CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Show All
Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 626 - 650 of 1834
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20159 Mitochondrial disease current abdominal pain frequency type

Type of frequency with which the participant currently has abdominal pain

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20161 Mitochondrial disease current abdominal pain duration type

Type of duration of the participant's current abdominal pain

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20162 Mitochondrial disease current abdominal pain duration detail text

The free-text field specifying additional details about participant's current abdominal pain duration

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20165 Mitochondrial disease current abdominal pain disrupt activity indicator

Indicator of whether the participant's current abdominal pain disrupts activity

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20169 Mitochondrial disease current abdominal pain detail text

The free-text field to specify additional details about the participant's present abdominal pain

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20158 Mitochondrial disease current abdominal pain anatomic site

Anatomic site where participant's current abdominal pain is located

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20191 Mitochondrial disease current abdominal distension cause reason type

Type of reason for current abdominal distension

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C60305 Mitochondrial disease cough eat indicator

Indicator of whether the participant coughs while eating

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20235 Mitochondrial disease concern Munchausen by proxy syndrome indicator

Indicator of whether there is concern about the participant experiencing Munchausen by proxy

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C60330 Mitochondrial disease chronic pancreatitis indicator

Indicator of whether the participant had chronic pancreatitis

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C60341 Mitochondrial disease chronic pain medication pancreatitis indicator

Indicator of whether the participant is taking chronic pain medication for pancreatitis

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C60303 Mitochondrial disease choke solid indicator

Indicator of whether the participant chokes with solids

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C60302 Mitochondrial disease choke liquid indicator

Indicator of whether the participant chokes with liquids

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20124 Mitochondrial disease burp current prior status

Status of whether the participant's episodes of burping are current or prior

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C60320 Mitochondrial disease bowel movements current medication type other text

The free-text field related to 'Mitochondrial disease bowel movements current medication type', specifying other text. Type of other medications that the participant is currently taking to help with bowel movements

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20328 Mitochondrial disease bowel movements current medication type

Type of medications that the participant is currently taking for help with bowel movements

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20212 Mitochondrial disease bowel movement treatment efficacy text

The free-text field to specify about participant's treatments helping or worsening bowel movement problem

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20209 Mitochondrial disease bowel movement treat medicine indicator

Indicator of whether the participant uses medicine to help with bowel movements

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20205 Mitochondrial disease bowel movement strain pass indicator

Indicator of whether the participant has to strain to pass a bowel movement

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20204 Mitochondrial disease bowel movement problem onset age category

Category of the participant's age at the onset of bowel movement problems

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20213 Mitochondrial disease bowel movement problem detail text

The free-text field to specify additional details about the participant's bowel movement problems

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20201 Mitochondrial disease bowel movement frequency type other text

The free-text field related to 'Mitochondrial disease bowel movement frequency type', specifying other text. Type of frequency with which the participant has bowel movements

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20200 Mitochondrial disease bowel movement frequency type

Type of frequency with which the participant has bowel movements

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20202 Mitochondrial disease bowel movement consistency result type

Type of the resulting consistency of the participant's bowel movements

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20188 Mitochondrial disease bloat abdominal distension current prior status

Status of whether the participant's bloating or abdominal distension is current or prior

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
Displaying 626 - 650 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.