CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 501 - 525 of 1834
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59834 Electrocochleography perform status

Status of whether electrocochleography was performed

 Exploratory Hearing Loss in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C59835 Electrocochleography result status

Status of the result of the electrocochleography test performed

 Exploratory Hearing Loss in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C59833 Electrocochleography type

Type of electrocochleography test

 Exploratory Hearing Loss in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C20280 Emergency room use hyperglycemia past year count

The count of the times the participant used the emergency room for hyperglycemia in the past 12 months

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20279 Emergency room use hypoglycemia past year count

The count of the times the participant used the emergency room for hypoglycemia in the past 12 months

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20282 Emergency room use not diabetes related past year count

The count of the times the participant used the emergency room for reasons unrelated to diabetes in the past 12 months

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20281 Emergency room use other diabetes related past year count

The count of the times the participant used the emergency room for diabetes-related reasons other than hypoglycemia or hyperglycemia in the past 12 months

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20278 Emergency room use past year count

The count of the times the participant used the emergency room in the past 12 months

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20277 Emergency room use past year indicator

The indicator of whether the participant has used the emergency room in the past 12 months

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C60233 Endocrine test type

Type of endocrine test performed

 Supplemental Biomarkers in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C60234 Endocrine test type other text

The free-text field related to 'Endocrine test type', specifying other text. Type of endocrine test performed

 Supplemental Biomarkers in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C00020 Ethnicity USA category

Category of ethnicity the participant most closely identifies with

 Core General Core False Mitochondrial Disease Mitochondrial Disease
C20533 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Anxiety depression category

Category determining the extent to which the participant has problems with anxiety or depression category, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

 Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) True Mitochondrial Disease Mitochondrial Disease
C20535 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Health today scale

Scale of how good or bad the participant's health is today, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

 Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) True Mitochondrial Disease Mitochondrial Disease
C20526 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Mobility category

Category determining the extent to which the participant has problems with mobility, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

 Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) True Mitochondrial Disease Mitochondrial Disease
C20531 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Pain discomfort category

Category determining the extent to which the participant has problems with pain or discomfort category, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

 Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) True Mitochondrial Disease Mitochondrial Disease
C20527 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Self-care category

Category determining the extent to which the participant has problems with self-care, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

 Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) True Mitochondrial Disease Mitochondrial Disease
C20529 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Usual activities category

Category determining the extent to which the participants has problems with usual activities (e.g. work, study, housework, family or leisure activities), as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

 Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) True Mitochondrial Disease Mitochondrial Disease
C50680 Examiner name

The name of the person performing the exam

 Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) True Mitochondrial Disease Mitochondrial Disease
C60052 Exercise test date

Date on which the exercise test was performed

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C19903 Familial inheritance status

Status of familial inheritance of participant

 Core Family History False Mitochondrial Disease Mitochondrial Disease
C17681 Family history collection source

The source of collected family history data

 Core Family History False Mitochondrial Disease Mitochondrial Disease
C20250 Family history diabetes medical condition indicator

Indicator of whether a close family member (mother, father, sibling, or grandparent only) of the participant has had a history of diabetes

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20249 Family history diabetes relative type

Relationship to the participant of the family member with diabetes

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C19670 Family history diagnosis age unknown status

Status related to whether the participant knows the age of the relative when diagnosed

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
Displaying 501 - 525 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.