CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

CRF Name

Displaying 1 - 25 of 903

1
2
3
4
5
6
7
8
9
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C20012	World Health Organization (WHO) Fracture Risk Assessment tool (FRAX) - fracture probability percentage value	The score as the 10 year probability of fracture related to the World Health Organization (WHO) Fracture Risk Assessment tool (FRAX) - score for adults between the ages of 40-90	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
C19580	Weight/Length percentile value	The participant/subject's weight/length percentile for age calculated using a standardized growth chart	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
C01581	Weight unit of measure	Unit of measure for the weight numerical value	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C01581	Weight unit of measure	Unit of measure for the weight numerical value	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C01581	Weight unit of measure	Unit of measure for the weight numerical value	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
C15900	Weight percentile value	The participant/subject's weight percentile for age calculated using a standardized growth chart	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
C19632	Weight pediatric unit of measure	Unit of measure for the pediatric weight numerical value	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
C19631	Weight measurement pediatric value	Measurement of weight for a participant's/subject's who is	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
C01541	Weight measurement	Measurement of participant's/subject's weight	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
C01541	Weight measurement	Measurement of participant's/subject's weight	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C19619	Weight length Z Score	The number of standard deviations the measured weight/length of the subject/participant is above the mean	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
C19620	Weight length standard infant use type	Indicate whether WHO or CDC growth charts were used in weight/length Z-score calculation	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
C19579	Weight length infant measurement	Weight/Length measurement for infants less than 24 months	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
C01519	Vital signs date and time	Date (and time, if applicable and known) the vital signs and other body measurements were taken by indicating the month, day, and year for the date and am, pm, or 24 hour clock for time	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
C20289	Urgent care clinic use past year indicator	The indicator of whether the participant/subject has used after-hours or urgent care clinic other than the emergency room in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C20290	Urgent care clinic use past year count	The count of the times the participant/subject used an after-hours or urgent care clinic other than the emergency room in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C20293	Urgent care clinic use other diabetes related past year count	The count of the times the participant/subject used an after-hours or urgent care clinic for diabetes-related reasons other than hypoglycemia or hyperglycemia in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C20294	Urgent care clinic use not diabetes related past year count	The count of the times the participant/subject used an after-hours or urgent care clinic for reasons unrelated to diabetes in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C20291	Urgent care clinic use hypoglycemia past year count	The count of the times the participant/subject used an after-hours or urgent care clinic for hypoglycemia in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C20292	Urgent care clinic use hyperglycemia past year count	The count of the times the participant/subject used an after-hours or urgent care clinic for hyperglycemia in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C18169	Triglycerides value	Triglycerides measured	Supplemental	Laboratory Tests and Non-Imaging Diagnostics (Diabetes)	False	Mitochondrial Disease	Mitochondrial Disease
C10171	Trial number	The number representing the sequence for any repeated measure test or assessment when it is performed multiple times	Supplemental	Pulmonary Function	False	Mitochondrial Disease	Mitochondrial Disease
C18168	Total cholesterol value	Total cholesterol level measured	Supplemental	Laboratory Tests and Non-Imaging Diagnostics (Diabetes)	False	Mitochondrial Disease	Mitochondrial Disease
C16160	Tobacco smoked 100 cigarettes indicator	Indicator for whether participant/subject has smoked at least 100 cigarettes in entire life	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C00709	Tobacco cigarettes smoked daily average number	Average number of cigarettes the participant/subject smokes daily (On the days you smoked cigarettes during the past 30 days, how many cigarettes did you smoke per day, on average?)	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease

Displaying 1 - 25 of 903

1
2
3
4
5
6
7
8
9
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.