CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 301 - 325 of 409

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1237-C15108	C15108	Diagnoses final clinicopathological severity scale	Scale of the severity or intensity of the diagnosis	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15109	C15109	Abnormality no diagnosis type	The diagnosis if there is no abnormality recognized	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15110	C15110	Atherosclerotic luminal stenosis percentage range	Range for the estimated luminal stenosis percentage if stenotic vascular changes (of the circle of Willis)	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15111	C15111	Arteriosclerosis severity score	Severity score for arteriosclerosis (small parenchymal arteriolar disease)	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C17398	C17398	Specimen other postmortem text	Text area to describe other banked postmortem specimens (e.g., blood, spinal cord, nerve, muscle) exist	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C17400	C17400	Other pathology ischemic vascular disease text	Text field to describe the presence of another ischemic or vascular disease not specifically mentioned previously	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C17752	C17752	Photographs macroscopic text	Description of available macroscopic photographs	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C17753	C17753	Macroscopic examination brain text	Note regarding macroscopic examination of fresh or fixed brain parts	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C17754	C17754	Microscopic examination brain text	Note regarding microscopic examination of blockage source	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C17755	C17755	Striatum atrophy claustrum atrophy status	Status of atrophy in the claustrum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C17756	C17756	Striatum atrophy claustrum atrophy severity result	Quantitative result of the severity of atrophy located in the claustrum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C17757	C17757	Striatum atrophy hypothalamus atrophy status	Status of atrophy in the hypothalamus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C17758	C17758	Striatum atrophy hypothalamus atrophy severity result	Quantitative result of the severity of atrophy located in the hypothalamus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C17759	C17759	Striatum atrophy thalamus atrophy status	Status of atrophy in the thalamus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C17760	C17760	Striatum atrophy thalamus atrophy severity result	Quantitative result of the severity of atrophy located in the thalamus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C17761	C17761	Striatum atrophy subthalamic nucleus atrophy status	Status of atrophy in the subthalamic nucleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C17762	C17762	Striatum atrophy subthalamic nucleus atrophy severity result	Quantitative result of the severity of atrophy located in the subthalamic nucleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C17763	C17763	Striatum atrophy red nucleus atrophy status	Status of atrophy in the red nucleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C17764	C17764	Striatum atrophy red nucleus atrophy severity result	Quantitative result of the severity of atrophy located in the red nucleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C17765	C17765	Striatum atrophy hydrocephalus lateral ventricle severity result	Quantitative result of the severity of hydrocephalus located in the lateral ventricle	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C17766	C17766	Striatum atrophy hydrocephalus third ventricle severity result	Quantitative result of the severity of hydrocephalus located in the third ventricle	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C17767	C17767	Striatum atrophy hydrocephalus fourth ventricle severity result	Quantitative result of the severity of hydrocephalus located in the fourth ventricle	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C18153	C18153	Data unknown text	The free-text field to Mark an "X" in to record if data are unknown or not available	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C18667	C18667	Data source other text	The free-text field related to 'Data source' specifying other text. Source of the data provided on the case report form	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C18669	C18669	Diagnosis final clinical death other text	The free-text field related to 'Diagnosis final clinical death type' specifying other text. Physician's final clinical diagnosis for the participant/subject	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease

Displaying 301 - 325 of 409

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.