CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 151 - 175 of 903
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C07109 Center for Epidemiologic Studies-Depression Scale (CES-D) - people dislike indicator

Indicates how often the subject felt that people dislike the subject in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

Supplemental Center for Epidemiologic Studies-Depression Scale (CES-D) Mitochondrial Disease Mitochondrial Disease
C07092 Center for Epidemiologic Studies-Depression Scale (CES-D) - poor appetite indicator

Indicates how often the subject didn't feel like eating in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

Supplemental Center for Epidemiologic Studies-Depression Scale (CES-D) Mitochondrial Disease Mitochondrial Disease
C07101 Center for Epidemiologic Studies-Depression Scale (CES-D) - Restless sleep indicator

Indicates how often the subject had restless sleep in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

Supplemental Center for Epidemiologic Studies-Depression Scale (CES-D) Mitochondrial Disease Mitochondrial Disease
C07108 Center for Epidemiologic Studies-Depression Scale (CES-D) - sadness indicator

Indicates how often the subject felt sad in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

Supplemental Center for Epidemiologic Studies-Depression Scale (CES-D) Mitochondrial Disease Mitochondrial Disease
C07103 Center for Epidemiologic Studies-Depression Scale (CES-D) - talk less indicator

Indicates how often the subject talked less than usual in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

Supplemental Center for Epidemiologic Studies-Depression Scale (CES-D) Mitochondrial Disease Mitochondrial Disease
C07095 Center for Epidemiologic Studies-Depression Scale (CES-D) - trouble keeping mind indicator

Indicates how often the subject had trouble keeping mind on what the he/she was doing in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

Supplemental Center for Epidemiologic Studies-Depression Scale (CES-D) Mitochondrial Disease Mitochondrial Disease
C07105 Center for Epidemiologic Studies-Depression Scale (CES-D) - unfriendly indicator

Indicates how often the subject felt that people were unfriendly, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

Supplemental Center for Epidemiologic Studies-Depression Scale (CES-D) Mitochondrial Disease Mitochondrial Disease
C10980 Childbearing potential indicator

Indicator of whether the participant/subject is of childbearing potential

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C18027 Comment text

Provide any additional information that pertains to the question

Supplemental Genetics Testing Clinical Diagnostics Mitochondrial Disease Mitochondrial Disease
C18153 Data unknown text

The free-text field to Mark an "X" in to record if data are unknown or not available

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20284 Diabetes 911 call past year count

The count of the times that the participant/subject called 911 (or their local equivalent) for reasons related to their diabetes in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20283 Diabetes 911 call past year indicator

The indicator of whether the participant/subject has called 911 (or their local equivalent) for reasons related to their diabetes in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20242 Diabetes clinical symptom presentation diagnosis type

Clinical symptoms participant/ subject showed at presentation when diagnosed with diabetes

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20241 Diabetes diagnosis indicator

The indicator of whether the participant/subject has been diagnosed with diabetes

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20250 Diabetes family history medical condition indicator

Indicator of whether a close family member of the participant/subject has had a history of diabetes

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C10539 Diabetes first diagnosis age value

Value representing the age, in years, at which the participant/subject was first diagnosed with diabetes mellitus

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20244 Diabetes insulin receive diagnosis indicator

The indicator of whether the participant/subject received insulin at the time the diabetes was diagnosed

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20243 Diabetes laboratory diagnosis type

Laboratory indications present at diagnosis of diabetes

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20287 Diabetes related other 911 call past year count

The count of the times that the participant/subject called 911 (or their local equivalent) for reasons related to their diabetes other than hypoglycemia or hyperglycemia in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20264 Diabetic ketoacidosis emergency past year count

The count of diabetic ketoacidosis (DKA) episodes requiring emergency or urgent treatment experienced by the participant/subject in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20260 Diabetic ketoacidosis emergency past year indicator

The indicator of whether the participant/subject has experienced a diabetic ketoacidosis (DKA) episode requiring emergency or urgent treatment in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20263 Diabetic ketoacidosis emergency post diagnosis diabetes count

The count of diabetic ketoacidosis (DKA) episodes requiring emergency or urgent treatment experienced by the participant/subject in the time since their diagnosis of diabetes

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20259 Diabetic ketoacidosis emergency post diagnosis diabetes indicator

The indicator of whether the participant/subject has experienced a diabetic ketoacidosis (DKA) episode requiring emergency or urgent treatment, in the time since their diagnosis of diabetes

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C18241 Diagnosis age type

Type of age of the participant/subject when initially diagnosed with disease/disorder

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C19720 Dietary supplement administered count

Numerical number of how many times the supplement was taken

Supplemental Dietary Supplements Mitochondrial Disease Mitochondrial Disease
Displaying 151 - 175 of 903

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.