CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 551 - 575 of 1834
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C60032 Gas exhale volume submaximal absolute trial end measurement

Measurement of the volume of gas exhaled (VE) at the conclusion of the Submaximal Absolute Trial

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C59913 Gas exhale volume submaximal absolute trial measurement

Measurement in liters per minute (L/min) of the volume of gas exhaled (VE) during the Submaximal Absolute Trial

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C60018 Gas exhale volume trial other timepoint measurement

Measurement of the volume of gas exhaled (VE) at the specified timepoint during the exercise trial

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C60045 Gas exhale volume trial recovery start measurement

Measurement of the volume of gas exhaled (VE) at the beginning of the trial recovery period

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C60004 Gas exhale volume trial start measurement

Measurement of the volume of gas exhaled (VE) at the beginning of the exercise trial

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C59914 Gas exhale volume ventilatory anaerobic threshold measurement

Measurement, in liters per minute (L/min), of the volume of gas exhaled (VE) when the ventilatory anaerobic threshold (VAT) was attained

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C58677 Gender identity type

Gender identity self-identified by the participant. Gender type may or may not match sex assigned at birth

 Core General Core False Mitochondrial Disease Mitochondrial Disease
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text. Gender identity self-identified by the participant. Gender type may or may not match sex assigned at birth

 Supplemental General Core False Mitochondrial Disease Mitochondrial Disease
C00035 Gender type

Self-reported gender of the participant/subject

 Supplemental Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A) True Mitochondrial Disease Mitochondrial Disease
C00035 Gender type

Self-reported gender of the participant/subject

 Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) True Mitochondrial Disease Mitochondrial Disease
C12782 Gene additional variants unknown significance indicator

Indicator of whether there are additional variants in other genes of unknown significance

 Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C17891 Gene additional variants unknown significance text

The free-text field about additional variants in other genes of unknown significance

 Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C12804 Gene cDNA variant mutation name

Name using the Human Genome Organisation (HUGO) variant or mutation nomenclature of the complementary deoxyribonucleic acid (cDNA) variant or mutation

 Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C12795 Gene coding region sequenced indicator

Indicator of whether the entire coding region was sequenced for the allele of the gene for missense/nonsense variant or point mutations or pseudoexons

 Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C12789 Gene deletions duplications limits clearly defined indicator

Indicator of whether the limits of deletions and duplications are defined

 Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C12788 Gene exon copy number tested indicator

Indicator of whether the copy number was directly tested for all exons

 Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C12790 Gene exon first deleted duplicated name

Name of the first exon deleted or duplicated

 Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C12791 Gene exon last deleted duplicated name

Name of the exon last deleted or duplicated

 Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C12793 Gene exon predicted reading frame type

Type of predicted reading frame

 Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C12800 Gene missense nonsense variant point mutation insertion deletion type

Type of the insertion deletion of the missense/nonsense variant or point mutation

 Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C17889 Gene missense nonsense variant point mutation location exon text

The free-text field about missense/nonsense variant or point mutation at the exon

 Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C17894 Gene missense nonsense variant point mutation location intron text

The free-text field about missense/nonsense variant or point mutation at the intron

 Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C17893 Gene missense nonsense variant point mutation location other text

The free-text field about missense/nonsense variant or point mutation at locations other than the exon and intron

 Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C12798 Gene missense nonsense variant point mutation location type

Type of location of the missense/nonsense variant or point mutation

 Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C12805 Gene mRNA variant mutation name

Name using the Human Genome Organisation (HUGO) variant or mutation nomenclature of the messenger ribonucleic acid (mRNA) variant or mutation

 Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
Displaying 551 - 575 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.