CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 201 - 225 of 409
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C08169 Antibody stain method name

Name of staining method used for antibodies

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14943 Family history relative deceased indicator

Indicator of whether family member is deceased

Supplemental Family History Huntington's Disease Huntington's Disease
C53951 Stroop Color and Word Test (SCW) - Color word T score

Score (T) of the color-word test, as part of the Stroop Color and Word Test (SCW)

Supplemental Stroop Test Huntington's Disease Huntington's Disease
C15035 Brain atrophy neuronal loss fibrillary astrocytosis caudate nucleus anatomic site

Anatomic site in the caudate nucleus (CN) where neuronal loss and/or fibrillary astrocytosis is/are present

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C20373 Pittsburgh Sleep Quality Index (PSQI) - Problem maintain enthusiasm past month category

The scale to which the subject had problems keeping up enough enthusiasm to get things done past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Huntington's Disease Huntington's Disease
C08232 Drug or substance illicit use ever indicator

Indicator of participant's/subject's use of illegal drugs, prescription or over-the-counter drugs at any point in his/her lifetime for purposes other than those for which they are meant to be used, or in large amounts

Supplemental Non-prescribed Drug Use Questionnaire Huntington's Disease Huntington's Disease
C08181 Other pathology ischemic vascular disease indicator

Indicator of the presence of another ischemic or vascular disease not specifically mentioned previously

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17681 Family history collection source

The source of collected family history data

Supplemental Family History Huntington's Disease Huntington's Disease
C15043 Brain atrophy thalamus neuronal loss indicator

Indicator of neuronal loss in the thalamus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C20381 Pittsburgh Sleep Quality Index (PSQI) - Fall asleep past month minute duration

The duration of time (in minutes) it takes the subject to fall asleep the majority of the nights in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Huntington's Disease Huntington's Disease
C17687 Non-prescribed controlled psychoactive drug substance sedative barbiturate text

The text specifying the drugs within the 'Sedatives-barbiturates and others: phenobarbital, Seconol, Nembutal, Dorieden, Quaalude, Amytal, Fiorinal, downers,' category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject

Supplemental Non-prescribed Drug Use Questionnaire Huntington's Disease Huntington's Disease
C14975 Brain lobe examination anatomic site

Anatomic site examined in the brain

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08079 Full biological brothers count

Count of full biological brothers the participant/subject has

Supplemental History of Early Exposure to Huntington's disease Huntington's Disease Huntington's Disease
C14951 Motor symptom first appeared self report date and time

Date of the first motor symptom(s) as noted by the participant/subject

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C14983 Brain atrophy coronal sections amygdala status

Status of amygdala atrophy of the coronal sections upon gross examination

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C18994 Microscopical examination blocks other text

The free-text field related to 'Microscopical examination blocks source' specifying other text. The source of blockage based on microscopical examination of brain

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08087 Sibling death age value

Age of sibling when he/she died

Supplemental History of Early Exposure to Huntington's disease Huntington's Disease Huntington's Disease
C08148 Neuropath specimen identifier number

Unique identification number given to the neuropathology specimen

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15098 Cortical laminar necrosis single or multiple event category

Category of the cortical laminar necrosis

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08238 Imaging repetition gap value

Duration between successive pulse sequences, in milliseconds, applied to the same slice during imaging acquisition

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C15058 Brain atrophy substantia nigra Lewy body containing neurons and Lewy neurites severity result

Quantitative result of the severity of lewy-body containing neurons (LBCN) and lewy neurites (LN) in the substantia nigra.

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14958 Diagnosis physician indicator

Has diagnosis been made by a physician?

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C15106 Clinicopathology diagnosis final type

The participant/subject's final clinicopathological diagnosis

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C10568 Imaging radio frequency coil channel count

Number of the coil channels in the radio frequency (RF) coil used for the imaging scan

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C15066 Brain atrophy pons neuronal loss severity result

Quantitative result of the severity of neuronal loss in the pons

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
Displaying 201 - 225 of 409

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.