CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

Displaying 26 - 50 of 903

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1817-C01550	C01550	Temperature measurement anatomic site	Anatomic site on or within the body where the temperature was measured	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
F1817-C01539	C01539	Temperature measurement	Measurement of the participant's/subject's body temperature	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
F1817-C19582	C19582	Tanner stage pubic hair scale	The scale defining physical measurements of development based on external primary and secondary sex characteristics, such as the size of the breasts, genitalia, and development of pubic hair to characterize stages of physical development in children, adolescents and adults	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
F1817-C19583	C19583	Tanner stage genitalia scale	The scale defining physical measurements of development based on external primary and secondary sex characteristics, such as the size of the breasts, genitalia, and development of pubic hair to characterize stages of physical development in children, adolescents and adults	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
F1934-C10177	C10177	Slow vital capacity percent of predicted normal value	Value representing the percentage of the predicted normal value of Slow Vital Capacity (sVC) to grade the severity of the abnormality, where sVC is the total amount of air that can be blown out leisurely after a maximal deep breath	Supplemental	Pulmonary Function	False	Mitochondrial Disease	Mitochondrial Disease
F1057-C17402	C17402	Site name	The name of the site for the study	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F1933-C20013	C20013	Short stature diagnosis indicator	The indicator related to being diagnosed for short stature or height	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F1057-C14964	C14964	Sedation used indicator	Whether the participant/subject was administered any sedation	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F1933-C20011	C20011	Rickets diagnosis indicator	The indicator for diagnosis of rickets which is caused by vitamin D or calcium deficiency	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F1817-C01535	C01535	Respiratory rate	Rate of the participant/subject's breathing (inhalation and exhalation)	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
F1870-C19611	C19611	References text	List of references	Supplemental	Genetics Testing Short Form	False	Mitochondrial Disease	Mitochondrial Disease
F1807-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	General Core	False	Mitochondrial Disease	Mitochondrial Disease
F1060-C17964	C17964	Pulmonic stenosis regurgitation comment text	The text detailing the comments of the degree of stenosis and regurgitation for the pulmonic valve	Supplemental	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F1934-C11099	C11099	Pulmonary function test type	Type of pulmonary function testing performed	Supplemental	Pulmonary Function	False	Mitochondrial Disease	Mitochondrial Disease
F1934-C11100	C11100	Pulmonary function test position type	Participant's/subject's position for the pulmonary function assessment	Supplemental	Pulmonary Function	False	Mitochondrial Disease	Mitochondrial Disease
F1934-C11101	C11101	Pulmonary function test mouth apparatus type	Type of mouthpiece used for the pulmonary function test	Supplemental	Pulmonary Function	False	Mitochondrial Disease	Mitochondrial Disease
F1934-C11098	C11098	Pulmonary function test date and time	Date the pulmonary function test was performed	Supplemental	Pulmonary Function	False	Mitochondrial Disease	Mitochondrial Disease
F1934-C11110	C11110	Pulmonary function sniff nasal inspiratory pressure (SNIP) result value	Value representing the Sniff Nasal Inspiratory Pressure (SNIP), in cm H2O, as a measure of global inspiratory muscle strength	Supplemental	Pulmonary Function	False	Mitochondrial Disease	Mitochondrial Disease
F1934-C11111	C11111	Pulmonary function sniff nasal inspiratory pressure (SNIP) peak pressure value	Value representing the peak Sniff Nasal Inspiratory Pressure (SNIP), in cm H2O, of three trials	Supplemental	Pulmonary Function	False	Mitochondrial Disease	Mitochondrial Disease
F1934-C11114	C11114	Pulmonary function sniff nasal inspiratory pressure (SNIP) congestion indicator	Indicator as to whether or not the participant/subject has nasal congestion when Sniff Nasal Inspiratory Pressure (SNIP) was measured	Supplemental	Pulmonary Function	False	Mitochondrial Disease	Mitochondrial Disease
F1934-C11104	C11104	Pulmonary function slow vital capacity (sVC) result value	Value, in Liters, representing the slow Vital Capacity (SVC) maximal amount of air exhaled steadily from full inspiration to maximal expiration in liters. Not time-dependent	Supplemental	Pulmonary Function	False	Mitochondrial Disease	Mitochondrial Disease
F1934-C11107	C11107	Pulmonary function peak expiratory flow result value	Value representing the Peak Expiratory Flow (PEF) as a person's maximum speed of expiration	Supplemental	Pulmonary Function	False	Mitochondrial Disease	Mitochondrial Disease
F1934-C17832	C17832	Pulmonary function maximum inspiratory pressure (MIP) type	Type of Maximum Inspiratory Pressure (MIP)	Supplemental	Pulmonary Function	False	Mitochondrial Disease	Mitochondrial Disease
F1934-C11112	C11112	Pulmonary function maximal voluntary ventilation (MVV) result value	Value representing the Maximal Voluntary Ventilation, in Liters per Minute, as the greatest volume of gas that can be breathed per minute by voluntary effort	Supplemental	Pulmonary Function	False	Mitochondrial Disease	Mitochondrial Disease
F1934-C11105	C11105	Pulmonary function maximal inspiratory pressure (MIP) result value	Value, in cm H2O, representing the percentage of the predicted normal value of Maximal Inspiratory Pressure (MIP) a measure of the strength of respiratory muscles	Exploratory	Pulmonary Function	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.