CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 201 - 225 of 394
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C15041 Brain atrophy neuronal loss severity result

Quantitative result of the severity of neuronal loss in each location of the caudate nucleus

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C14973 Microscopical examination blocks source

The source of blockage based on microscopical examination of brain

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C53897 Stroop Color and Word Test (SCW) - Word age educate predict score

Score (Age/Edu. Predict) of the word test, as part of the Stroop Color and Word Test (SCW)

 Supplemental Stroop Test True Huntington's Disease Huntington's Disease
C20363 Pittsburgh Sleep Quality Index (PSQI) - Awaken night early morning past month scale

The scale to which the subject woke up in the middle of the night or early morning during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Supplemental Pittsburgh Sleep Quality Index (PSQI) False Huntington's Disease Huntington's Disease
C18718 Imaging scanner strength value other text

The free-text field related to 'Imaging scanner strength value', specifying other text. Value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported

 Supplemental Magnetic Resonance (MR) Localization Imaging False Huntington's Disease Huntington's Disease
C15049 Brain atrophy red nucleus neuronal loss indicator

Indicator of neuronal loss in the red nucleus

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C14981 Brain atrophy coronal sections hippocampal formation status

Status of hippocampal formation atrophy of the coronal sections upon gross examination

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C53905 Stroop Color and Word Test (SCW) - Color word age educate predict score

Score (Age/Ed Predict) of the color-word test, as part of the Stroop Color and Word Test (SCW)

 Supplemental Stroop Test True Huntington's Disease Huntington's Disease
C20371 Pittsburgh Sleep Quality Index (PSQI) - Partner report leg twitch jerk past month scale

The scale to which the subject's partner reported leg twitching or jerking during sleep past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Supplemental Pittsburgh Sleep Quality Index (PSQI) False Huntington's Disease Huntington's Disease
C02497 Imaging scanner model name

Name of model of imaging scanner

 Supplemental Magnetic Resonance (MR) Localization Imaging False Huntington's Disease Huntington's Disease
C14955 Motor symptom first appeared informant date

Date the first motor symptom(s) were noted by the person completing the form

 Supplemental Medical History of Huntington's Disease False Huntington's Disease Huntington's Disease
C14989 Brain atrophy striatum globus pallidus external segment severity result

Quantitative result of the severity of atrophy located in the globus pallidus, external segment

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C08155 CSF postmortem indicator

Indicator of whether banked postmortem cerebrospinal fluid (CSF) is accessible

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C20379 Pittsburgh Sleep Quality Index (PSQI) - Partner report other sleep restlessness past month scale other text

The free-text entry for other reason(s) the subject's partner reported the subject having restlessness while they sleep the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Supplemental Pittsburgh Sleep Quality Index (PSQI) False Huntington's Disease Huntington's Disease
C08243 Imaging matrix size value

Value representing the imaging matrix size in millimeters

 Supplemental Magnetic Resonance (MR) Localization Imaging False Huntington's Disease Huntington's Disease
C17735 Motor symptom first appeared self report status

The status of the first motor symptom(s) as noted by the participant/subject

 Supplemental Medical History of Huntington's Disease False Huntington's Disease Huntington's Disease
C15025 Brain atrophy striatum cerebellum status

Status of cerebellum atrophy in the striatum

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C08167 Brain abnormality microscopic type

Type of microscopic brain abnormality identified through staining

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C15096 Hemorrhages single or multiple vascular territories name

Name of the vascular territories where hemorrhages occur

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C15056 Brain atrophy substantia nigra pars reticulata neuronal loss severity result

Quantitative result of the severity of neuronal loss in the pars reticulata

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C08109 Preschool start date

Date participant/subject first started preschool

 Supplemental History of Early Exposure to Huntington's disease False Huntington's Disease Huntington's Disease
C11136 Country origin paternal name

Father's country or countries of origin

 Supplemental Demographics False Huntington's Disease Huntington's Disease
C15104 Amyloid angiopathy stain type

Type of stain used to identify cerebral amyloid angiopathy

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C15064 Brain atrophy nucleus coeruleus globosum neuronal tangles (GNT) severity result

Quantitative result of the severity of GNT in the nucleus coeruleus

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C08099 Pneumonia history indicator

Indicator of whether the participant/subject has ever had pneumonia diagnosed by a physician

 Supplemental Infection History False Huntington's Disease Huntington's Disease
Displaying 201 - 225 of 394

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.