CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 651 - 675 of 1834

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3093-C20221	C20221	Mitochondrial disease alternative medicine type other text	The free text field related to 'Mitochondrial disease alternative medicine type' specifying other text. Type of alternative medications that the participant has tried	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20220	C20220	Mitochondrial disease alternative medicine type	Type of alternative medicine tried by the participant	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20223	C20223	Mitochondrial disease alternative medicine treatment gastrointestinal problem worsen text	The free-text field to specify about which alternative medicine treatments made the participant's GI problems worse	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20222	C20222	Mitochondrial disease alternative medicine treatment gastrointestinal problem improve text	The free-text field to specify about which alternative medicine treatments made the participant's GI problems better	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20219	C20219	Mitochondrial disease alternative medicine treat GI problem indicator	Indicator of whether the participant has tried to treat GI problems with alternative medicine	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60328	C60328	Mitochondrial disease acute pancreatitis indicator	Indicator of whether the participant had acute pancreatitis	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20155	C20155	Mitochondrial disease abdominal pain current prior status	Status of whether the participant's abdominal pain is current or prior	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60281	C60281	Mitochondrial disease abdominal migraine diagnosis indicator	Indicator of whether the participant has an abdominal migraine diagnosis	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20187	C20187	Mitochondrial disease abdominal early fullness indicator	Indicator of whether the participant experiences early fullness	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C60237	C60237	Metabolomic type	Type of metabolic testing performed	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C16170	C16170	Menstrual period occurrence indicator	Indicates whether participant has ever had a menstrual period	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C16175	C16175	Menstrual period last date	Date of the participant's last menstrual period	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C16171	C16171	Menstrual period first occurrence age value	Youngest age the participant had a menstrual period, otherwise known as the age of menarche	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C16174	C16174	Menopause indicator	Indicates whether participant is currently menopausal	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59724	C59724	Medication testosterone HCG current indicator	Indicator of whether the participant is currently taking any testosterone (injection, patch, gel, other) or HCG (injection)	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59728	C59728	Medication teriparatide indicator	Indicator of whether the participant is or has ever taken teriparatide (Forteo)	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59725	C59725	Medication stop puberty current indicator	Indicator of whether the participant is currently taking any medications to stop puberty	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59716	C59716	Medication steroid mouth current indicator	Indicator of whether the participant is taking any oral steroids by mouth	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59718	C59718	Medication steroid IV current indicator	Indicator of whether the participant is taking any steroids by IV	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59717	C59717	Medication steroid inhaler current indicator	Indicator of whether the participant is taking any steroids by inhaler	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59719	C59719	Medication seizure current indicator	Indicator of whether the participant is taking any seizure medications	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59730	C59730	Medication romusuzumab indicator	Indicator of whether the participant is or has ever taken romusuzumab (Evenity)	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20258	C20258	Medication reduce blood sugar prior diagnosis type	The type of the medication to reduce blood sugar levels taken by the participant prior to diagnosis of the condition/disorder	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20257	C20257	Medication reduce blood sugar prior diagnosis diabetes indicator	The indicator of whether the participant had been on medication to reduce blood sugar levels prior to diagnosis of the diabetes	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59723	C59723	Medication other progesterone current indicator	Indicator of whether the participant is currently taking other progesterone forms (pill, implant, intra-uterine device, other)	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.