CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 51 - 75 of 1756
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C08575 Risk Factor Questionnaire (RFQ) - taken Verapamil Calan Covera-HS Isoptin Verelan reason

Reason took Verapamil or Calan, Covera-HS, Isoptin, Verelan as part of the Risk Factor Questionnaire for Nonsteroidal Anti-Inflammatory Drugs (NSAIDS) and Calcium Channel Blockers (CCB)

Supplemental Risk Factor Questionnaire (RFQ) - NSAIDS and Calcium Channel Blockers (CCB) Huntington's Disease Huntington's Disease
C18059 Ohio State TBI Method Short Form (OSUTBIMS) - more injuries loss of consciousness number

Number of injuries past the amount that can be listed in the table that have to do with loss of consciousness as part of Ohio State TBI Method Short Form (OSUTBIMS)

Supplemental Ohio State University TBI Identification Method Short Form Huntington's Disease Huntington's Disease
C16616 Risk Factor Questionnaire (RFQ) - significant injury school work missed duration

Unit of measure for length of time the participant/subject missed school or work because of the injury as part of the risk factor questionnaire (RFQ)

Supplemental Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia Huntington's Disease Huntington's Disease
C08534 36-item Short Form Health Survey (SF-36) - Healthy as anybody score

Score of how true or false surveyee perceived the statement: I am as healthy as anybody I know, as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental Short Form 36-Item Health Survey (SF-36) Huntington's Disease Huntington's Disease
C10407 Scale for Outcomes of Parkinsons disease (SCOPA) - sleep night early woken past month scale

Pre-specified scales for early wake-up at night in the past month

Supplemental Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-Sleep) Huntington's Disease Huntington's Disease
C16663 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - lot toilet night indicator

The yes/no indicator for getting up a lot to go to the toilet at night from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep)

Supplemental Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Huntington's Disease Huntington's Disease
C14984 Brain atrophy coronal sections amygdala severity result

Quantitative result of the severity of amygdala atrophy in the coronal sections of the brain

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17193 Problem Behaviours Assessment - Short Form (PBA-S) - suicidal ideation severity score

The severity score for suicidal ideation over past four weeks as part of the Problem Behaviours Assessment - Short Form (PBA-S)

Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) Huntington's Disease Huntington's Disease
C09789 Food Frequency Questionnaire - (FFQ)-regular orange juice indicator-whole wheat oatmeal other whole grain bread indicator

Average total amount of whole wheat, oatmeal, or other whole grain bread the subject ate this past year , as part of Food Frequency Questionnaire -(FFQ)

Supplemental Food Frequency Questionnaire (FFQ) Huntington's Disease Huntington's Disease
C08859 Risk Factor Questionnaire (RFQ-U) - herbicide exposure 36 45 age indicator

The indicator whether there was exposure to herbicides from ages 36 to 45 in a participant's/subject's life as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Home)

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Home) Huntington's Disease Huntington's Disease
C18995 Brain atrophy thalamus neuronal loss nuclei other text

The free-text field related to 'Brain atrophy thalamus neuronal loss nuclei name' specifying other text. Name of the nuclei in the thalamus involved in the neuronal loss

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08761 Risk Factor Questionnaire (RFQ) - use freon indicator

Ever use avgas or jet fuel as part of the Risk Factor Questionnaire for Toxicants

Supplemental Risk Factor Questionnaire (RFQ) - Toxicants Huntington's Disease Huntington's Disease
C09108 Risk Factor Questionnaire (RFQ-U) - work dieldrin product use 46 55 age indicator

The indicator whether participant/subject used dieldrin products at work from age 46 to 55 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) Huntington's Disease Huntington's Disease
C10252 Parkinson's Disease - Mini Environmental Risk Questionnaire (PD-DOC-MERQ) - caffeine intake preparkinson's disease number

Number of cups of caffeine-containing beverages the participant/subject drank each day, during the times that he or she was drinking caffeine-containing beverages, as a part of Parkinson's Disease - Mini Environmental Risk Questionnaire (PD-DOC-MERQ)

Supplemental PD DOC Mini Environmental Risk Questionnaire for Parkinson's Disease Patients Baseline (PD DOC MERQ-PD-B) Huntington's Disease Huntington's Disease
C08149 Diagnosis final clinical death type

Physician's final clinical diagnosis for the participant/subject

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C09749 Food Frequency Questionnaire - (FFQ)-eggplant zucchini other summer squash indicator

Average total amount of eggplant, zucchini or other summer squash the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

Supplemental Food Frequency Questionnaire (FFQ) Huntington's Disease Huntington's Disease
C08676 Risk Factor Questionnaire (RFQ) - age 18 25 residential history residence location type

Type describing the participant's/subject's location of residence from 18-25 years of age

Supplemental Risk Factor Questionnaire (RFQ) - Residential History Huntington's Disease Huntington's Disease
C08943 Risk Factor Questionnaire (RFQ-U) - work other insecticide use birth 25 age indicator

The indicator whether participant/subject used other insecticides at work from birth to age 25 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticide (Work)

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) Huntington's Disease Huntington's Disease
C09233 Risk Factor Questionnaire (RFQ-U) - work fumigant use 66 onward age indicator

The indicator whether participant/subject used fumigants at work from age 66 onward as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) Huntington's Disease Huntington's Disease
C08109 Preschool start date

Date participant/subject first started preschool

Supplemental History of Early Exposure to Huntington's disease Huntington's Disease Huntington's Disease
C08583 Risk Factor Questionnaire (RFQ) - age stopped regularly taking other CCB medication period 3 value

Age when the participant stopped regularly taking other CCB medication period 3 as part of the Risk Factor Questionnaire for Nonsteroidal Anti-Inflammatory Drugs (NSAIDS) and Calcium Channel Blockers (CCB)

Supplemental Risk Factor Questionnaire (RFQ) - NSAIDS and Calcium Channel Blockers (CCB) Huntington's Disease Huntington's Disease
C09068 Risk Factor Questionnaire (RFQ-U) - work pesticide exposure 46 55 age indicator

The indicator whether there was work exposure to pesticides from age 46 to 55 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) Huntington's Disease Huntington's Disease
C18067 Ohio State TBI Method Short Form (OSUTBIMS) - greater than 24 hours result

Whether the subject was unconscious for greater than 24 hours as part of Ohio State TBI Method Short Form (OSUTBIMS)

Supplemental Ohio State University TBI Identification Method Short Form Huntington's Disease Huntington's Disease
C08903 Risk Factor Questionnaire (RFQ-U) - farm ranch pesticide exposure crops birth 25 age text

The description of any pesticides used on crops while working in farming or ranching from birth to age 25 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) Huntington's Disease Huntington's Disease
C11136 Country of origin paternal name

Father's country or countries of origin

Supplemental Demographics Huntington's Disease Huntington's Disease
Displaying 51 - 75 of 1756

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.