CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Sub Domain Name

CRF Name

Displaying 26 - 50 of 1649

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C09940	World Health Organization Quality of Life (WHOQOL-BREF) - body appearance acceptance scale	Scale used to assess bodily appearance acceptance, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Mitochondrial Disease	Mitochondrial Disease
C09948	World Health Organization Quality of Life (WHOQOL-BREF) - ability satisfaction scale	Scale used to assess ability satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Mitochondrial Disease	Mitochondrial Disease
C09946	World Health Organization Quality of Life (WHOQOL-BREF) - ability perform daily scale	Scale used to assess how satisfied the participant is with his ability to perform daily living activities, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Mitochondrial Disease	Mitochondrial Disease
C20012	World Health Organization (WHO) Fracture Risk Assessment tool (FRAX) - fracture probability percentage value	The score as the 10 year probability of fracture related to the World Health Organization (WHO) Fracture Risk Assessment tool (FRAX) - score for adults between the ages of 40-90	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
C19580	Weight/Length percentile value	The participant/subject's weight/length percentile for age calculated using a standardized growth chart	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
C01581	Weight unit of measure	Unit of measure for the weight numerical value	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C01581	Weight unit of measure	Unit of measure for the weight numerical value	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C01581	Weight unit of measure	Unit of measure for the weight numerical value	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
C15900	Weight percentile value	The participant/subject's weight percentile for age calculated using a standardized growth chart	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
C19632	Weight pediatric unit of measure	Unit of measure for the pediatric weight numerical value	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
C19631	Weight measurement pediatric value	Measurement of weight for a participant's/subject's who is	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
C01541	Weight measurement	Measurement of participant's/subject's weight	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C01541	Weight measurement	Measurement of participant's/subject's weight	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
C19619	Weight length Z Score	The number of standard deviations the measured weight/length of the subject/participant is above the mean	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
C19620	Weight length standard infant use type	Indicate whether WHO or CDC growth charts were used in weight/length Z-score calculation	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
C19579	Weight length infant measurement	Weight/Length measurement for infants less than 24 months	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
C21523	Wechsler Memory Scale IV (WMS-IV) - Logical memory II subtest recognition total raw score	Total raw score (Story B + Story C) as part of Wechsler Memory Scale IV (WMS-IV) Logical Memory II Subtest, Recognition	Supplemental	Wechsler Memory Scale IV (WMS-IV)	True	Mitochondrial Disease	Mitochondrial Disease
C21522	Wechsler Memory Scale IV (WMS-IV) - Logical memory II subtest recognition story C total score	Total score for Story C as part of Wechsler Memory Scale IV (WMS-IV) Logical Memory II Subtest	Supplemental	Wechsler Memory Scale IV (WMS-IV)	True	Mitochondrial Disease	Mitochondrial Disease
C21521	Wechsler Memory Scale IV (WMS-IV) - Logical memory II subtest recognition story B total score	Total score for Story B as part of Wechsler Memory Scale IV (WMS-IV) Logical Memory II Subtest	Supplemental	Wechsler Memory Scale IV (WMS-IV)	True	Mitochondrial Disease	Mitochondrial Disease
C21520	Wechsler Memory Scale IV (WMS-IV) - Logical memory II subtest delayed recall total raw score	Total raw score (Story B + Story C) as part of Wechsler Memory Scale IV (WMS-IV) Logical Memory II Subtest, Delayed Recall	Supplemental	Wechsler Memory Scale IV (WMS-IV)	True	Mitochondrial Disease	Mitochondrial Disease
C21519	Wechsler Memory Scale IV (WMS-IV) - Logical memory II subtest delayed recall story C verbatim response text	Response by participant for Story C as part of Wechsler Memory Scale IV (WMS-IV) Logical Memory II Subtest, Delayed Recall	Supplemental	Wechsler Memory Scale IV (WMS-IV)	True	Mitochondrial Disease	Mitochondrial Disease
C21518	Wechsler Memory Scale IV (WMS-IV) - Logical memory II subtest delayed recall story C total score	Total score for inclusion of details for Story C when recalling story as part of Wechsler Memory Scale IV (WMS-IV) Logical Memory II Subtest, Delayed Recall	Supplemental	Wechsler Memory Scale IV (WMS-IV)	True	Mitochondrial Disease	Mitochondrial Disease
C21517	Wechsler Memory Scale IV (WMS-IV) - Logical memory II subtest delayed recall story B verbatim response text	Response by participant for Story B as part of Wechsler Memory Scale IV (WMS-IV) Logical Memory II Subtest, Delayed Recall	Supplemental	Wechsler Memory Scale IV (WMS-IV)	True	Mitochondrial Disease	Mitochondrial Disease
C21516	Wechsler Memory Scale IV (WMS-IV) - Logical memory II subtest delayed recall story B total score	Total score for inclusion of details for Story B when recalling story as part of Wechsler Memory Scale IV (WMS-IV) Logical Memory II Subtest, Delayed Recall	Supplemental	Wechsler Memory Scale IV (WMS-IV)	True	Mitochondrial Disease	Mitochondrial Disease
C21515	Wechsler Memory Scale IV (WMS-IV) - Logical memory II subtest delayed recall story B elapsed time	Time elapsed (should be between 20-30 minutes) between Logical Memory I Subtest, Immediate Recall and Logical Memory II Subtest, Delayed Recall as part of Wechsler Memory Scale IV (WMS-IV)	Supplemental	Wechsler Memory Scale IV (WMS-IV)	True	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.