CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 301 - 325 of 1834

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3136-C12492	C12492	Imaging brainstem normality status	Status related to whether the brainstem appears normal or abnormal in the imaging study	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C12492	C12492	Imaging brainstem normality status	Status related to whether the brainstem appears normal or abnormal in the imaging study	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C12496	C12496	Imaging cerebellum normality status	Status related to whether the cerebellum appears normal or abnormal in the imaging study	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C12496	C12496	Imaging cerebellum normality status	Status related to whether the cerebellum appears normal or abnormal in the imaging study	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C12498	C12498	Imaging T2 white matter status	Status related to whether the white matter appears normal or abnormal on T2 weighted images	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C12499	C12499	Imaging T2 weighted white matter abnormality site type	The type of anatomical site of the white matter abnormality on T2 weighted images	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C12500	C12500	Imaging corpus callosum change status	Status related to changes in the corpus callosum observed in the imaging study	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C12502	C12502	Imaging anterior commissure change status	Status related to changes in the anterior limb internal capsule observed in the imaging study	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C12503	C12503	Imaging T2 fluid attenuated inversion recovery gray matter hyperintensity indicator	Indicator of whether there is grey matter hyperintensity on T2/FLAIR (fluid attenuated inversion recovery) images	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C12504	C12504	Imaging T2 fluid attenuated inversion recovery gray matter hyperintensity anatomic site	Anatomic site of the grey matter hyperintensity on T2/FLAIR (fluid attenuated inversion recovery) images	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C12505	C12505	Imaging eye abnormality indicator	Indicator of whether eye abnormalities are present	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C12505	C12505	Imaging eye abnormality indicator	Indicator of whether eye abnormalities are present	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C12506	C12506	Imaging eye abnormality type	The type of eye abnormalities	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C12506	C12506	Imaging eye abnormality type	The type of eye abnormalities	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3131-C12511	C12511	Imaging post-processing raw data save indicator	Indicator of whether raw data was saved in post processing	Supplemental-Highly Recommended	Magnetic Resonance Spectroscopy (MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3121-C12663	C12663	Family history member with medical condition count	Count of family members with history of medical condition	Supplemental	Family History	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C12690	C12690	Gene name	Name of the gene analyzed	Core	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C12782	C12782	Gene additional variants unknown significance indicator	Indicator of whether there are additional variants in other genes of unknown significance	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C12783	C12783	Variant mutational analysis results available indicator	Indicator of whether the variant or mutational analysis results are available on this participant	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C12784	C12784	Variant mutational analysis performed family member indicator	Indicator of whether the mutational analysis was performed on a family member	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C12785	C12785	Gene variant mutation detected result type	Type of gene variant or mutation detected	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C12786	C12786	Allele identifier name	Name that identifies which allele the associated data describe	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C12787	C12787	Gene variant mutation category	Category of the variant or mutation detected on the gene	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C12788	C12788	Gene exon copy number tested indicator	Indicator of whether the copy number was directly tested for all exons	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C12789	C12789	Gene deletions duplications limits clearly defined indicator	Indicator of whether the limits of deletions and duplications are defined	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease

Displaying 301 - 325 of 1834

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.