CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 201 - 225 of 427

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1225-C14941	C14941	Diagnosis certainty percentage range type	Option for the range of the clinician's certainty of the medical diagnosis of the disease or disorder	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C18996	C18996	Silver staining methods other text	The free-text field related to 'Silver staining methods type' specifying other text. Silver staining methods used for identifying Alzheimer disease type changes	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1225-C17738	C17738	Informant participant relationship type	The relationship of the informant to participant/subject	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1211-C08086	C08086	Sibling current age value	Current age of the living sibling	Supplemental	History of Early Exposure to Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C14989	C14989	Brain atrophy striatum globus pallidus external segment severity result	Quantitative result of the severity of atrophy located in the globus pallidus, external segment	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F2370-C15910	C15910	Assessment date and time	The date of participant's injury	Supplemental	Stroop Test	True	Huntington's Disease	Huntington's Disease
F1236-C14963	C14963	Imaging field maps acquisition indicator	Indicator of whether field maps were acquired during the acquisition	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1237-C08155	C08155	CSF postmortem indicator	Indicator of whether banked postmortem cerebrospinal fluid (CSF) is accessible	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1269-C20359	C20359	Pittsburgh Sleep Quality Index (PSQI) - Feel cold past month scale	The scale to which the subject felt too cold during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
F1225-C18991	C18991	Huntingtons Disease developing motor symptom other text	The free-text field related to 'Huntingtons Disease developing motor symptom type' specifying other text. Type(s) of motor symptoms of Huntington disease (HD) which developed over the course of Illness	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1211-C08109	C08109	Preschool start date	Date participant/subject first started preschool	Supplemental	History of Early Exposure to Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C15104	C15104	Amyloid angiopathy stain type	Type of stain used to identify cerebral amyloid angiopathy	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15064	C15064	Brain atrophy nucleus coeruleus globosum neuronal tangles (GNT) severity result	Quantitative result of the severity of GNT in the nucleus coeruleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C17398	C17398	Specimen other postmortem text	Text area to describe other banked postmortem specimens (e.g., blood, spinal cord, nerve, muscle) exist	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15072	C15072	Brain atrophy medulla oblongata inferior olivary nucleus severity result	Quantitative result of the severity of neuronal loss in the inferior olivary nucleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C17758	C17758	Striatum atrophy hypothalamus atrophy severity result	Quantitative result of the severity of atrophy located in the hypothalamus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15080	C15080	Brain atrophy cerebellum myelin loss in cerebellar white matter indicator	Indicator of myelin loss in the cerebellar white matter of the cerebellum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C17766	C17766	Striatum atrophy hydrocephalus third ventricle severity result	Quantitative result of the severity of hydrocephalus located in the third ventricle	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15088	C15088	Ischemic or hemorrhagic changes description text	The text description of the ischemic or hemorrhagic changes	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15096	C15096	Hemorrhages single or multiple vascular territories name	Name of the vascular territories where hemorrhages occur	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15056	C15056	Brain atrophy substantia nigra pars reticulata neuronal loss severity result	Quantitative result of the severity of neuronal loss in the pars reticulata	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1225-C19059	C19059	Informant participant relationship other text	The free-text field related to 'Informant participant relationship type' specifying other text. The relationship of the informant to participant/subject	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1211-C08110	C08110	Preschool end date	Date participant/subject ended preschool	Supplemental	History of Early Exposure to Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1207-C11138	C11138	Country of origin paternal ISO code	The ISO 3166-1 alpha-2 code for the participant's father's country of origin	Supplemental	Demographics	False	Huntington's Disease	Huntington's Disease
F1237-C15026	C15026	Brain atrophy cerebellum severity result	Quantitative result of the severity of cerebellum atrophy located in the striatum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.