CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 526 - 550 of 1834
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20236 Mitochondrial disease Munchausen by proxy syndrome health care professional setting indicator

Indicator of whether a health care professional has had a concern about Munchausen by proxy

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20091 Mitochondrial disease migraine history indicator

Indicator of whether the participant has a history of migraines

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20092 Mitochondrial disease migraine family history indicator

Indicator of whether the participant has a family history of migraines

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20218 Mitochondrial disease medication gastrointestinal problem prior worsen text

The free-text field to specify about which medications made the participant's past GI problems worse

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20217 Mitochondrial disease medication gastrointestinal problem prior help text

The free-text field to specify about which medications helped with the participant's past GI problems

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20041 Mitochondrial disease liquid diet text

The free-text field to specify the type of liquid diet used by the participant

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20227 Mitochondrial disease life effect grade

Graded scale representing the effect of the symptoms on the participant's life

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60326 Mitochondrial disease last pancreatitis episode age value

Value for the participant's age at the last pancreatitis episode

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20030 Mitochondrial disease known genetic diagnosis indicator

Indicator of whether the participant has a known genetically diagnosed mitochondrial disease

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20039 Mitochondrial disease infant formula text

The free-text field to specify the kind of infant formula used by participant

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60275 Mitochondrial disease infant formula recommendation type other text

The free-text field related to 'Mitochondrial disease infant formula recommendation type', specifying other text. Type of recommendation the participant received regarding the infant formula

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60274 Mitochondrial disease infant formula recommendation type

Type of recommendation the participant received regarding the infant formula

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60273 Mitochondrial disease infant formula choose reason text

The free-text field to specify the reason an infant formula was chosen

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60299 Mitochondrial disease good appetite indicator

Indicator of whether the participant has a good appetite

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20094 Mitochondrial disease GERD heartburn mid-line chest pain esophageal burn current prior status

Status of whether the participant's GERD, heartburn, mid-line chest pain, esophageal burning symptoms are current or prior

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60337 Mitochondrial disease genetic tests pancreas result text

The free-text field related to the participant's genetic test results

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60336 Mitochondrial disease genetic testing pancreas indicator

Indicator of whether the participant had genetic testing performed

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20231 Mitochondrial disease gastrointestinal symptom result diagnosis text

The free-text field to provide the GI symptoms that lead to a mitochondrial disease diagnosis

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20234 Mitochondrial disease gastrointestinal symptom refer psychiatric professional indicator

Indicator of whether the participant has ever been referred to a psychiatric professional regarding GI symptoms

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20233 Mitochondrial disease gastrointestinal problem not believe delay treatment indicator

Indicator of whether the participant delayed treatment of GI problem due to fear of not being believed about symptoms

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20230 Mitochondrial disease gastrointestinal physician visit count

Count of GI doctors seen by the participant

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20228 Mitochondrial disease gastrointestinal clinical trial participate indicator

Indicator of whether the participant would participate in a clinical trial regarding gastrointestinal issues

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20148 Mitochondrial disease food stuck esophagus indicator

Indicator of whether the participant gets food stuck in their esophagus

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20149 Mitochondrial disease food stuck esophagus anatomic site

Anatomic site of food getting stuck in the participant's esophagus

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60325 Mitochondrial disease first pancreatitis episode age value

Value for the participant's age at the first pancreatitis episode

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
Displaying 526 - 550 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.