the participant's blood when fasting	Supplemental-Highly Recommended	Diabetes Labs	False	Mitochondrial Disease	Mitochondrial Disease
F3092-C19727	C19727	Laboratory procedure fasting C-peptide measurement	Measurement of the amount of C-peptide in the participant's blood when fasting	Supplemental	Diabetes Labs	False	Mitochondrial Disease	Mitochondrial Disease
F3092-C60249	C60249	Laboratory procedure anti-pancreatic autoantibody name	Name of the anti-pancreatic autoantibody measured in the participant's blood	Supplemental-Highly Recommended	Diabetes Labs	False	Mitochondrial Disease	Mitochondrial Disease
F3092-C19723	C19723	Laboratory procedure anti-pancreatic autoantibodies value	Value of the amount of anti-pancreatic autoantibodies in the participant's blood	Supplemental-Highly Recommended	Diabetes Labs	False	Mitochondrial Disease	Mitochondrial Disease
F3122-C60355	C60355	Lab urine specimen fast prior indicator	Indicator of whether the participant was fasting prior to collection of urine lab specimen	Supplemental	Labs of Bone Mineral Metabolism	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.