CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 276 - 300 of 903
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12873 Echocardiogram tricuspid stenosis degree status

Assessment with echocardiography of whether there is stenosis of the tricuspid valve of the heart

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core Mitochondrial Disease Mitochondrial Disease
C20280 Emergency room use hyperglycemia past year count

The count of the times the participant/subject used the emergency room for hyperglycemia in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20279 Emergency room use hypoglycemia past year count

The count of the times the participant/subject used the emergency room for hypoglycemia in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20282 Emergency room use not diabetes related past year count

The count of the times the participant/subject used the emergency room for reasons unrelated to diabetes in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20281 Emergency room use other diabetes related past year count

The count of the times the participant/subject used the emergency room for diabetes-related reasons other than hypoglycemia or hyperglycemia in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20278 Emergency room use past year count

The count of the times the participant/subject used the emergency room in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20277 Emergency room use past year indicator

The indicator of whether the participant/subject has used the emergency room in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core General Core Mitochondrial Disease Mitochondrial Disease
C20533 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Anxiety depression category

Category determining the extent to which the participant has problems with anxiety or depression category, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) Mitochondrial Disease Mitochondrial Disease
C20535 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Health today scale

Scale of how good or bad the participant's health is today, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) Mitochondrial Disease Mitochondrial Disease
C20526 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Mobility category

Category determining the extent to which the participant has problems with mobility, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) Mitochondrial Disease Mitochondrial Disease
C20531 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Pain discomfort category

Category determining the extent to which the participant has problems with pain or discomfort category, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) Mitochondrial Disease Mitochondrial Disease
C20527 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Self-care category

Category determining the extent to which the participant has problems with self-care, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) Mitochondrial Disease Mitochondrial Disease
C20529 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Usual activities category

Category determining the extent to which the participants has problems with usual activities (e.g. work, study, housework, family or leisure activities), as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) Mitochondrial Disease Mitochondrial Disease
C20249 Family history diabetes relative type

Relationship to the participant/subject of the family member with diabetes

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C19670 Family history diagnosis age indicator

Indicator for whether the participant/subject knows the age of the relative when diagnosed

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20252 Family history heart problem parent type

The type of the participant's/subject's parent with a history of heart attacks, heart failure or other heart problems

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20254 Family history high cholesterol parent type

The type of the participant's/subject's parent with a history of high cholesterol

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20255 Family history hypertension parent type

The type of the participant's/subject's parent with a history of hypertension

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20251 Family history kidney disease severe parent type

The type of the participant's/subject's parent with a history of kidney disease that required dialysis or kidney transplant

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C16159 Family history relative age at onset value

Age the participant's/subject's relative experienced the onset of the disease or disorder

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20253 Family history stroke parent type

The type of the participant's/subject's parent with a history of stroke

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C10173 Forced expiratory volume second result value

Value representing the Amount of air, in Liters, that can be blown in the first second in the FVC maneuver (FEV1)

Supplemental Pulmonary Function Mitochondrial Disease Mitochondrial Disease
C10172 Forced vital capacity result value

Value representing the Forced Vital Capacity (FVC), in Liters, as the maximum volume of air that can be exhaled as rapidly, forcefully, and completely as possible from the point of maximal inhalation

Supplemental Pulmonary Function Mitochondrial Disease Mitochondrial Disease
Displaying 276 - 300 of 903

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.