CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 701 - 725 of 1834

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3095-C19572	C19572	Height pediatric measurement	Measurement of pediatric participant's height	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19633	C19633	Height pediatric unit of measure	Unit of measure for the height numerical value for participant	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C15901	C15901	Height percentile value	Value of the participant's height percentile for age calculated using a standardized growth chart	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19618	C19618	Height standard infant use type	Indicator of whether WHO or CDC growth charts were used in height Z-score calculation	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C01582	C01582	Height unit of measure	Unit of measure for the height numerical value for participant	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19617	C19617	Height Z score	The number of standard deviations the measured height of the participant is above the mean	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C60235	C60235	Hepatic panel type	Type of hepatic panel test performed	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C60236	C60236	Hepatic panel type other text	The free-text field related to 'Hepatic panel type', specifying other text. Type of hepatic panel test performed	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C10877	C10877	Holter exam heart block episode type	Type of episode(s) of heart block assessed during the Holter examination	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C10874	C10874	Holter exam maximum heart rate	Maximum heart rate measured during the Holter examination	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C10876	C10876	Holter exam mean heart rate	Mean heart rate measured during the Holter examination	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C10875	C10875	Holter exam minimum heart rate	Minimum heart rate measured during the Holter examination	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C10873	C10873	Holter exam start date and time	Date (and time, if applicable and known) the Holter examination began	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C16164	C16164	Hormonal therapy start date/time	The date and time (if applicable and known) the participant started hormonal therapy	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C16165	C16165	Hormonal therapy stop date/time	The date and time (if applicable and known) the participant stopped hormonal therapy	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C16163	C16163	Hormone therapy name	The name of the hormone therapy taken by the participant	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C59708	C59708	Hormone therapy replace indicator	Indicator of whether the participant has taken hormonal replacement therapy	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C20018	C20018	Hormone-related syndrome diagnosis age value	The age value of participant related to known hormone-related/endocrine syndromes or disorders	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C16180	C16180	Hormone-related syndrome indicator	Indicator of whether the participant has known hormone-related/endocrine syndromes or disorders	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C20017	C20017	Hormone-related syndrome other text	The free-text field related to "Hormone-related syndrome type", specifying other text. The type related to known hormone-related/endocrine syndromes or disorders	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C20016	C20016	Hormone-related syndrome type	The type related to known hormone-related/endocrine syndromes or disorders	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20298	C20298	Hospital admission hyperglycemia past year count	The count of the times the participant was admitted to hospital for hyperglycemia in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20303	C20303	Hospital admission hyperglycemia past year total day count	The total duration, in days, of all of the participant's admissions to hospital for hyperglycemia in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20297	C20297	Hospital admission hypoglycemia past year count	The count of the times the participant was admitted to hospital for hypoglycemia in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20302	C20302	Hospital admission hypoglycemia past year total day count	The total duration, in days, of all of the participant's admissions to hospital for hypoglycemia in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.