CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 26 - 50 of 903
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C01550 Temperature measurement anatomic site

Anatomic site on or within the body where the temperature was measured

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C01539 Temperature measurement

Measurement of the participant's/subject's body temperature

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C19582 Tanner stage pubic hair scale

The scale defining physical measurements of development based on external primary and secondary sex characteristics, such as the size of the breasts, genitalia, and development of pubic hair to characterize stages of physical development in children, adolescents and adults

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C19583 Tanner stage genitalia scale

The scale defining physical measurements of development based on external primary and secondary sex characteristics, such as the size of the breasts, genitalia, and development of pubic hair to characterize stages of physical development in children, adolescents and adults

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C10177 Slow vital capacity percent of predicted normal value

Value representing the percentage of the predicted normal value of Slow Vital Capacity (sVC) to grade the severity of the abnormality, where sVC is the total amount of air that can be blown out leisurely after a maximal deep breath

Supplemental Pulmonary Function Mitochondrial Disease Mitochondrial Disease
C17402 Site name

The name of the site for the study

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C20013 Short stature diagnosis indicator

The indicator related to being diagnosed for short stature or height

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C14964 Sedation used indicator

Whether the participant/subject was administered any sedation

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C20011 Rickets diagnosis indicator

The indicator for diagnosis of rickets which is caused by vitamin D or calcium deficiency

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C01535 Respiratory rate

Rate of the participant/subject's breathing (inhalation and exhalation)

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C19611 References text

List of references

Supplemental Genetics Testing Short Form Mitochondrial Disease Mitochondrial Disease
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core General Core Mitochondrial Disease Mitochondrial Disease
C17964 Pulmonic stenosis regurgitation comment text

The text detailing the comments of the degree of stenosis and regurgitation for the pulmonic valve

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C11099 Pulmonary function test type

Type of pulmonary function testing performed

Supplemental Pulmonary Function Mitochondrial Disease Mitochondrial Disease
C11100 Pulmonary function test position type

Participant's/subject's position for the pulmonary function assessment

Supplemental Pulmonary Function Mitochondrial Disease Mitochondrial Disease
C11101 Pulmonary function test mouth apparatus type

Type of mouthpiece used for the pulmonary function test

Supplemental Pulmonary Function Mitochondrial Disease Mitochondrial Disease
C11098 Pulmonary function test date and time

Date the pulmonary function test was performed

Supplemental Pulmonary Function Mitochondrial Disease Mitochondrial Disease
C11110 Pulmonary function sniff nasal inspiratory pressure (SNIP) result value

Value representing the Sniff Nasal Inspiratory Pressure (SNIP), in cm H2O, as a measure of global inspiratory muscle strength

Supplemental Pulmonary Function Mitochondrial Disease Mitochondrial Disease
C11111 Pulmonary function sniff nasal inspiratory pressure (SNIP) peak pressure value

Value representing the peak Sniff Nasal Inspiratory Pressure (SNIP), in cm H2O, of three trials

Supplemental Pulmonary Function Mitochondrial Disease Mitochondrial Disease
C11114 Pulmonary function sniff nasal inspiratory pressure (SNIP) congestion indicator

Indicator as to whether or not the participant/subject has nasal congestion when Sniff Nasal Inspiratory Pressure (SNIP) was measured

Supplemental Pulmonary Function Mitochondrial Disease Mitochondrial Disease
C11104 Pulmonary function slow vital capacity (sVC) result value

Value, in Liters, representing the slow Vital Capacity (SVC) maximal amount of air exhaled steadily from full inspiration to maximal expiration in liters. Not time-dependent

Supplemental Pulmonary Function Mitochondrial Disease Mitochondrial Disease
C11107 Pulmonary function peak expiratory flow result value

Value representing the Peak Expiratory Flow (PEF) as a person's maximum speed of expiration

Supplemental Pulmonary Function Mitochondrial Disease Mitochondrial Disease
C17832 Pulmonary function maximum inspiratory pressure (MIP) type

Type of Maximum Inspiratory Pressure (MIP)

Supplemental Pulmonary Function Mitochondrial Disease Mitochondrial Disease
C11112 Pulmonary function maximal voluntary ventilation (MVV) result value

Value representing the Maximal Voluntary Ventilation, in Liters per Minute, as the greatest volume of gas that can be breathed per minute by voluntary effort

Supplemental Pulmonary Function Mitochondrial Disease Mitochondrial Disease
C11105 Pulmonary function maximal inspiratory pressure (MIP) result value

Value, in cm H2O, representing the percentage of the predicted normal value of Maximal Inspiratory Pressure (MIP) a measure of the strength of respiratory muscles

Exploratory Pulmonary Function Mitochondrial Disease Mitochondrial Disease
Displaying 26 - 50 of 903

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.