CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdomain Name

CRF Name

Displaying 1701 - 1725 of 1834

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3127-C59875	C59875	Step acceleration test 240 degree per second condition type	Type of 240 degree per second step acceleration condition tested	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3127-C59873	C59873	Step acceleration test 60 degree per second condition type	Type of 60 degree per second step acceleration condition tested	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3127-C59874	C59874	Step acceleration test 60 degree per second time constant value	Value of the time constant for the 60 degree per second step acceleration tested	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3124-C60347	C60347	Step average daily count	Count of the average number of steps taken by the participant daily	Supplemental-Highly Recommended	Exercise Wearables	False	Mitochondrial Disease	Mitochondrial Disease
F3127-C59862	C59862	Sternocleidomastoid muscle activity monitor indicator	Indicator of whether sternocleidomastoid muscle (SCM) activity was monitored during the testing	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F2485-C19247	C19247	Subject ID	Subject identification ID	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Mitochondrial Disease	Mitochondrial Disease
F1968-C19247	C19247	Subject ID	Subject identification ID	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Mitochondrial Disease	Mitochondrial Disease
F2485-C52339	C52339	Subject initial text	The free-text field related to the initials of the subject	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Mitochondrial Disease	Mitochondrial Disease
F1968-C21117	C21117	Subject name	Name of subject/participant	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Mitochondrial Disease	Mitochondrial Disease
F2235-C21117	C21117	Subject name	Name of subject/participant	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Mitochondrial Disease	Mitochondrial Disease
F3128-C60025	C60025	Submaximal absolute trial end minute count	Count of elapsed minutes at the conclusion of the Submaximal Absolute Trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C60343	C60343	Subscapular skinfold thickness value	Value of the subscapular skinfold (under the lowest point of the shoulder blade) thickness measurement	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C10500	C10500	Symptom onset age value	Age when symptoms first experienced	Core	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C59694	C59694	Tachycardia episode unit of measure	Unit of measure for the episode of tachycardia	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19583	C19583	Tanner stage genitalia scale	The scale defining physical measurements of development based on external primary and secondary sex characteristics, such as the size of the breasts and genitalia to characterize stages of physical development in children, adolescents and adults	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19582	C19582	Tanner stage pubic hair scale	The scale defining physical measurements of development based on external primary and secondary sex characteristics, such as the development of pubic hair to characterize stages of physical development in children, adolescents and adults	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3094-C01550	C01550	Temperature measurement anatomic site	Anatomic site on or within the body where the temperature was measured	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
F3094-C59711	C59711	Temperature measurement anatomic site other text	The free-text field related to 'Temperature measurement anatomic site' specifying other text.	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
F3094-C59710	C59710	Temperature unit agnostic value	Measurement of the participant's body temperature	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
F3094-C01580	C01580	Temperature unit of measure	Unit of measure for the temperature numerical value	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59907	C59907	Tidal volume body temperature pressure saturate oxygen uptake peak measurement	Measurement of body temperature, pressure, saturated tidal volume, in liters (Vt BTPS (L)), at attainment of peak oxygen uptake (VO2)	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59908	C59908	Tidal volume body temperature pressure saturate submaximal absolute trial complete oxygen uptake peak ratio value	Value, as a percentage, of the ratio of the body temperature, pressure, saturated tidal volume ((in liters) (Vt BTPS (L)) during the Submaximal Absolute Trial to the Vt BTPS (L) at the time oxygen uptake (VO2) peaked	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60033	C60033	Tidal volume body temperature pressure saturate submaximal absolute trial end measurement	Measurement, in liters per minute (L/min), of body temperature, pressure, saturated tidal volume (Vt BTPS) at the conclusion of the Submaximal Absolute Trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59905	C59905	Tidal volume body temperature pressure saturate submaximal absolute trial measurement	Measurement of body temperature, pressure, saturated tidal volume, in liters (Vt BTPS (L)), during the Submaximal Absolute Trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60019	C60019	Tidal volume body temperature pressure saturate trial other timepoint measurement	Measurement, in liters per minute (L/min), of body temperature, pressure, saturated tidal volume (Vt BTPS) at the specified timepoint during the exercise trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease

Displaying 1701 - 1725 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.