CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 176 - 200 of 427
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C15066 Brain atrophy pons neuronal loss severity result

Quantitative result of the severity of neuronal loss in the pons

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C18997 Clinicopathology diagnosis final other text

the free-text related to 'Clinicopathology diagnosis final type' specifying other text. The participant/subject's final clinicopathological diagnosis

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C17738 Informant participant relationship type

The relationship of the informant to participant/subject

 Supplemental Medical History of Huntington's Disease False Huntington's Disease Huntington's Disease
C17752 Photographs macroscopic text

Description of available macroscopic photographs

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C17733 Person completing form name

Name of person completing the form

 Supplemental Stroop Test True Huntington's Disease Huntington's Disease
C14963 Imaging field maps acquisition indicator

Indicator of whether field maps were acquired during the acquisition

 Supplemental Magnetic Resonance (MR) Localization Imaging False Huntington's Disease Huntington's Disease
C15074 Brain atrophy cerebellum cortical neuronal loss in associative layer severity result

Quantitative result of the severity of cortical neuronal loss in the associative layer of the cerebellum

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C20360 Pittsburgh Sleep Quality Index (PSQI) - Pain past month scale

The scale to which the subject had pain during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Supplemental Pittsburgh Sleep Quality Index (PSQI) False Huntington's Disease Huntington's Disease
C18991 Huntingtons Disease developing motor symptom other text

The free-text field related to 'Huntingtons Disease developing motor symptom type' specifying other text. Type(s) of motor symptoms of Huntington disease (HD) which developed over the course of Illness

 Supplemental Medical History of Huntington's Disease False Huntington's Disease Huntington's Disease
C17760 Striatum atrophy thalamus atrophy severity result

Quantitative result of the severity of atrophy located in the thalamus

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C53902 Stroop Color and Word Test (SCW) - Color residual score

Score (residual) of the color test, as part of the Stroop Color and Word Test (SCW)

 Supplemental Stroop Test True Huntington's Disease Huntington's Disease
C18691 Imaging artifact other text

The free-text field related to 'Imaging artifact type' specifying other text. The artifacts present on the scan

 Supplemental Magnetic Resonance (MR) Localization Imaging False Huntington's Disease Huntington's Disease
C15082 Brain atrophy cerebellum dentate nucleus neuronal loss indicator

Indicator of neuronal loss in the dentate nucleus of the cerebellum

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C20368 Pittsburgh Sleep Quality Index (PSQI) - Partner report disorientation past month scale

The scale to which the subject's partner reported disorientation or confusion during sleep past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Supplemental Pittsburgh Sleep Quality Index (PSQI) False Huntington's Disease Huntington's Disease
C18153 Data unknown text

The free-text field to Mark an "X" in to record if data are unknown or not available

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C15090 Cortical infarcts single or multiple vascular territories name

Name of the vascular territories where cortical microinfarcts occur

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C20376 Pittsburgh Sleep Quality Index (PSQI) - Awaken past month time

The wake up time (recorded as 24-hour clock or military time) for the majority of the mornings in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Supplemental Pittsburgh Sleep Quality Index (PSQI) False Huntington's Disease Huntington's Disease
C15098 Cortical laminar necrosis single or multiple event category

Category of the cortical laminar necrosis

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C14992 Brain atrophy striatum status cribrosus or lacunaris severity result

Quantitative result of the severity of atrophy located in the status cribrosus or lacunaris, or both

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C08111 Preschool hour per week value

Approximate hours per week the participant/subject attended preschool as a child

 Supplemental History of Early Exposure to Huntington's Disease False Huntington's Disease Huntington's Disease
C08158 Brain weight measurement

Weight of the participant's/subject's brain in grams

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C11139 Country of origin maternal ISO code

The ISO 3166-1 alpha-2 code for the participant's mother's country of origin

 Supplemental Demographics False Huntington's Disease Huntington's Disease
C15028 Brain atrophy cerebral cortex neuronal loss severity result

Quantitative result of the severity of neuronal loss located in the cerebral cortex

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C08101 Pneumonia episode hospitalization indicator

Indicator of whether the participant/subject was hospitalized for the pneumonia episode

 Supplemental Infection History False Huntington's Disease Huntington's Disease
C08170 Neuritic plaque density category

Density of neuritic plaques (plaques with argyrophilic dystrophic neurites with or without dense amyloid cores)

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
Displaying 176 - 200 of 427

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.