CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 1701 - 1725 of 1756
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C08087 Sibling death age value

Age of sibling when he/she died

Supplemental History of Early Exposure to Huntington's disease Huntington's Disease Huntington's Disease
C17758 Striatum atrophy hypothalamus atrophy severity result

Quantitative result of the severity of atrophy located in the hypothalamus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C53905 Stroop Color and Word Test (SCW) - Color word age educate predict score

Score (Age/Ed Predict) of the color-word test, as part of the Stroop Color and Word Test (SCW)

Supplemental Stroop Test Huntington's Disease Huntington's Disease
C09657 Food Frequency Questionnaire - (FFQ)-beta carotene daily dose

Dose per day of beta carotene, as part of Food Frequency Questionnaire -(FFQ)

Supplemental Food Frequency Questionnaire (FFQ) Huntington's Disease Huntington's Disease
C17749 Imaging neurologic other data collected type

Other types of neuroimaging data that may have been collected during this scan visit

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C08535 36-item Short Form Health Survey (SF-36) - Expect worse health score

Score of how true or false surveyee perceived the statement: I expect my health to get worse, as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental Short Form 36-Item Health Survey (SF-36) Huntington's Disease Huntington's Disease
C21058 Frontal Systems Behavior Scale (FrSBE) - Action sequence error frequency scale

Frequency of mixing up a sequence, getting confused when doing several things in a row as part of Frontal Systems Behavior Scale (FrSBE) - Executive Dysfunction subscale

Supplemental Frontal Systems Behavioral Scale (FrSBe) Huntington's Disease Huntington's Disease
C09216 Risk Factor Questionnaire (RFQ-U) - work other fungicide use 66 onward age indicator

The indicator whether participant/subject used other fungicides at work from age 66 onward as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) Huntington's Disease Huntington's Disease
C15080 Brain atrophy cerebellum myelin loss in cerebellar white matter indicator

Indicator of myelin loss in the cerebellar white matter of the cerebellum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08655 Risk Factor Questionnaire (RFQ) - age 56 65 vigorous physical activity indicator

Hours spent doing vigorous physical activities by the subject in an average week between the ages of 56 and 65, as part of the Risk Factor Questionnaire (RFQ)

Supplemental Risk Factor Questionnaire (RFQ) - All Huntington's Disease Huntington's Disease
C09051 Risk Factor Questionnaire (RFQ-U) - work dieldrin product use 36 45 age indicator

The indicator whether participant/subject used dieldrin products at work from age 36 to 45 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticide (Work)

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) Huntington's Disease Huntington's Disease
C20967 Frontal Systems Behavior Scale (FrSBE) - Action speech embarassment frequency scale

Frequency of doing or saying embarrassing things as part of Frontal Systems Behavior Scale (FrSBE) - Disinhibition subscale

Supplemental Frontal Systems Behavioral Scale (FrSBe) Huntington's Disease Huntington's Disease
C17723 Risk Factor Questionnaire (RFQ) - age started regularly weld braze or flame cut metals period 2 value

Age when the participant started regularly weld, braze, or flame cut metals period 2 as part of the Risk Factor Questionnaire for Toxicants

Supplemental Risk Factor Questionnaire (RFQ) - Toxicants Huntington's Disease Huntington's Disease
C09176 Risk Factor Questionnaire (RFQ-U) - work fumigant use 56 65 age indicator

The indicator whether participant/subject used fumigants at work from age 56 to 65 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) Huntington's Disease Huntington's Disease
C09260 Risk Factor Questionnaire (RFQ) - period no regular smoking status

Smoking status of the participant/subject to determine if there were periods of a year or more where they did not regularly smoke as part of the Risk Assessment Questionnaire (RFQ) Smoking and Tobacco

Supplemental Risk Factor Questionnaire (RFQ-U) - Smoking and Tobacco Huntington's Disease Huntington's Disease
C09011 Risk Factor Questionnaire (RFQ-U) - work pesticide exposure 36 45 age indicator

The indicator whether there was work exposure to pesticides from age 36 to 45 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticide (Work)

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) Huntington's Disease Huntington's Disease
C08789 Risk Factor Questionnaire (RFQ) - ever weld cut braze cast iron indicator

Has the participant ever weld, cut, braze cast iron as part of the Risk Factor Questionnaire for Toxicants

Supplemental Risk Factor Questionnaire (RFQ) - Toxicants Huntington's Disease Huntington's Disease
C08704 Risk Factor Questionnaire (RFQ) - age 46 55 residential history residence zip code number

Number specifying the participant's/subject's zip code of residence from 46-55 years of age

Supplemental Risk Factor Questionnaire (RFQ) - Residential History Huntington's Disease Huntington's Disease
C09705 Food Frequency Questionnaire - (FFQ)-other cheese indicator

Average total amount of other cheese, e.g., American, cheddar, etc., plain or as part of a dish (1 slice or 1 oz. serving) the subject has had this past year, as part of Food Frequency Questionnaire -(FFQ)

Supplemental Food Frequency Questionnaire (FFQ) Huntington's Disease Huntington's Disease
C08110 Preschool end date

Date participant/subject ended preschool

Supplemental History of Early Exposure to Huntington's disease Huntington's Disease Huntington's Disease
C20533 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Anxiety depression category

Category determining the extent to which the participant has problems with anxiety or depression category, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Supplemental EuroQoL-5 Dimension Questionnaire (EQ-5D) Huntington's Disease Huntington's Disease
C09665 Food Frequency Questionnaire - (FFQ)-vitamin D indicator

Vitamin D indicator, as part of Food Frequency Questionnaire -(FFQ)

Supplemental Food Frequency Questionnaire (FFQ) Huntington's Disease Huntington's Disease
C11138 Country of origin paternal ISO code

The ISO 3166-1 alpha-2 code for the participant's father's country of origin

Supplemental Demographics Huntington's Disease Huntington's Disease
C21076 Frontal Systems Behavior Scale (FrSBE) - Total raw score

Total raw score as part of Frontal Systems Behavior Scale (FrSBE)

Supplemental Frontal Systems Behavioral Scale (FrSBe) Huntington's Disease Huntington's Disease
C15088 Ischemic or hemorrhagic changes description text

The text description of the ischemic or hemorrhagic changes

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
Displaying 1701 - 1725 of 1756

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.