CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1212-C08097	C08097	Influenza vaccine first receive age value	Age participant/subject received his/her first influenza vaccination	Supplemental	Infection History	False	Huntington's Disease	Huntington's Disease
F1269-C20382	C20382	Pittsburgh Sleep Quality Index (PSQI) - Sleep disturbance scale	The scale to which sleep disturbance was calculated, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
F1209-C08000	C08000	Family history relative type total membercount	Count of total family members and ancestors for the specified relative type	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1237-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1236-C02496	C02496	Imaging scanner manufacturer name	Name of manufacturer of imaging scanner	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1212-C08117	C08117	Meningitis or encephalitis episode hospitalization indicator	Indicator of whether the participant/subject was hospitalized for the meningitis or encephalitis episode	Supplemental	Infection History	False	Huntington's Disease	Huntington's Disease
F1225-C14954	C14954	Motor symptom improvement since diagnosis indicator	the indicator whether motor symptoms have improved since the first diagnosis	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1209-C14948	C14948	Family history relative type no biological sample in repository count	The number of family members that do not have samples in a repository	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1237-C18995	C18995	Brain atrophy thalamus neuronal loss nuclei other text	The free-text field related to 'Brain atrophy thalamus neuronal loss nuclei name' specifying other text. Name of the nuclei in the thalamus involved in the neuronal loss	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1236-C08242	C08242	Imaging acquisition duration	Duration of the imaging scan in minutes	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1213-C17684	C17684	Non-prescribed controlled psychoactive drug substance stimulant cocaine text	The text specifying the drugs within the Stimulants: cocaine/crack category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject	Supplemental	Non-prescribed Drug Use Questionnaire	False	Huntington's Disease	Huntington's Disease
F1807-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	General Core	False	Huntington's Disease	Huntington's Disease
F1225-C17734	C17734	Person completing the form title text	Title/Credentials/Training of the person completing the form	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C15024	C15024	Brain atrophy striatum brainstem severity result	Quantitative result of the severity of brainstem atrophy located in the striatum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C08166	C08166	Brain atrophy Braak and Braak neurofibrillary stage	Stages I and II correspond to NFT limited to the transentorhinal/entorhinal region; Stages III and IV to limbic stages; and Stages V and VI to neocortical stages. Stage VI implies involvement of primary cortices	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15107	C15107	Huntingtons Disease diagnosis grade	The grade of severity of HD or amyloid angiopathy severity	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15067	C15067	Brain atrophy pontine nuclei globosum neuronal tangles status	Status of globosum neuronal tangles (GNT) in the pontine nuclei	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15032	C15032	Brain atrophy hippocampal formation neuronal loss severity result	Quantitative result of the severity of neuronal loss in the hippocampal formation	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C08176	C08176	Lacunes single or multiple indicator	Indicator of the presence of one or more cystic/old infarcts or hemorrhages 1-cm or less in diameter that are usually grossly identified and in the distribution of small parenchymal vessels, most often in basal ganglia, thalamus, pons, cerebellum and cerebral white matter	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C17753	C17753	Macroscopic examination brain text	Note regarding macroscopic examination of fresh or fixed brain parts	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15075	C15075	Brain atrophy cerebellum cortical neuronal loss in receptive layer indicator	Indicator of cortical neuronal loss in the receptive layer (granular) of the cerebellum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15040	C15040	Brain atrophy neuronal loss and fibrillary astrocytosis globus pallidus anatomic site	Anatomic site in the globus pallidus where neuronal loss and/or fibrillary astrocytosis is/are present	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C14972	C14972	Macroscopical examination fixed brain source	The part(s) of the fixed brain used for macroscopical examination	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C17761	C17761	Striatum atrophy subthalamic nucleus atrophy status	Status of atrophy in the subthalamic nucleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15083	C15083	Brain atrophy cerebellum dentate nucleus neuronal loss severity result	Quantitative result of the severity of neuronal loss in the dentate nucleus of the cerebellum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.