CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 51 - 75 of 427
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20378 Pittsburgh Sleep Quality Index (PSQI) - Actual sleep past month hour scale

The scaled duration (in hours) of actual sleep per night in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Huntington's Disease Huntington's Disease
C17684 Non-prescribed controlled psychoactive drug substance stimulant cocaine text

The text specifying the drugs within the Stimulants: cocaine/crack category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject

Supplemental Non-prescribed Drug Use Questionnaire Huntington's Disease Huntington's Disease
C14972 Macroscopical examination fixed brain source

The part(s) of the fixed brain used for macroscopical examination

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08076 Breastfed indicator

Indicator of whether the participant/subject was breastfed by his/her mother

Supplemental History of Early Exposure to Huntington's Disease Huntington's Disease Huntington's Disease
C15048 Brain atrophy subthalamic nucleus neuronal loss severity result

Quantitative result of the severity of neuronal loss in the subthalamic nucleus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14709 Godin Leisure-Time Exercise Questionnaire - moderate exercise per week frequency

Numeric value counting the average number of times per week that a participant/subject reports doing moderate exercise (e.g., fast walking, baseball, tennis, easy bicycling, volleyball, badminton, easy swimming, alpine skiing, popular and folk dancing)

Supplemental Godin Leisure-Time Exercise Questionnaire Huntington's Disease Huntington's Disease
C18670 Subscribed drug or substance illicitly used category other text

The free-text field related to 'Subscribed drug or substance illicitly used category' specifying other text. Category of illegal drugs, prescription, or over-the-counter drugs the participant/subject used for purposes other than those for which they are meant to be used, or in large amounts

Supplemental Non-prescribed Drug Use Questionnaire Huntington's Disease Huntington's Disease
C14980 Brain atrophy coronal sections cerebral white matter severity result

Quantitative result of the severity of cerebral white matter atrophy in the coronal sections of the brain

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C18741 Other pathology ischemic vascular disease specify text

The free-text field related to 'Other pathology ischemic vascular disease indicator'. Indicator of the presence of another ischemic or vascular disease not specifically mentioned previously

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08084 Sibling gender type

Reported gender of the sibling. Gender is the socially constructed identity of sex

Supplemental History of Early Exposure to Huntington's Disease Huntington's Disease Huntington's Disease
C14988 Brain atrophy striatum putamen severity result

Quantitative result of the severity of atrophy located in the putamen

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C20354 Pittsburgh Sleep Quality Index (PSQI) - Cannot breathe comfortably past month scale

The scale to which the subject had trouble breathing comfortably during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Huntington's Disease Huntington's Disease
C08107 Day care hour per week value

Approximate hours per week the participant/subject attended day care as a child

Supplemental History of Early Exposure to Huntington's Disease Huntington's Disease Huntington's Disease
C08154 Brain tissue paraffin-embedded indicator

Indicator of whether paraffin-embedded blocks of brain tissue are accessible

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C53896 Stroop Color and Word Test (SCW) - Word raw score

Score (raw) of the word test, as part of the Stroop Color and Word Test (SCW)

Supplemental Stroop Test Huntington's Disease Huntington's Disease
C15024 Brain atrophy striatum brainstem severity result

Quantitative result of the severity of brainstem atrophy located in the striatum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C20362 Pittsburgh Sleep Quality Index (PSQI) - Partner report other sleep restlessness past month scale

The scale to which the subject's partner reported other restlessness during sleep past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Huntington's Disease Huntington's Disease
C08097 Influenza vaccine first receive age value

Age participant/subject received his/her first influenza vaccination

Supplemental Infection History Huntington's Disease Huntington's Disease
C08166 Brain atrophy Braak and Braak neurofibrillary stage

Stages I and II correspond to NFT limited to the transentorhinal/entorhinal region; Stages III and IV to limbic stages; and Stages V and VI to neocortical stages. Stage VI implies involvement of primary cortices

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08000 Family history relative type total membercount

Count of total family members and ancestors for the specified relative type

Supplemental Family History Huntington's Disease Huntington's Disease
C53904 Stroop Color and Word Test (SCW) - Color word raw score

Score (raw) of the color-word test, as part of the Stroop Color and Word Test (SCW)

Supplemental Stroop Test Huntington's Disease Huntington's Disease
C15032 Brain atrophy hippocampal formation neuronal loss severity result

Quantitative result of the severity of neuronal loss in the hippocampal formation

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C20370 Pittsburgh Sleep Quality Index (PSQI) - Sleep medication past month scale

The scale of medication use to help sleep (prescribed or 'over the counter') past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Huntington's Disease Huntington's Disease
C08117 Meningitis or encephalitis episode hospitalization indicator

Indicator of whether the participant/subject was hospitalized for the meningitis or encephalitis episode

Supplemental Infection History Huntington's Disease Huntington's Disease
C08176 Lacunes single or multiple indicator

Indicator of the presence of one or more cystic/old infarcts or hemorrhages 1-cm or less in diameter that are usually grossly identified and in the distribution of small parenchymal vessels, most often in basal ganglia, thalamus, pons, cerebellum and cerebral white matter

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
Displaying 51 - 75 of 427

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.