CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Show All
Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 526 - 550 of 1834
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20252 Family history heart problem parent type

The type of the participant's parent with a history of heart attacks, heart failure or other heart problems

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20254 Family history high cholesterol parent type

The type of the participant's parent with a history of high cholesterol

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20255 Family history hypertension parent type

The type of the participant's parent with a history of hypertension

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C59749 Family history insulin current use indicator

Indicator of whether the close family member (mother, father, sibling, or grandparent only) of the participant with diabetes is currently on insulin

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20251 Family history kidney disease severe parent type

The type of the participant's parent with a history of kidney disease that required dialysis or kidney transplant

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C00721 Family history medical condition indicator

Indicator of whether a family member or first and second degree blood relatives of the participant has had a history of the particular medical condition or health related event

 Supplemental Family History False Mitochondrial Disease Mitochondrial Disease
C00722 Family history medical condition relative type

Relationship of the family member or ancestor with the medical condition or health related event to the participant

 Supplemental Family History False Mitochondrial Disease Mitochondrial Disease
C18679 Family history medical condition relative type other text

The free-text field related to 'Family history medical condition relative type', specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant

 Supplemental Family History False Mitochondrial Disease Mitochondrial Disease
C00720 Family history medical condition type

Type of medical condition or health related event for which the family history is taken

 Supplemental Family History False Mitochondrial Disease Mitochondrial Disease
C18678 Family history medical condition type other text

The free-text field related to 'Family history medical condition type', specifying other text. Type of medical condition or health related event for which the family history is taken

 Supplemental Family History False Mitochondrial Disease Mitochondrial Disease
C12663 Family history member with medical condition count

Count of family members with history of medical condition

 Supplemental Family History False Mitochondrial Disease Mitochondrial Disease
C16159 Family history relative age at onset value

Age the participant's relative experienced the onset of the disease or disorder

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C60261 Family history relative global unique identifier number

Number representing the Global Unique ID (GUID) of the participant's family member

 Supplemental Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C60260 Family history relative tissue specimen name

Name of tissue specimen collected from the participant's family member

 Supplemental Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C08002 Family history relative type biological sample identifier number

Identification (ID) number assigned to family member's biological sample in repository

 Supplemental Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C08001 Family history relative type biological sample in repository indicator

Indicator of whether the participant's family member has donated biological sample(s) to a repository

 Supplemental Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C20253 Family history stroke parent type

The type of the participant's parent with a history of stroke

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C10173 Forced expiratory volume second result value

Value of the amount of air, in liters, that can be blown in the first second in the Forced Expiratory Volume maneuver (FEV1)

 Supplemental-Highly Recommended Pulmonary Function False Mitochondrial Disease Mitochondrial Disease
C60354 Forced vital capacity percent predict normal value

Value as a percentage of the predicted normal value of Forced Vital Capacity (FVC) to grade the severity of the abnormality, where FVC is maximum volume of air that can be exhaled as rapidly, forcefully, and completely as possible from the point of maximal inhalation

 Supplemental Pulmonary Function False Mitochondrial Disease Mitochondrial Disease
C10172 Forced vital capacity result value

Value of the Forced Vital Capacity (FVC), in liters, as the maximum volume of air that can be exhaled as rapidly, forcefully, and completely as possible from the point of maximal inhalation

 Supplemental-Highly Recommended Pulmonary Function False Mitochondrial Disease Mitochondrial Disease
C20245 Full term birth indicator

Indicator of whether the participant was born at full term

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C59918 Gas exhale volume oxygen uptake peak measure predict ratio value

Value, as a percentage, of the ratio at peak oxygen uptake (VO2) of the measured volume of gas exhaled (VE) to the predicted VE

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C59915 Gas exhale volume oxygen uptake peak measurement

Measurement, in liters per minute (L/min), of the volume of gas exhaled (VE) at attainment of peak oxygen uptake (VO2)

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C59916 Gas exhale volume oxygen uptake peak predict value

Value predicted, in liters per minute (L/min), of the volume of gas exhaled (VE) at attainment of peak oxygen uptake (VO2)

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C59917 Gas exhale volume submaximal absolute trial complete oxygen uptake peak ratio value

Value, as a percentage, of the ratio of the volume of gas exhaled (VE) during the Submaximal Absolute Trial to the VE at the time oxygen uptake (VO2) peaked

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
Displaying 526 - 550 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.