CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 226 - 250 of 427
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C08084 Sibling gender type

Reported gender of the sibling. Gender is the socially constructed identity of sex

Supplemental History of Early Exposure to Huntington's Disease Huntington's Disease Huntington's Disease
C14988 Brain atrophy striatum putamen severity result

Quantitative result of the severity of atrophy located in the putamen

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C20354 Pittsburgh Sleep Quality Index (PSQI) - Cannot breathe comfortably past month scale

The scale to which the subject had trouble breathing comfortably during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Huntington's Disease Huntington's Disease
C08107 Day care hour per week value

Approximate hours per week the participant/subject attended day care as a child

Supplemental History of Early Exposure to Huntington's Disease Huntington's Disease Huntington's Disease
C08154 Brain tissue paraffin-embedded indicator

Indicator of whether paraffin-embedded blocks of brain tissue are accessible

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C53896 Stroop Color and Word Test (SCW) - Word raw score

Score (raw) of the word test, as part of the Stroop Color and Word Test (SCW)

Supplemental Stroop Test Huntington's Disease Huntington's Disease
C15024 Brain atrophy striatum brainstem severity result

Quantitative result of the severity of brainstem atrophy located in the striatum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C20362 Pittsburgh Sleep Quality Index (PSQI) - Partner report other sleep restlessness past month scale

The scale to which the subject's partner reported other restlessness during sleep past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Huntington's Disease Huntington's Disease
C08097 Influenza vaccine first receive age value

Age participant/subject received his/her first influenza vaccination

Supplemental Infection History Huntington's Disease Huntington's Disease
C08166 Brain atrophy Braak and Braak neurofibrillary stage

Stages I and II correspond to NFT limited to the transentorhinal/entorhinal region; Stages III and IV to limbic stages; and Stages V and VI to neocortical stages. Stage VI implies involvement of primary cortices

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08000 Family history relative type total membercount

Count of total family members and ancestors for the specified relative type

Supplemental Family History Huntington's Disease Huntington's Disease
C53904 Stroop Color and Word Test (SCW) - Color word raw score

Score (raw) of the color-word test, as part of the Stroop Color and Word Test (SCW)

Supplemental Stroop Test Huntington's Disease Huntington's Disease
C15032 Brain atrophy hippocampal formation neuronal loss severity result

Quantitative result of the severity of neuronal loss in the hippocampal formation

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17757 Striatum atrophy hypothalamus atrophy status

Status of atrophy in the hypothalamus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17748 Imaging neurologic other data collected indicator

The indicator whether other types of neuroimaging data were collected during this scan visit

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C15079 Brain atrophy cerebellum cortical neuronal loss in bergman gliosis status

Status of cortical neuronal loss in the Bergman gliosis (BG) of the cerebellum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17744 Molecular study laboratory name

Name of laboratory that performed the molecular study

Supplemental DNA Elements - Information from the Laboratory Huntington's Disease Huntington's Disease
C17765 Striatum atrophy hydrocephalus lateral ventricle severity result

Quantitative result of the severity of hydrocephalus located in the lateral ventricle

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C18718 Imaging scanner strength value type other text

The free-text field related to 'Imaging scanner strength value type', specifying other text. Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C15087 Ischemic or hemorrhagic vascular territories name

Name of the vascular territories where ischemic or hemorrhagic changes occur

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15095 Hemorrhages single or multiple event category

Category of the hemorrhages

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C02497 Imaging scanner model name

Name of model of imaging scanner

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C15055 Brain atrophy substantia nigra pars reticulata neuronal loss indicator

Indicator of neuronal loss in the pars reticulata of the substantia nigra

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14955 Motor symptom first appeared informant date

Date the first motor symptom(s) were noted by the person completing the form

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C15103 Amyloid angiopathy indicator

Indicator of presence of cerebral amyloid angiopathy

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
Displaying 226 - 250 of 427

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.