CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 51 - 75 of 903
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C11106 Pulmonary function maximal expiratory pressure (MEP) result value

Value, representing the percentage of the predicted normal value of Maximal Expiratory Pressure (MEP) a measure of the strength of respiratory muscles

Supplemental Pulmonary Function Mitochondrial Disease Mitochondrial Disease
C11109 Pulmonary function forced vital capacity (FVC) flow volume crossed x-axis indicator

Whether the Forced Vital Capacity (FVC) flow volume crossed the x-axis

Supplemental Pulmonary Function Mitochondrial Disease Mitochondrial Disease
C16172 Pregnant current indicator

Whether the female participant/subject is currently pregnant

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C16168 Pregnancy self or spouse number

Number of each pregnancy of participant/subject or participant/subject's partner

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C16169 Pregnancy outcome type

Type of outcome of the pregnancy experienced by the participant/subject

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C16193 Pregnancy outcome date

The date and time (if applicable and known) of the outcome (i.e., delivery of live birth, miscarriage, etc.) of the pregnancy experienced by the participant/subject or the participant/subject's partner

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C16173 Pregnancy estimated delivery date and time

The date and time (if applicable) the participant/subject is estimated to deliver the pregnancy

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C16179 Post-menopausal surgery date

The date and time (if applicable and known) of the surgery that induced the post-menopausal period

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C16177 Post-menopausal indicator

Indicates whether participant/subject is post-menopausal

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C16178 Post-menopausal cause type

Cause or reason for the post-menopausal period in the female participant/subject

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C20256 Physical activity 20 minute day during week count

The count of days in a typical week on which the participant/subject spends at least 20 minutes doing physical activities or exercise

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C10599 Parameter map calculation type

Type(s) of parameter maps calculated for the perfusion MRI scan being reported

Supplemental Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C20288 Non-diabetes related 911 call past year count

The count of the times that the participant/subject called 911 (or their local equivalent) for reasons unrelated to their diabetes in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20074 Mitochondrial disease vomit time period frequency other text

The free text field to specify how often the participant/subject vomited in the past

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20056 Mitochondrial disease vomit time of day category

The time-of-day category of when the participant/subject usually vomits

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20072 Mitochondrial disease vomit symptom consistent indicator

Indicator of whether past symptoms were consistent day to day

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20059 Mitochondrial disease vomit prior problem type

The types of problems that frequently occur prior to participant's/subject's vomiting

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20075 Mitochondrial disease vomit prior episode intensity type

The type of intensity of the participant/subject's prior episodes of vomiting

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20066 Mitochondrial disease vomit prior abdominal pain indicator

Indicator of whether participant/subject experiences abdominal pain before vomiting

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20067 Mitochondrial disease vomit most severe episode type

The type of symptom that is most severe during the participant/subject's vomiting episodes

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20054 Mitochondrial disease vomit frequency other text

The free text field to specify how often the participant/subject vomits

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20053 Mitochondrial disease vomit frequency

The frequency with which the participant/subject vomits

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20058 Mitochondrial disease vomit episode trigger text

The free text field to specify the participant's/subject's vomiting episode triggers

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20057 Mitochondrial disease vomit episode trigger indicator

Indicator of whether there are particular triggers that induce vomiting episodes in participant/subject

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20055 Mitochondrial disease vomit episode intensity type

The type of intensity of the participant/subject's episodes of vomiting

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
Displaying 51 - 75 of 903

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.