CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1 - 25 of 903
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20012 World Health Organization (WHO) Fracture Risk Assessment tool (FRAX) - fracture probability percentage value

The score as the 10 year probability of fracture related to the World Health Organization (WHO) Fracture Risk Assessment tool (FRAX) - score for adults between the ages of 40-90

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C19580 Weight/Length percentile value

The participant/subject's weight/length percentile for age calculated using a standardized growth chart

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C01581 Weight unit of measure

Unit of measure for the weight numerical value

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C01581 Weight unit of measure

Unit of measure for the weight numerical value

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C01581 Weight unit of measure

Unit of measure for the weight numerical value

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C15900 Weight percentile value

The participant/subject's weight percentile for age calculated using a standardized growth chart

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C19632 Weight pediatric unit of measure

Unit of measure for the pediatric weight numerical value

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C19631 Weight measurement pediatric value

Measurement of weight for a participant's/subject's who is

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C01541 Weight measurement

Measurement of participant's/subject's weight

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C01541 Weight measurement

Measurement of participant's/subject's weight

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C19619 Weight length Z Score

The number of standard deviations the measured weight/length of the subject/participant is above the mean

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C19620 Weight length standard infant use type

Indicate whether WHO or CDC growth charts were used in weight/length Z-score calculation

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C19579 Weight length infant measurement

Weight/Length measurement for infants less than 24 months

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C01519 Vital signs date and time

Date (and time, if applicable and known) the vital signs and other body measurements were taken by indicating the month, day, and year for the date and am, pm, or 24 hour clock for time

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C20289 Urgent care clinic use past year indicator

The indicator of whether the participant/subject has used after-hours or urgent care clinic other than the emergency room in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20290 Urgent care clinic use past year count

The count of the times the participant/subject used an after-hours or urgent care clinic other than the emergency room in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20293 Urgent care clinic use other diabetes related past year count

The count of the times the participant/subject used an after-hours or urgent care clinic for diabetes-related reasons other than hypoglycemia or hyperglycemia in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20294 Urgent care clinic use not diabetes related past year count

The count of the times the participant/subject used an after-hours or urgent care clinic for reasons unrelated to diabetes in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20291 Urgent care clinic use hypoglycemia past year count

The count of the times the participant/subject used an after-hours or urgent care clinic for hypoglycemia in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20292 Urgent care clinic use hyperglycemia past year count

The count of the times the participant/subject used an after-hours or urgent care clinic for hyperglycemia in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C18169 Triglycerides value

Triglycerides measured

Supplemental Laboratory Tests and Non-Imaging Diagnostics (Diabetes) Mitochondrial Disease Mitochondrial Disease
C10171 Trial number

The number representing the sequence for any repeated measure test or assessment when it is performed multiple times

Supplemental Pulmonary Function Mitochondrial Disease Mitochondrial Disease
C18168 Total cholesterol value

Total cholesterol level measured

Supplemental Laboratory Tests and Non-Imaging Diagnostics (Diabetes) Mitochondrial Disease Mitochondrial Disease
C16160 Tobacco smoked 100 cigarettes indicator

Indicator for whether participant/subject has smoked at least 100 cigarettes in entire life

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C00709 Tobacco cigarettes smoked daily average number

Average number of cigarettes the participant/subject smokes daily (On the days you smoked cigarettes during the past 30 days, how many cigarettes did you smoke per day, on average?)

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
Displaying 1 - 25 of 903

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.