CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 326 - 350 of 409
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C17749 Imaging neurologic other data collected type

Other types of neuroimaging data that may have been collected during this scan visit

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C15080 Brain atrophy cerebellum myelin loss in cerebellar white matter indicator

Indicator of myelin loss in the cerebellar white matter of the cerebellum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17766 Striatum atrophy hydrocephalus third ventricle severity result

Quantitative result of the severity of hydrocephalus located in the third ventricle

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C19063 Imaging neurologic other data collected other text

The free-text field related to 'Imaging neurologic other data collected type' specifying other text. Other types of neuroimaging data that may have been collected during this scan visit

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C15088 Ischemic or hemorrhagic changes description text

The text description of the ischemic or hemorrhagic changes

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14711 Godin Leisure-Time Exercise Questionnaire - exercise per week scale

The value on a scale describing how often during a typical 7-day week that a participant/subject reports engaging in regular leisure time activity long enough to make the heart beat rapidly

Supplemental Godin Leisure-Time Exercise Questionnaire Huntington's Disease Huntington's Disease
C14941 Diagnosis certainty percentage range type

Option for the range of the clinician's certainty of the medical diagnosis of the disease or disorder

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C14982 Brain atrophy coronal sections hippocampal formation severity result

Quantitative result of the severity of hippocampal formation atrophy in the coronal sections of the brain

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C18993 Macroscopical examination fixed brain other text

The free-text field related to 'Macroscopical examination fixed brain source' specifying other text. The part(s) of the fixed brain used for macroscopical examination

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08086 Sibling current age value

Current age of the living sibling

Supplemental History of Early Exposure to Huntington's disease Huntington's Disease Huntington's Disease
C08147 Data source

Source of the data provided on the case report form

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14990 Brain atrophy striatum globus pallidus internal segment severity result

Quantitative result of the severity of atrophy located in the globus pallidus, internal segment.

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C20356 Pittsburgh Sleep Quality Index (PSQI) - Fall asleep past month minute scale

The scaled duration of time (in minutes) it takes the subject to fall asleep the majority of the nights in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Huntington's Disease Huntington's Disease
C08109 Preschool start date

Date participant/subject first started preschool

Supplemental History of Early Exposure to Huntington's disease Huntington's Disease Huntington's Disease
C08156 Specimen other postmortem indicator

Indicator whether other banked postmortem specimens (e.g., blood, spinal cord, nerve, muscle) exist

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C11136 Country origin paternal name

Father's country or countries of origin

Supplemental Demographics Huntington's Disease Huntington's Disease
C53898 Stroop Color and Word Test (SCW) - Word residual score

Score (Residual) of the word test, as part of the Stroop Color and Word Test (SCW)

Supplemental Stroop Test Huntington's Disease Huntington's Disease
C15026 Brain atrophy cerebellum severity result

Quantitative result of the severity of cerebellum atrophy located in the striatum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C20364 Pittsburgh Sleep Quality Index (PSQI) - Bad dream past month scale

The scale to which the subject had bad dreams during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Huntington's Disease Huntington's Disease
C08099 Pneumonia history indicator

Indicator of whether the participant/subject has ever had pneumonia diagnosed by a physician

Supplemental Infection History Huntington's Disease Huntington's Disease
C08168 Immunohistochemistry stain method name

Name of staining method used for immunohistochemistry

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C10813 Adopted indicator

Whether the subject/participant was adopted

Supplemental Family History Huntington's Disease Huntington's Disease
C53906 Stroop Color and Word Test (SCW) - Color word residual score

Score (residual) of the color-word test, as part of the Stroop Color and Word Test (SCW)

Supplemental Stroop Test Huntington's Disease Huntington's Disease
C15034 Brain atrophy amygdala neuronal loss severity result

Quantitative result of the severity of neuronal loss in the amygdala

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C20372 Pittsburgh Sleep Quality Index (PSQI) - Sleep quality past month scale

Rating of overall sleep quality past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Huntington's Disease Huntington's Disease
Displaying 326 - 350 of 409

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.