CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 151 - 175 of 427
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19063 Imaging neurologic other data collected other text

The free-text field related to 'Imaging neurologic other data collected type' specifying other text. Other types of neuroimaging data that may have been collected during this scan visit

 Supplemental Magnetic Resonance (MR) Localization Imaging False Huntington's Disease Huntington's Disease
C15087 Ischemic or hemorrhagic vascular territories name

Name of the vascular territories where ischemic or hemorrhagic changes occur

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C18995 Brain atrophy thalamus neuronal loss nuclei other text

The free-text field related to 'Brain atrophy thalamus neuronal loss nuclei name' specifying other text. Name of the nuclei in the thalamus involved in the neuronal loss

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C15095 Hemorrhages single or multiple event category

Category of the hemorrhages

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C02499 Imaging pulse sequence type

Type of imaging pulse sequence used

 Supplemental Magnetic Resonance (MR) Localization Imaging False Huntington's Disease Huntington's Disease
C15055 Brain atrophy substantia nigra pars reticulata neuronal loss indicator

Indicator of neuronal loss in the pars reticulata of the substantia nigra

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C14956 Huntingtons Disease motor symptom first appeared informant type

The type of initial motor symptoms of Huntington disease (HD) described by the informant

 Supplemental Medical History of Huntington's Disease False Huntington's Disease Huntington's Disease
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text

 Supplemental General Core False Huntington's Disease Huntington's Disease
C20358 Pittsburgh Sleep Quality Index (PSQI) - Awaken bathroom use past month scale

The scale to which the subject had to get up to use the bathroom during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Supplemental Pittsburgh Sleep Quality Index (PSQI) False Huntington's Disease Huntington's Disease
C15103 Amyloid angiopathy indicator

Indicator of presence of cerebral amyloid angiopathy

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C08244 Imaging slice thickness value

Value of the thickness of the slice measured in millimeters (mm)

 Supplemental Magnetic Resonance (MR) Localization Imaging False Huntington's Disease Huntington's Disease
C15063 Brain atrophy nucleus coeruleus globosum neuronal tangles status

Status of globosum neuronal tangles (GNT) in the nucleus coeruleus

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C17736 Symptoms first appeared informant status

The status whether the first motor symptom(s) were noted by the person completing the form

 Supplemental Medical History of Huntington's Disease False Huntington's Disease Huntington's Disease
C53900 Stroop Color and Word Test (SCW) - Color raw score

Score (raw) of the color test, as part of the Stroop Color and Word Test (SCW)

 Supplemental Stroop Test True Huntington's Disease Huntington's Disease
C20366 Pittsburgh Sleep Quality Index (PSQI) - Trouble stay awake past month scale

The scale to which the subject had trouble staying awake while driving, eating meals, or engaging in social activity past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Supplemental Pittsburgh Sleep Quality Index (PSQI) False Huntington's Disease Huntington's Disease
C15111 Arteriosclerosis severity score

Severity score for arteriosclerosis (small parenchymal arteriolar disease)

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C14961 Imaging excitation number

Number of times each line of k-space data is acquired during the scan

 Supplemental Magnetic Resonance (MR) Localization Imaging False Huntington's Disease Huntington's Disease
C15071 Brain atrophy medulla oblongata inferior olivary nucleus indicator

Indicator of neuronal loss of the inferior olivary nucleus in the medulla oblongata

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C18989 Huntingtons Disease motor symptom first appeared self report other text

The free-text field related to 'Huntingtons Disease motor symptom first appeared self report type' specifying other text. The type of first motor symptoms described by the participant/subject

 Supplemental Medical History of Huntington's Disease False Huntington's Disease Huntington's Disease
C53952 Stroop Color and Word Test (SCW) - Interference T score

Score ( Interference T) of the color-word test, as part of the Stroop Color and Word Test (SCW)

 Supplemental Stroop Test True Huntington's Disease Huntington's Disease
C14969 Cytosine adenine guanine repeat expansion result

Size of expansion of HD-IT 15 cytosine adenine guanine (CAG) repeats

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C17683 Non-prescribed controlled psychoactive drug substance marijuana text

The text specifying the drugs within the Marijuana: hash, THC category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject

 Supplemental Non-prescribed Drug Use Questionnaire False Huntington's Disease Huntington's Disease
C22864 Diagnosis Huntingtons Disease parent suspect indicator

Indicate whether there is a possibility of an HD diagnosis for a parent

 Supplemental Family History False Huntington's Disease Huntington's Disease
C15045 Brain atrophy thalamus neuronal loss nuclei name

Name of the nuclei in the thalamus involved in the neuronal loss

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C14977 Brain atrophy coronal sections cerebral cortex status

Status of cerebral cortex atrophy of the coronal sections upon gross examination

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
Displaying 151 - 175 of 427

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.