CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 26 - 50 of 1649
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C09940 World Health Organization Quality of Life (WHOQOL-BREF) - body appearance acceptance scale

Scale used to assess bodily appearance acceptance, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

Supplemental World Health Organization Quality of Life Assessment (WHOQOL-BREF) Mitochondrial Disease Mitochondrial Disease
C09948 World Health Organization Quality of Life (WHOQOL-BREF) - ability satisfaction scale

Scale used to assess ability satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

Supplemental World Health Organization Quality of Life Assessment (WHOQOL-BREF) Mitochondrial Disease Mitochondrial Disease
C09946 World Health Organization Quality of Life (WHOQOL-BREF) - ability perform daily scale

Scale used to assess how satisfied the participant is with his ability to perform daily living activities, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

Supplemental World Health Organization Quality of Life Assessment (WHOQOL-BREF) Mitochondrial Disease Mitochondrial Disease
C20012 World Health Organization (WHO) Fracture Risk Assessment tool (FRAX) - fracture probability percentage value

The score as the 10 year probability of fracture related to the World Health Organization (WHO) Fracture Risk Assessment tool (FRAX) - score for adults between the ages of 40-90

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C19580 Weight/Length percentile value

The participant/subject's weight/length percentile for age calculated using a standardized growth chart

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C01581 Weight unit of measure

Unit of measure for the weight numerical value

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C01581 Weight unit of measure

Unit of measure for the weight numerical value

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C01581 Weight unit of measure

Unit of measure for the weight numerical value

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C15900 Weight percentile value

The participant/subject's weight percentile for age calculated using a standardized growth chart

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C19632 Weight pediatric unit of measure

Unit of measure for the pediatric weight numerical value

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C19631 Weight measurement pediatric value

Measurement of weight for a participant's/subject's who is

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C01541 Weight measurement

Measurement of participant's/subject's weight

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C01541 Weight measurement

Measurement of participant's/subject's weight

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C19619 Weight length Z Score

The number of standard deviations the measured weight/length of the subject/participant is above the mean

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C19620 Weight length standard infant use type

Indicate whether WHO or CDC growth charts were used in weight/length Z-score calculation

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C19579 Weight length infant measurement

Weight/Length measurement for infants less than 24 months

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C21523 Wechsler Memory Scale IV (WMS-IV) - Logical memory II subtest recognition total raw score

Total raw score (Story B + Story C) as part of Wechsler Memory Scale IV (WMS-IV) Logical Memory II Subtest, Recognition

Supplemental Wechsler Memory Scale IV (WMS-IV) Mitochondrial Disease Mitochondrial Disease
C21522 Wechsler Memory Scale IV (WMS-IV) - Logical memory II subtest recognition story C total score

Total score for Story C as part of Wechsler Memory Scale IV (WMS-IV) Logical Memory II Subtest

Supplemental Wechsler Memory Scale IV (WMS-IV) Mitochondrial Disease Mitochondrial Disease
C21521 Wechsler Memory Scale IV (WMS-IV) - Logical memory II subtest recognition story B total score

Total score for Story B as part of Wechsler Memory Scale IV (WMS-IV) Logical Memory II Subtest

Supplemental Wechsler Memory Scale IV (WMS-IV) Mitochondrial Disease Mitochondrial Disease
C21520 Wechsler Memory Scale IV (WMS-IV) - Logical memory II subtest delayed recall total raw score

Total raw score (Story B + Story C) as part of Wechsler Memory Scale IV (WMS-IV) Logical Memory II Subtest, Delayed Recall

Supplemental Wechsler Memory Scale IV (WMS-IV) Mitochondrial Disease Mitochondrial Disease
C21519 Wechsler Memory Scale IV (WMS-IV) - Logical memory II subtest delayed recall story C verbatim response text

Response by participant for Story C as part of Wechsler Memory Scale IV (WMS-IV) Logical Memory II Subtest, Delayed Recall

Supplemental Wechsler Memory Scale IV (WMS-IV) Mitochondrial Disease Mitochondrial Disease
C21518 Wechsler Memory Scale IV (WMS-IV) - Logical memory II subtest delayed recall story C total score

Total score for inclusion of details for Story C when recalling story as part of Wechsler Memory Scale IV (WMS-IV) Logical Memory II Subtest, Delayed Recall

Supplemental Wechsler Memory Scale IV (WMS-IV) Mitochondrial Disease Mitochondrial Disease
C21517 Wechsler Memory Scale IV (WMS-IV) - Logical memory II subtest delayed recall story B verbatim response text

Response by participant for Story B as part of Wechsler Memory Scale IV (WMS-IV) Logical Memory II Subtest, Delayed Recall

Supplemental Wechsler Memory Scale IV (WMS-IV) Mitochondrial Disease Mitochondrial Disease
C21516 Wechsler Memory Scale IV (WMS-IV) - Logical memory II subtest delayed recall story B total score

Total score for inclusion of details for Story B when recalling story as part of Wechsler Memory Scale IV (WMS-IV) Logical Memory II Subtest, Delayed Recall

Supplemental Wechsler Memory Scale IV (WMS-IV) Mitochondrial Disease Mitochondrial Disease
C21515 Wechsler Memory Scale IV (WMS-IV) - Logical memory II subtest delayed recall story B elapsed time

Time elapsed (should be between 20-30 minutes) between Logical Memory I Subtest, Immediate Recall and Logical Memory II Subtest, Delayed Recall as part of Wechsler Memory Scale IV (WMS-IV)

Supplemental Wechsler Memory Scale IV (WMS-IV) Mitochondrial Disease Mitochondrial Disease
Displaying 26 - 50 of 1649

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.