CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

Displaying 101 - 125 of 1834

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1191-C07099	C07099	Center for Epidemiologic Studies-Depression Scale (CES-D) - life failure indicator	Indicates how often the subject felt that life had been a failure in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental-Highly Recommended	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
F1191-C07100	C07100	Center for Epidemiologic Studies-Depression Scale (CES-D) - fearful indicator	Indicates how often the subject felt fearful in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental-Highly Recommended	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
F1191-C07101	C07101	Center for Epidemiologic Studies-Depression Scale (CES-D) - Restless sleep indicator	Indicates how often the subject had restless sleep in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental-Highly Recommended	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
F1191-C07102	C07102	Center for Epidemiologic Studies-Depression Scale (CES-D) - happy indicator	Indicates how often the subject felt happy in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental-Highly Recommended	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
F1191-C07103	C07103	Center for Epidemiologic Studies-Depression Scale (CES-D) - talk less indicator	Indicates how often the subject talked less than usual in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental-Highly Recommended	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
F1191-C07104	C07104	Center for Epidemiologic Studies-Depression Scale (CES-D) - loneliness indicator	Indicates how often the subject felt lonely in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental-Highly Recommended	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
F1191-C07105	C07105	Center for Epidemiologic Studies-Depression Scale (CES-D) - unfriendly indicator	Indicates how often the subject felt that people were unfriendly, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental-Highly Recommended	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
F1191-C07106	C07106	Center for Epidemiologic Studies-Depression Scale (CES-D) - enjoy life indicator	Indicates how often the subject felt like he/she enjoyed life in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental-Highly Recommended	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
F1191-C07107	C07107	Center for Epidemiologic Studies-Depression Scale (CES-D) - crying spell indicator	Indicates how often the subject had crying spells in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental-Highly Recommended	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
F1191-C07108	C07108	Center for Epidemiologic Studies-Depression Scale (CES-D) - sadness indicator	Indicates how often the subject felt sad in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental-Highly Recommended	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
F1191-C07109	C07109	Center for Epidemiologic Studies-Depression Scale (CES-D) - people dislike indicator	Indicates how often the subject felt that people dislike the subject in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental-Highly Recommended	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
F1191-C07110	C07110	Center for Epidemiologic Studies-Depression Scale (CES-D) - get going indicator	Indicates how often the subject felt like he/she couldn't get "going" in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental-Highly Recommended	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
F1191-C07111	C07111	Center for Epidemiologic Studies Depression Scale (CES-D) - total score	CES-D Total Score - summation of the scores for the 20 items (0-60)	Supplemental-Highly Recommended	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C08001	C08001	Family history relative type biological sample in repository indicator	Indicator of whether the participant's family member has donated biological sample(s) to a repository	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C08002	C08002	Family history relative type biological sample identifier number	Identification (ID) number assigned to family member's biological sample in repository	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C08023	C08023	Imaging abnormal finding text	Text description of the abnormal findings on the imaging study	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C08023	C08023	Imaging abnormal finding text	Text description of the abnormal findings on the imaging study	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F2235-C08088	C08088	Age value unit of measure	Unit of measure used to initially record the age value	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Mitochondrial Disease	Mitochondrial Disease
F3130-C08236	C08236	Imaging scanner software name	Name of the scanner software that runs the imaging camera	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C08238	C08238	Imaging repetition gap duration	Duration between successive pulse sequences, in milliseconds, applied to the same slice during imaging acquisition	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3131-C08238	C08238	Imaging repetition gap duration	Duration between successive pulse sequences, in milliseconds, applied to the same slice during imaging acquisition	Supplemental-Highly Recommended	Magnetic Resonance Spectroscopy (MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C08238	C08238	Imaging repetition gap duration	Duration between successive pulse sequences, in milliseconds, applied to the same slice during imaging acquisition	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3132-C08238	C08238	Imaging repetition gap duration	Duration between successive pulse sequences, in milliseconds, applied to the same slice during imaging acquisition	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C08239	C08239	Imaging echo duration	Duration between the application of the 90 degree pulse and the peak of the echo signal, in milliseconds, during the spin echo and inversion recovery pulse sequences in imaging acquisition	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3131-C08239	C08239	Imaging echo duration	Duration between the application of the 90 degree pulse and the peak of the echo signal, in milliseconds, during the spin echo and inversion recovery pulse sequences in imaging acquisition	Supplemental-Highly Recommended	Magnetic Resonance Spectroscopy (MRS)	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.