CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 101 - 125 of 427
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19059 Informant participant relationship other text

The free-text field related to 'Informant participant relationship type' specifying other text. The relationship of the informant to participant/subject

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C20367 Pittsburgh Sleep Quality Index (PSQI) - Partner report loud snore past month scale

The scale to which the subject's partner reported loud snoring during sleep the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Huntington's Disease Huntington's Disease
C14969 Cytosine adenine guanine repeat expansion result

Size of expansion of HD-IT 15 cytosine adenine guanine (CAG) repeats

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17754 Microscopic examination brain text

Note regarding microscopic examination of blockage source

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15076 Brain atrophy cerebellum cortical neuronal loss in receptive layer severity result

Quantitative result of the severity of cortical neuronal loss in the receptive layer of the cerebellum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15045 Brain atrophy thalamus neuronal loss nuclei name

Name of the nuclei in the thalamus involved in the neuronal loss

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14977 Brain atrophy coronal sections cerebral cortex status

Status of cerebral cortex atrophy of the coronal sections upon gross examination

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17762 Striatum atrophy subthalamic nucleus atrophy severity result

Quantitative result of the severity of atrophy located in the subthalamic nucleus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15084 Brain atrophy Braak and Braak neurofibrillary stage indicator

Indicator of whether neuronal tangles are present

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14985 Brain atrophy striatum status

Status of striatum (caudate nucleus [CN], putamen, globus pallidus, and nucleus accumbens) atrophy

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08151 Diagnosis final clinical death date

Date of participant's/subject's final clinical diagnosis

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15092 Lacunes single or multiple event category

Category of the lacunes

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15052 Brain atrophy cerebral white matter myelin loss severity result

Quantitative result of the cerebral white matter myelin loss

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15021 Brain atrophy substantia nigra appearance grade

Grade of pigmentation of the substantia nigra

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08160 Brain tissue weigh type

Type of brain tissue weighed

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15100 Cortical laminar necrosis single or multiple text

The text description of the cortical laminar necrosis

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15060 Brain atrophy nucleus coeruleus neuronal loss severity result

Quantitative result of the severity of neuronal loss in the nucleus coeruleus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15029 Brain atrophy cortical neuronal nuclear inclusions indicator

Indicator of the presence of cortical neuronal nuclear inclusions (dystrophic neurites)

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08171 Diffuse plaques density category

Density of diffuse plaques (plaques with non-compact amyloid and no apparent dystrophic neurites)

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15108 Diagnoses final clinicopathological severity scale

Scale of the severity or intensity of the diagnosis

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15068 Brain atrophy pontine nuclei globosum neuronal tangles (GNT) severity result

Quantitative result of the severity of globosum neuronal tangles in the pontine nuclei

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15037 Brain atrophy neuronal loss and fibrillary astrocytosis putamen anatomic site

Anatomic site in the putamen where neuronal loss and/or fibrillary astrocytosis is/are present

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08110 Preschool end date

Date participant/subject ended preschool

Supplemental History of Early Exposure to Huntington's Disease Huntington's Disease Huntington's Disease
C18708 Imaging pulse sequence type other text

The free-text field related to 'Imaging pulse sequence type', specifying other text. Type of imaging pulse sequence used

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C11138 Country of origin paternal ISO code

The ISO 3166-1 alpha-2 code for the participant's father's country of origin

Supplemental Demographics Huntington's Disease Huntington's Disease
Displaying 101 - 125 of 427

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.