CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 301 - 325 of 409
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C14711 Godin Leisure-Time Exercise Questionnaire - exercise per week scale

The value on a scale describing how often during a typical 7-day week that a participant/subject reports engaging in regular leisure time activity long enough to make the heart beat rapidly

Supplemental Godin Leisure-Time Exercise Questionnaire Huntington's Disease Huntington's Disease
C18717 Imaging scanner model other text

The free-text field related to 'Imaging scanner model name' specifying other text. Name of model of imaging scanner

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C14982 Brain atrophy coronal sections hippocampal formation severity result

Quantitative result of the severity of hippocampal formation atrophy in the coronal sections of the brain

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C18993 Macroscopical examination fixed brain other text

The free-text field related to 'Macroscopical examination fixed brain source' specifying other text. The part(s) of the fixed brain used for macroscopical examination

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08147 Data source

Source of the data provided on the case report form

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14990 Brain atrophy striatum globus pallidus internal segment severity result

Quantitative result of the severity of atrophy located in the globus pallidus, internal segment.

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C20356 Pittsburgh Sleep Quality Index (PSQI) - Fall asleep past month minute scale

The scaled duration of time (in minutes) it takes the subject to fall asleep the majority of the nights in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Huntington's Disease Huntington's Disease
C02496 Imaging scanner manufacturer name

Name of manufacturer of imaging scanner

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C08156 Specimen other postmortem indicator

Indicator whether other banked postmortem specimens (e.g., blood, spinal cord, nerve, muscle) exist

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14954 Motor symptom improvement since diagnosis indicator

the indicator whether motor symptoms have improved since the first diagnosis

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C15065 Brain atrophy pons neuronal loss indicator

Indicator of neuronal loss in the pons

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08107 Day care hour per week value

Approximate hours per week the participant/subject attended day care as a child

Supplemental History of Early Exposure to Huntington's Disease Huntington's Disease Huntington's Disease
C17400 Other pathology ischemic vascular disease text

Text field to describe the presence of another ischemic or vascular disease not specifically mentioned previously

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15073 Brain atrophy cerebellum cortical neuronal loss in associative layer indicator

Indicator of cortical neuronal loss in the associative layer (molecular) of the cerebellum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08097 Influenza vaccine first receive age value

Age participant/subject received his/her first influenza vaccination

Supplemental Infection History Huntington's Disease Huntington's Disease
C08000 Family history relative type total membercount

Count of total family members and ancestors for the specified relative type

Supplemental Family History Huntington's Disease Huntington's Disease
C17759 Striatum atrophy thalamus atrophy status

Status of atrophy in the thalamus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15081 Brain atrophy cerebellum myelin loss in cerebellar white matter severity result

Quantitative result of the severity of myelin loss in the cerebellar white matter of the cerebellum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08117 Meningitis or encephalitis episode hospitalization indicator

Indicator of whether the participant/subject was hospitalized for the meningitis or encephalitis episode

Supplemental Infection History Huntington's Disease Huntington's Disease
C14948 Family history relative type no biological sample in repository count

The number of family members that do not have samples in a repository

Supplemental Family History Huntington's Disease Huntington's Disease
C17767 Striatum atrophy hydrocephalus fourth ventricle severity result

Quantitative result of the severity of hydrocephalus located in the fourth ventricle

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15089 Cortical infarcts single or multiple event category

Category of the cortical microinfarcts

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17684 Non-prescribed controlled psychoactive drug substance stimulant cocaine text

The text specifying the drugs within the Stimulants: cocaine/crack category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject

Supplemental Non-prescribed Drug Use Questionnaire Huntington's Disease Huntington's Disease
C08076 Breastfed indicator

Indicator of whether the participant/subject was breastfed by his/her mother

Supplemental History of Early Exposure to Huntington's Disease Huntington's Disease Huntington's Disease
Displaying 301 - 325 of 409

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.