CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 101 - 125 of 409
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C14969 Cytosine adenine guanine repeat expansion result

Size of expansion of HD-IT 15 cytosine adenine guanine (CAG) repeats

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C18678 Family history medical condition type other text

The free-text field related to 'Family history medical condition type', specifying other text. Type of medical condition or health related event for which the family history is taken

Supplemental Family History Huntington's Disease Huntington's Disease
C15045 Brain atrophy thalamus neuronal loss nuclei name

Name of the nuclei in the thalamus involved in the neuronal loss

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C20384 Pittsburgh Sleep Quality Index (PSQI) - Sleep latency scale

The scale to which sleep latency was calculated, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Huntington's Disease Huntington's Disease
C17689 Non-prescribed controlled psychoactive drug substance inhalant text

The text specifying the drugs within the 'Inhalants: glue, toluene, gasoline, aerosols, paint thinner, nitrous oxide, amyl nitrite,' category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject

Supplemental Non-prescribed Drug Use Questionnaire Huntington's Disease Huntington's Disease
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15092 Lacunes single or multiple event category

Category of the lacunes

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15052 Brain atrophy cerebral white matter myelin loss severity result

Quantitative result of the cerebral white matter myelin loss

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15100 Cortical laminar necrosis single or multiple text

The text description of the cortical laminar necrosis

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08240 Imaging flip angle measurement

Measurement of the angle, in degrees, over which the radio frequency changes proton spin angle

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C15060 Brain atrophy nucleus coeruleus neuronal loss severity result

Quantitative result of the severity of neuronal loss in the nucleus coeruleus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14960 Diagnosis based abnormality type

What kind of abnormalities was the diagnosis based on?

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C15108 Diagnoses final clinicopathological severity scale

Scale of the severity or intensity of the diagnosis

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C10576 Imaging in plane resolution axis 1 measurement

Measurement of axis 1 of in-plane spatial resolution used in imaging acquisition

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C15068 Brain atrophy pontine nuclei globosum neuronal tangles (GNT) severity result

Quantitative result of the severity of globosum neuronal tangles in the pontine nuclei

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17740 Chorea anatomic site physician developing type

Anatomic site of the participant's/subject's body affected by chorea as noted by a physician as a developing issues from disease

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C17754 Microscopic examination brain text

Note regarding microscopic examination of blockage source

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14965 Imaging artifacts indicator

Indicator of any obvious artifacts in the image

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C15076 Brain atrophy cerebellum cortical neuronal loss in receptive layer severity result

Quantitative result of the severity of cortical neuronal loss in the receptive layer of the cerebellum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C19060 Physician specialty other text

The free-text field related to 'Physician specialty type' specifying other text. The specialty of the physician who made the diagnosis

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C17762 Striatum atrophy subthalamic nucleus atrophy severity result

Quantitative result of the severity of atrophy located in the subthalamic nucleus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C18708 Imaging pulse sequence type other text

The free-text field related to 'Imaging pulse sequence type', specifying other text. Type of imaging pulse sequence used

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C15084 Brain atrophy Braak and Braak neurofibrillary stage indicator

Indicator of whether neuronal tangles are present

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C20385 Pittsburgh Sleep Quality Index (PSQI) - Day dysfunction due to sleepiness scale

The scale to which day dysfunction due to sleepiness was calculated, as part of the Pittsburgh Sleep quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Huntington's Disease Huntington's Disease
C17690 Non-prescribed controlled psychoactive drug substance hallucinogen text

The text specifying the drugs within the 'Hallucinogens: ecstasy/MDMA, LSD, mescaline/peyote, psilocybin/mushrooms, PCP/phencylidine/angel dust, MDA/STP/DOM,' category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject

Supplemental Non-prescribed Drug Use Questionnaire Huntington's Disease Huntington's Disease
Displaying 101 - 125 of 409

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.