CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 701 - 725 of 1834
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core General Core Mitochondrial Disease Mitochondrial Disease
C00317 Medical history condition start date and time

Date (and time, if applicable and known) for the start of an event in the participant's medical history

Supplemental Medical History Mitochondrial Disease Mitochondrial Disease
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core General Core Mitochondrial Disease Mitochondrial Disease
C18793 Medical history condition other text

The free-text field related to 'Medical history condition type', specifying other text. Pre-specified medical condition/disease asked about when collecting the medical history from the participant or found documented in the medical record

Supplemental Medical History Mitochondrial Disease Mitochondrial Disease
C00319 Medical history condition ongoing indicator

Indicator of whether a medical condition/disease experienced by the participant is ongoing

Supplemental Medical History Mitochondrial Disease Mitochondrial Disease
C00316 Medical history condition end date and time

Date (and time, if applicable and known) for the end of an event in the participant's medical history

Supplemental Medical History Mitochondrial Disease Mitochondrial Disease
C16012 Medical history condition diagnosis indicator

Indicator of whether the participant has been diagnosed with the medical condition/disease

Supplemental Medical History Mitochondrial Disease Mitochondrial Disease
C59879 Maximum sway excursion right position percent value

Value of the percent of maximum sway excursion in a right position

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59883 Maximum sway excursion left position percent value

Value of the percent of maximum sway excursion in a left position

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59878 Maximum sway excursion forward right position percent value

Value of the percent of maximum sway excursion in a forward right position

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59877 Maximum sway excursion forward position percent value

Value of the percent of maximum sway excursion in a forward position

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59884 Maximum sway excursion forward left position percent value

Value of the percent of maximum sway excursion in a forward left position

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59880 Maximum sway excursion backward right percent value

Value of the percent of maximum sway excursion in a backward right position

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59881 Maximum sway excursion backward position percent value

Value of the percent of maximum sway excursion in a backward position

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59882 Maximum sway excursion backward left position percent value

Value of the percent of maximum sway excursion in a backward left position

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C19613 Length Z score

The number of standard deviations the measured length of the participant is above the mean

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C19616 Length standard infant use type

Indicator of whether WHO or CDC growth charts were used in length Z-score calculation

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C19608 Length percentile value

Value of the participant's length percentile for age calculated using a standardized growth chart

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C19577 Length infant unit of measure

Unit of measure for the length numerical value for participant

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C19575 Length infant measurement

Length measurement taken for infants less than 24 months

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C59995 Leg fatigue ventilatory anaerobic threshold Borg scale

Scale value of leg fatigue using the Borg Scale when the ventilatory anaerobic threshold (VAT) was attained

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59997 Leg fatigue submaximal absolute trial complete oxygen uptake peak Borg scale ratio value

Value, as a percentage, of the ratio of the scale value of leg fatigue using the Borg Scale at the conclusion of the Submaximal Absolute Trial, to the scale value measured at the attainment of peak oxygen uptake (VO2)

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59994 Leg fatigue submaximal absolute trial Borg scale

Scale value of leg fatigue during the Submaximal Absolute Trial using the Borg Scale

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59993 Leg fatigue rest Borg scale

Scale value of leg fatigue at rest using the Borg Scale

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59996 Leg fatigue oxygen uptake peak measure Borg scale

Scale value of leg fatigue measured with the Borg Scale at the attainment of peak oxygen uptake (VO2)

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
Displaying 701 - 725 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.