CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 276 - 300 of 409

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1269-C20384	C20384	Pittsburgh Sleep Quality Index (PSQI) - Sleep latency scale	The scale to which sleep latency was calculated, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
F1236-C19063	C19063	Imaging neurologic other data collected other text	The free-text field related to 'Imaging neurologic other data collected type' specifying other text. Other types of neuroimaging data that may have been collected during this scan visit	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1209-C14943	C14943	Family history relative deceased indicator	Indicator of whether family member is deceased	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1237-C15100	C15100	Cortical laminar necrosis single or multiple text	The text description of the cortical laminar necrosis	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15027	C15027	Brain atrophy cortex neuronal loss indicator	Indicator of neuronal loss in the cerebral cortex	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15060	C15060	Brain atrophy nucleus coeruleus neuronal loss severity result	Quantitative result of the severity of neuronal loss in the nucleus coeruleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C08169	C08169	Antibody stain method name	Name of staining method used for antibodies	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1213-C08232	C08232	Drug or substance illicit use ever indicator	Indicator of participant's/subject's use of illegal drugs, prescription or over-the-counter drugs at any point in his/her lifetime for purposes other than those for which they are meant to be used, or in large amounts	Supplemental	Non-prescribed Drug Use Questionnaire	False	Huntington's Disease	Huntington's Disease
F1209-C17681	C17681	Family history collection source	The source of collected family history data	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1237-C15108	C15108	Diagnoses final clinicopathological severity scale	Scale of the severity or intensity of the diagnosis	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15035	C15035	Brain atrophy neuronal loss fibrillary astrocytosis caudate nucleus anatomic site	Anatomic site in the caudate nucleus (CN) where neuronal loss and/or fibrillary astrocytosis is/are present	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15068	C15068	Brain atrophy pontine nuclei globosum neuronal tangles (GNT) severity result	Quantitative result of the severity of globosum neuronal tangles in the pontine nuclei	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C08181	C08181	Other pathology ischemic vascular disease indicator	Indicator of the presence of another ischemic or vascular disease not specifically mentioned previously	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1213-C17687	C17687	Non-prescribed controlled psychoactive drug substance sedative barbiturate text	The text specifying the drugs within the 'Sedatives-barbiturates and others: phenobarbital, Seconol, Nembutal, Dorieden, Quaalude, Amytal, Fiorinal, downers,' category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject	Supplemental	Non-prescribed Drug Use Questionnaire	False	Huntington's Disease	Huntington's Disease
F1211-C08079	C08079	Full biological brothers count	Count of full biological brothers the participant/subject has	Supplemental	History of Early Exposure to Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C17754	C17754	Microscopic examination brain text	Note regarding microscopic examination of blockage source	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15043	C15043	Brain atrophy thalamus neuronal loss indicator	Indicator of neuronal loss in the thalamus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15076	C15076	Brain atrophy cerebellum cortical neuronal loss in receptive layer severity result	Quantitative result of the severity of cortical neuronal loss in the receptive layer of the cerebellum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C14975	C14975	Brain lobe examination anatomic site	Anatomic site examined in the brain	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1225-C14951	C14951	Motor symptom first appeared self report date and time	Date of the first motor symptom(s) as noted by the participant/subject	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1211-C08087	C08087	Sibling death age value	Age of sibling when he/she died	Supplemental	History of Early Exposure to Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C17762	C17762	Striatum atrophy subthalamic nucleus atrophy severity result	Quantitative result of the severity of atrophy located in the subthalamic nucleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15084	C15084	Brain atrophy Braak and Braak neurofibrillary stage indicator	Indicator of whether neuronal tangles are present	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C14983	C14983	Brain atrophy coronal sections amygdala status	Status of amygdala atrophy of the coronal sections upon gross examination	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C08148	C08148	Neuropath specimen identifier number	Unique identification number given to the neuropathology specimen	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease

Displaying 276 - 300 of 409

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.