CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1236-C02499	C02499	Imaging pulse sequence type	Type of imaging pulse sequence used	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1237-C15056	C15056	Brain atrophy substantia nigra pars reticulata neuronal loss severity result	Quantitative result of the severity of neuronal loss in the pars reticulata	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1225-C14956	C14956	Huntingtons Disease motor symptom first appeared informant type	The type of initial motor symptoms of Huntington disease (HD) described by the informant	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1207-C11136	C11136	Country origin paternal name	Father's country or countries of origin	Supplemental	Demographics	False	Huntington's Disease	Huntington's Disease
F2370-C53898	C53898	Stroop Color and Word Test (SCW) - Word residual score	Score (Residual) of the word test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Huntington's Disease	Huntington's Disease
F1237-C15026	C15026	Brain atrophy cerebellum severity result	Quantitative result of the severity of cerebellum atrophy located in the striatum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1269-C20364	C20364	Pittsburgh Sleep Quality Index (PSQI) - Bad dream past month scale	The scale to which the subject had bad dreams during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
F1212-C08099	C08099	Pneumonia history indicator	Indicator of whether the participant/subject has ever had pneumonia diagnosed by a physician	Supplemental	Infection History	False	Huntington's Disease	Huntington's Disease
F1237-C08168	C08168	Immunohistochemistry stain method name	Name of staining method used for immunohistochemistry	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1209-C10813	C10813	Adopted indicator	Indicator of whether the participant was adopted	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F2370-C53906	C53906	Stroop Color and Word Test (SCW) - Color word residual score	Score (residual) of the color-word test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Huntington's Disease	Huntington's Disease
F1237-C15034	C15034	Brain atrophy amygdala neuronal loss severity result	Quantitative result of the severity of neuronal loss in the amygdala	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1269-C20372	C20372	Pittsburgh Sleep Quality Index (PSQI) - Sleep quality past month scale	Rating of overall sleep quality past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
F1213-C00716	C00716	Drug or substance illicit use duration	Duration, in years, the participant/subject has used unprescribed, controlled psychoactive drugs or substances	Supplemental	Non-prescribed Drug Use Questionnaire	False	Huntington's Disease	Huntington's Disease
F1237-C08179	C08179	Cortical laminar necrosis indicator	Indicator of the presence of selective cortical necrosis of middle and lower cortical lamina most often associated with cerebral hypoperfusion and concentrated in border zones between major cerebral arteries	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1209-C14950	C14950	Family history relative order number	A numerical number assigned to each relative, if more than one	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1237-C15042	C15042	Brain atrophy fibrillary astrocytosis severity result	Quantitative result of the severity of fibrillary astrocytosis in each location of the caudate nucleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1269-C20380	C20380	Pittsburgh Sleep Quality Index (PSQI) - Bed partner roommate present scale	The scale that reflects the presence of a bed partner or roommate, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
F1213-C17686	C17686	Non-prescribed controlled psychoactive drug substance sedative tranquilizer text	The text specifying the drugs within the 'Sedatives/minor tranquilizers/muscle relaxants-benzodiazepines and others: Valium/diazepam, Librium, Halcion, Xanax, Dalmane, Flexeril,' category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject	Supplemental	Non-prescribed Drug Use Questionnaire	False	Huntington's Disease	Huntington's Disease
F1237-C14974	C14974	Brain atrophy surface status	Status of cerebral atrophy on external surface of the brain upon gross examination	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1211-C08078	C08078	Full biological sisters count	Count of full biological sisters the participant/subject has	Supplemental	History of Early Exposure to Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C15050	C15050	Brain atrophy red nucleus neuronal loss severity result	Quantitative result of the severity of neuronal loss in the red nucleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1278-C14711	C14711	Godin Leisure-Time Exercise Questionnaire - exercise per week scale	The value on a scale describing how often during a typical 7-day week that a participant/subject reports engaging in regular leisure time activity long enough to make the heart beat rapidly	Supplemental	Godin Leisure-Time Exercise Questionnaire	False	Huntington's Disease	Huntington's Disease
F1225-C14941	C14941	Diagnosis certainty percentage range type	Option for the range of the clinician's certainty of the medical diagnosis of the disease or disorder	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C14982	C14982	Brain atrophy coronal sections hippocampal formation severity result	Quantitative result of the severity of hippocampal formation atrophy in the coronal sections of the brain	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.