CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 101 - 125 of 427
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C08115 Meningitis or encephalitis diagnosed type

Type of meningitis/encephalitis that participant/subject was diagnosed with

Supplemental Infection History Huntington's Disease Huntington's Disease
C20379 Pittsburgh Sleep Quality Index (PSQI) - Partner report other sleep restlessness past month scale other text

The free-text entry for other reason(s) the subject's partner reported the subject having restlessness while they sleep the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Huntington's Disease Huntington's Disease
C08239 Imaging echo duration

Duration between the application of the 90 degree pulse and the peak of the echo signal, in milliseconds, during the spin echo and inversion recovery pulse sequences in imaging acquisition

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C14946 Family history medical condition relative count

Number of family members with medical condition

Supplemental Family History Huntington's Disease Huntington's Disease
C14959 Diagnosis physician year date

The year the physician diagnosed the participant/ subject

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C17757 Striatum atrophy hypothalamus atrophy status

Status of atrophy in the hypothalamus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15079 Brain atrophy cerebellum cortical neuronal loss in bergman gliosis status

Status of cortical neuronal loss in the Bergman gliosis (BG) of the cerebellum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08235 Drug or substance illicit use frequency

The subject's/participant's average or typical use frequency during the year of greatest use of an unprescribed, controlled psychoactive drugs or substances used by the participant/subject

Supplemental Non-prescribed Drug Use Questionnaire Huntington's Disease Huntington's Disease
C14710 Godin Leisure-Time Exercise Questionnaire - mild exercise per week frequency

Numeric value counting the average number of times per week that a participant/subject reports doing mild exercise (e.g., yoga, archery, fishing from river bank, bowling, horseshoes, golf, snow-mobiling, easy walking)

Supplemental Godin Leisure-Time Exercise Questionnaire Huntington's Disease Huntington's Disease
C10570 Imaging contrast agent used indicator

Indicator of whether an imaging contrast agent was used for the scan

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C18679 Family history medical condition relative type other text

The free-text field related to 'Family history medical condition relative type', specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant

Supplemental Family History Huntington's Disease Huntington's Disease
C18992 Macroscopical examination fresh brain other text

The free-text field related to 'Macroscopical examination fresh brain source' specifying other text. The part(s) of the fresh brain used for macroscopical examination

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17739 Informant participant family member relationship text

The free-text field to specify the relationship of the informant to a family member of the participant/subject

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C17765 Striatum atrophy hydrocephalus lateral ventricle severity result

Quantitative result of the severity of hydrocephalus located in the lateral ventricle

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15087 Ischemic or hemorrhagic vascular territories name

Name of the vascular territories where ischemic or hemorrhagic changes occur

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17690 Non-prescribed controlled psychoactive drug substance hallucinogen text

The text specifying the drugs within the 'Hallucinogens: ecstasy/MDMA, LSD, mescaline/peyote, psilocybin/mushrooms, PCP/phencylidine/angel dust, MDA/STP/DOM,' category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject

Supplemental Non-prescribed Drug Use Questionnaire Huntington's Disease Huntington's Disease
C14964 Sedation used indicator

Indicator of whether the participant was administered any sedation

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C08082 Sibling rank type

Sibling rank order to identify who is the eldest sibling and the second eldest sibling

Supplemental History of Early Exposure to Huntington's Disease Huntington's Disease Huntington's Disease
C20355 Pittsburgh Sleep Quality Index (PSQI) - Feel hot past month scale

The scale to which the subject felt too hot during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Huntington's Disease Huntington's Disease
C19059 Informant participant relationship other text

The free-text field related to 'Informant participant relationship type' specifying other text. The relationship of the informant to participant/subject

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C14992 Brain atrophy striatum status cribrosus or lacunaris severity result

Quantitative result of the severity of atrophy located in the status cribrosus or lacunaris, or both

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08158 Brain weight measurement

Weight of the participant's/subject's brain in grams

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15028 Brain atrophy cerebral cortex neuronal loss severity result

Quantitative result of the severity of neuronal loss located in the cerebral cortex

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08170 Neuritic plaque density category

Density of neuritic plaques (plaques with argyrophilic dystrophic neurites with or without dense amyloid cores)

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15036 Brain atrophy neuronal loss and fibrillary astrocytosis pontes griseum or gray matter caudo-lenticular bridges anatomic site

Anatomic site in the pontes griseum or gray matter caudo-lenticular bridges where neuronal loss and/or fibrillary astrocytosis is/are present

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
Displaying 101 - 125 of 427

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.