CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 376 - 400 of 427

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1211-C08104	C08104	Day care attendance indicator	Indicator of whether the participant/subject attended day care outside of the home as a child	Supplemental	History of Early Exposure to Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C15098	C15098	Cortical laminar necrosis single or multiple event category	Category of the cortical laminar necrosis	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15058	C15058	Brain atrophy substantia nigra Lewy body containing neurons and Lewy neurites severity result	Quantitative result of the severity of lewy-body containing neurons (LBCN) and lewy neurites (LN) in the substantia nigra.	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1211-C08112	C08112	Birth weight category	Categorization of the participant's/subject's birth weight	Supplemental	History of Early Exposure to Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C15106	C15106	Clinicopathology diagnosis final type	The participant/subject's final clinicopathological diagnosis	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1208-C00012	C00012	Education level USA type	Highest grade or level of school participant/subject has completed or the highest degree received	Supplemental	Social Status	False	Huntington's Disease	Huntington's Disease
F1237-C15066	C15066	Brain atrophy pons neuronal loss severity result	Quantitative result of the severity of neuronal loss in the pons	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1212-C08114	C08114	Meningitis or encephalitis history indicator	Indicator of whether the participant/subject has ever had meningitis or encephalitis (brain infection) diagnosed by a physician	Supplemental	Infection History	False	Huntington's Disease	Huntington's Disease
F1237-C17752	C17752	Photographs macroscopic text	Description of available macroscopic photographs	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1209-C14945	C14945	Family history relative death age value	Value for participant's/subject's family member's age at death, if deceased	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1237-C15074	C15074	Brain atrophy cerebellum cortical neuronal loss in associative layer severity result	Quantitative result of the severity of cortical neuronal loss in the associative layer of the cerebellum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1213-C08234	C08234	Drug or substance last illicit use date and time	Date (and time if applicable and known) of the participant's/subject's last use of an unprescribed, controlled psychoactive drugs or substances used by the participant/subject	Supplemental	Non-prescribed Drug Use Questionnaire	False	Huntington's Disease	Huntington's Disease
F1237-C17760	C17760	Striatum atrophy thalamus atrophy severity result	Quantitative result of the severity of atrophy located in the thalamus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1209-C18678	C18678	Family history medical condition type other text	The free-text field related to 'Family history medical condition type', specifying other text. Type of medical condition or health related event for which the family history is taken	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1237-C15082	C15082	Brain atrophy cerebellum dentate nucleus neuronal loss indicator	Indicator of neuronal loss in the dentate nucleus of the cerebellum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1213-C17689	C17689	Non-prescribed controlled psychoactive drug substance inhalant text	The text specifying the drugs within the 'Inhalants: glue, toluene, gasoline, aerosols, paint thinner, nitrous oxide, amyl nitrite,' category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject	Supplemental	Non-prescribed Drug Use Questionnaire	False	Huntington's Disease	Huntington's Disease
F1237-C18153	C18153	Data unknown text	The free-text field to Mark an "X" in to record if data are unknown or not available	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1211-C08081	C08081	Twin sibling type	Type of twin the participant/subject has	Supplemental	History of Early Exposure to Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C15090	C15090	Cortical infarcts single or multiple vascular territories name	Name of the vascular territories where cortical microinfarcts occur	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1225-C14953	C14953	Chorea anatomic site	Anatomic site of the participant's/subject's body affected by chorea	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F3107-C14700	C14700	Berg Balance Scale (BBS) - reach forward scale	The scale for assessment of reaching forward with outstretched arm while standing based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental-Highly Recommended	Berg Balance Scale (BBS)	False	Huntington's Disease	Huntington's Disease
F1229-C17746	C17746	Molecular study lab name	The name of the laboratory that completed the molecular study to determine number of cytosine adenine guanine (CAG) repeats	Supplemental-Highly Recommended	DNA Elements - Information from the Study Investigator	False	Huntington's Disease	Huntington's Disease
F1230-C19062	C19062	Cytosine Adenine Guanine repeat results provider other text	The free-text field related to 'Cytosine Adenine Guanine repeat results provider type' specifying other text. The type of provider who repeated the Cytosine Adenine Guanine (CAG) results	Supplemental-Highly Recommended	DNA Elements - Participant/Subject Information	False	Huntington's Disease	Huntington's Disease
F1807-C00015	C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	Huntington's Disease	Huntington's Disease
F3107-C17394	C17394	Berg Balance Scale (BBS) - stand one leg scale	The scale for assessment of standing on one leg based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental-Highly Recommended	Berg Balance Scale (BBS)	False	Huntington's Disease	Huntington's Disease

Displaying 376 - 400 of 427

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.