CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3130-C60151	C60151	Imaging axial plane slice orientation text	Free-text field describing the axial plane slice orientation (e.g., parallel to the OML, parallel to the hard palate, etc.)	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C60083	C60083	Imaging brain abnormal enhancement anatomic site	Anatomic site of abnormal enhancement found in brain imaging study	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C60083	C60083	Imaging brain abnormal enhancement anatomic site	Anatomic site of abnormal enhancement found in brain imaging study	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C60082	C60082	Imaging brain abnormal enhancement indicator	Indicator of whether there is abnormal enhancement in the brain imaging study	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C60082	C60082	Imaging brain abnormal enhancement indicator	Indicator of whether there is abnormal enhancement in the brain imaging study	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C13766	C13766	Imaging brain acute infarct anatomic site	Indicates the anatomic brain region of the acute infarct(s)	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C60167	C60167	Imaging brain atrophy anatomic site	Anatomic site of brain atrophy found in imaging	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C60166	C60166	Imaging brain atrophy status	Status of brain atrophy found in imaging	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C60145	C60145	Imaging brain computed tomography perform greater than six count	Count specifying the number of brain computed tomography (CT) imaging sessions performed on the participant when greater than six	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C60144	C60144	Imaging brain computed tomography perform multiple count type	Type of count for the number of brain computed tomography (CT) imaging sessions performed on the participant	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C60143	C60143	Imaging brain computed tomography perform multiple status	Status related to whether multiple brain computed tomography (CT) imaging sessions have been performed on the participant	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3132-C60191	C60191	Imaging brain concurrent magnetic resonance imaging perform indicator	Indicator of whether concurrent brain magnetic resonance imaging (MRI) was performed on the participant	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C60059	C60059	Imaging brain magnetic resonance imaging perform greater than six count	Count specifying the number of brain magnetic resonance imaging (MRI) sessions performed on the participant when greater than six	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C12468	C12468	Imaging brain magnetic resonance imaging perform multiple count type	Type of count for the number of brain magnetic resonance imaging (MRI) sessions performed on the participant	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C12467	C12467	Imaging brain magnetic resonance imaging perform multiple status	Status related to whether multiple brain magnetic resonance imaging (MRI) sessions have been performed on the participant	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3089-C19693	C19693	Imaging brainstem finding type	Type of finding related to imaging of the brainstem	Core	Imaging - Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C12492	C12492	Imaging brainstem normality status	Status related to whether the brainstem appears normal or abnormal in the imaging study	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C12492	C12492	Imaging brainstem normality status	Status related to whether the brainstem appears normal or abnormal in the imaging study	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3132-C60212	C60212	Imaging bright spot lesion indicator	Indicator of whether bright spot lesions are present in the imaging study	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3132-C60213	C60213	Imaging bright spot lesion spine level text	Free-text field specifying the spine level(s) with bright spot lesions found in the imaging study	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3132-C60222	C60222	Imaging cauda equina root enhancement anatomic site	Anatomic site where cauda equina root enhancement is found in the imaging study	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3132-C60221	C60221	Imaging cauda equina root enhancement status	Status related to whether cauda equina root enhancement is found in the imaging study	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C60077	C60077	Imaging cavitation anatomic site	Anatomic site of the cavitation found in the imaging study	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C60077	C60077	Imaging cavitation anatomic site	Anatomic site of the cavitation found in the imaging study	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C60156	C60156	Imaging cavitation anatomic site other text	The free-text field related to 'Imaging cavitation anatomic site', specifying other text. Anatomic site of the cavitation found in the imaging study	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.