CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1225-C18990	C18990	Huntingtons Disease motor symptom first appeared informant other text	The free-text field related to 'Huntingtons Disease motor symptom first appeared informant type' specifying other text. The type of initial motor symptoms of Huntington disease (HD) described by the informant	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1225-C18991	C18991	Huntingtons Disease developing motor symptom other text	The free-text field related to 'Huntingtons Disease developing motor symptom type' specifying other text. Type(s) of motor symptoms of Huntington disease (HD) which developed over the course of Illness	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1225-C19059	C19059	Informant participant relationship other text	The free-text field related to 'Informant participant relationship type' specifying other text. The relationship of the informant to participant/subject	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1225-C19060	C19060	Physician specialty other text	The free-text field related to 'Physician specialty type' specifying other text. The specialty of the physician who made the diagnosis	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1228-C14936	C14936	Cytosine adenine guanine repeats larger allele number	The number of cytosine adenine guanine (CAG) repeats on the larger allele	Supplemental-Highly Recommended	DNA Elements - Information from the Laboratory	False	Huntington's Disease	Huntington's Disease
F1228-C14937	C14937	Cytosine adenine guanine repeats smaller allele number	The number of cytosine adenine guanine (CAG) repeats on the smaller allele	Supplemental-Highly Recommended	DNA Elements - Information from the Laboratory	False	Huntington's Disease	Huntington's Disease
F1228-C17744	C17744	Molecular study laboratory name	Name of laboratory that performed the molecular study	Supplemental	DNA Elements - Information from the Laboratory	False	Huntington's Disease	Huntington's Disease
F1229-C14936	C14936	Cytosine adenine guanine repeats larger allele number	The number of cytosine adenine guanine (CAG) repeats on the larger allele	Supplemental-Highly Recommended	DNA Elements - Information from the Study Investigator	False	Huntington's Disease	Huntington's Disease
F1229-C14937	C14937	Cytosine adenine guanine repeats smaller allele number	The number of cytosine adenine guanine (CAG) repeats on the smaller allele	Supplemental-Highly Recommended	DNA Elements - Information from the Study Investigator	False	Huntington's Disease	Huntington's Disease
F1229-C14938	C14938	Cytosine adenine guanine repeat test indicator	Indicate whether a genetic test has been performed to determine the number of cytosine adenine guanine (CAG) repeats	Supplemental-Highly Recommended	DNA Elements - Information from the Study Investigator	False	Huntington's Disease	Huntington's Disease
F1229-C17745	C17745	Cytosine adenine guanine repeats information source type	The source of information used to determine whether the participant/subject had a molecular study done to determine the number of cytosine adenine guanine (CAG) repeats	Supplemental-Highly Recommended	DNA Elements - Information from the Study Investigator	False	Huntington's Disease	Huntington's Disease
F1229-C17746	C17746	Molecular study lab name	The name of the laboratory that completed the molecular study to determine number of cytosine adenine guanine (CAG) repeats	Supplemental-Highly Recommended	DNA Elements - Information from the Study Investigator	False	Huntington's Disease	Huntington's Disease
F1229-C19061	C19061	Cytosine Adenine Guanine repeats information source other text	The free-text field related to 'Cytosine adenine guanine repeats information source type' specifying other text. The source of information used to determine whether the participant/subject had a molecular study done to determine the number of cytosine adenine guanine (CAG) repeats	Supplemental-Highly Recommended	DNA Elements - Information from the Study Investigator	False	Huntington's Disease	Huntington's Disease
F1230-C14936	C14936	Cytosine adenine guanine repeats larger allele number	The number of cytosine adenine guanine (CAG) repeats on the larger allele	Supplemental-Highly Recommended	DNA Elements - Participant/Subject Information	False	Huntington's Disease	Huntington's Disease
F1230-C14937	C14937	Cytosine adenine guanine repeats smaller allele number	The number of cytosine adenine guanine (CAG) repeats on the smaller allele	Supplemental-Highly Recommended	DNA Elements - Participant/Subject Information	False	Huntington's Disease	Huntington's Disease
F1230-C14938	C14938	Cytosine adenine guanine repeat test indicator	Indicate whether a genetic test has been performed to determine the number of cytosine adenine guanine (CAG) repeats	Supplemental-Highly Recommended	DNA Elements - Participant/Subject Information	False	Huntington's Disease	Huntington's Disease
F1230-C14939	C14939	Huntingtons disease risk grade	Participant's/subject's risk for HD based on number of CAG repeats	Supplemental-Highly Recommended	DNA Elements - Participant/Subject Information	False	Huntington's Disease	Huntington's Disease
F1230-C14940	C14940	Cytosine adenine guanine repeat known indicator	Whether the participant's/subject's Cytosine Adenine Guanine (CAG) repeat lengths are known	Supplemental-Highly Recommended	DNA Elements - Participant/Subject Information	False	Huntington's Disease	Huntington's Disease
F1230-C17747	C17747	Cytosine Adenine Guanine repeat results provider type	The type of provider who repeated the Cytosine Adenine Guanine (CAG) results	Supplemental-Highly Recommended	DNA Elements - Participant/Subject Information	False	Huntington's Disease	Huntington's Disease
F1230-C19062	C19062	Cytosine Adenine Guanine repeat results provider other text	The free-text field related to 'Cytosine Adenine Guanine repeat results provider type' specifying other text. The type of provider who repeated the Cytosine Adenine Guanine (CAG) results	Supplemental-Highly Recommended	DNA Elements - Participant/Subject Information	False	Huntington's Disease	Huntington's Disease
F1236-C02495	C02495	Imaging scanner strength value type	Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1236-C02496	C02496	Imaging scanner manufacturer name	Name of manufacturer of imaging scanner	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1236-C02497	C02497	Imaging scanner model name	Name of model of imaging scanner	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1236-C02499	C02499	Imaging pulse sequence type	Type of imaging pulse sequence used	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1236-C08236	C08236	Imaging scanner software name	Name of the scanner software that runs the imaging camera	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.