CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 101 - 125 of 409
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C15053 Brain atrophy substantia nigra pars compacta neuronal loss indicator

Indicator of neuronal loss in the pars compacta of the substantia nigra

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08106 Day care end date

Date participant/subject ended day care outside of home

Supplemental History of Early Exposure to Huntington's Disease Huntington's Disease Huntington's Disease
C08153 Brain tissue formalin-fixed indicator

Indicator of whether formalin-fixed brain tissue is accessible

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C18027 Comment text

Provide any additional information that pertains to the question

Supplemental Stroop Test Huntington's Disease Huntington's Disease
C15023 Brain atrophy striatum brainstem status

Status of brainstem atrophy in the striatum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C20361 Pittsburgh Sleep Quality Index (PSQI) - Partner report long pause breathe past month scale

The scale to which the subject's partner reported long pauses between breaths during sleep the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Huntington's Disease Huntington's Disease
C08096 Influenza vaccine history indicator

Indicator of whether the participant/subject has ever received an influenza vaccination

Supplemental Infection History Huntington's Disease Huntington's Disease
C08163 CERAD neuropathological criteria scale

CERAD neuropathological criteria used to determine the probability of the participant/subject having Alzheimer's disease

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C00722 Family history medical condition relative type

Relationship of the family member or ancestor with the medical condition or health related event to the participant

Supplemental Family History Huntington's Disease Huntington's Disease
C53903 Stroop Color and Word Test (SCW) - Color T score

Score (T) of the color test, as part of the Stroop Color and Word Test (SCW)

Supplemental Stroop Test Huntington's Disease Huntington's Disease
C15031 Brain atrophy hippocampal formation neuronal loss indicator

Indicator of neuronal loss in the hippocampal formation

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C20369 Pittsburgh Sleep Quality Index (PSQI) - Other reason past month scale

The scale to which the subject had trouble sleeping for other reasons during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Huntington's Disease Huntington's Disease
C08116 Meningitis or encephalitis episode age value

Participant's/subject's age at the time of the meningitis or encephalitis episode

Supplemental Infection History Huntington's Disease Huntington's Disease
C08175 Cortical microinfarct indicator

Indicator of the presence of one or more infarcts that are detected microscopically (including "granular atrophy") and may not be grossly visible, or may appear to the naked eye as cortical granularity

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14947 Family history relative type biological sample in repository count

The number of family members that have samples in a repository

Supplemental Family History Huntington's Disease Huntington's Disease
C15039 Brain atrophy fibrillary astrocytosis nucleus accumbens severity result

Quantitative result of the severity of firbrillary astrocytosis in the nucleus accumbens

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C20377 Pittsburgh Sleep Quality Index (PSQI) - Past month bed time

The bed time (recorded as 24-hour clock or military time) for the majority of the nights in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Huntington's Disease Huntington's Disease
C17683 Non-prescribed controlled psychoactive drug substance marijuana text

The text specifying the drugs within the Marijuana: hash, THC category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject

Supplemental Non-prescribed Drug Use Questionnaire Huntington's Disease Huntington's Disease
C14971 Macroscopical examination fresh brain source

The part(s) of the fresh brain used for macroscopical examination

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C22864 Diagnosis Huntingtons Disease parent suspect indicator

Indicate whether there is a possibility of an HD diagnosis for a parent

Supplemental Family History Huntington's Disease Huntington's Disease
C15047 Brain atrophy subthalamic nucleus neuronal loss indicator

Indicator of neuronal loss in the subthalamic nucleus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14708 Godin Leisure-Time Exercise Questionnaire - strenuous exercise per week frequency

Numeric value counting the average number of times per week that a participant/subject reports doing strenuous exercise (e.g., running, jogging, hockey, football, soccer, squash, basketball, cross country skiing, judo, roller skating, vigorous swimming, vigorous long distance bicycling)

Supplemental Godin Leisure-Time Exercise Questionnaire Huntington's Disease Huntington's Disease
C17691 Non-prescribed controlled psychoactive drug substance other text

The text specifying the drugs within the 'Others: (non-perscribed, non-over-the-counter)' categoryas an unprescribed, controlled psychoactive drugs or substances used by the participant/subject

Supplemental Non-prescribed Drug Use Questionnaire Huntington's Disease Huntington's Disease
C14979 Brain atrophy coronal sections cerebral white matter status

Status of cerebral white matter atrophy of the coronal section upon gross examination

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C18669 Diagnosis final clinical death other text

The free-text field related to 'Diagnosis final clinical death type' specifying other text. Physician's final clinical diagnosis for the participant/subject

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
Displaying 101 - 125 of 409

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.