CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 251 - 275 of 409
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C08175 Cortical microinfarct indicator

Indicator of the presence of one or more infarcts that are detected microscopically (including "granular atrophy") and may not be grossly visible, or may appear to the naked eye as cortical granularity

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14947 Family history relative type biological sample in repository count

The number of family members that have samples in a repository

Supplemental Family History Huntington's Disease Huntington's Disease
C15039 Brain atrophy fibrillary astrocytosis nucleus accumbens severity result

Quantitative result of the severity of firbrillary astrocytosis in the nucleus accumbens

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C20377 Pittsburgh Sleep Quality Index (PSQI) - Past month bed time

The bed time (recorded as 24-hour clock or military time) for the majority of the nights in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Huntington's Disease Huntington's Disease
C17683 Non-prescribed controlled psychoactive drug substance marijuana text

The text specifying the drugs within the Marijuana: hash, THC category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject

Supplemental Non-prescribed Drug Use Questionnaire Huntington's Disease Huntington's Disease
C14971 Macroscopical examination fresh brain source

The part(s) of the fresh brain used for macroscopical examination

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C22864 Diagnosis Huntingtons Disease parent suspect indicator

Indicate whether there is a possibility of an HD diagnosis for a parent

Supplemental Family History Huntington's Disease Huntington's Disease
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15094 Lacunes single or multiple description text

The text description of the lacunes

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C02496 Imaging scanner manufacturer name

Name of manufacturer of imaging scanner

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C15054 Brain atrophy substantia nirgra pars compacta neuronal loss severity result

Quantitative result of the severity of neuronal loss in the pars compacta

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14954 Motor symptom improvement since diagnosis indicator

the indicator whether motor symptoms have improved since the first diagnosis

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C15102 Arteriosclerosis indicator

Indicator of arteriosclerosis (small parenchymal arteriolar disease)

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08242 Imaging acquisition duration

Duration of the imaging scan in minutes

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C15062 Brain atrophy nucleus coeruleus Lewy body containing neurons and Lewy neurites severity result

Quantitative result of the severity of lewy-body containing neurons (LBCN) and lewy neurites (LN) in the nucleus coeruleus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17734 Person completing the form title text

Title/Credentials/Training of the person completing the form

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C15110 Atherosclerotic luminal stenosis percentage range

Range for the estimated luminal stenosis percentage if stenotic vascular changes (of the circle of Willis)

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C10837 Imaging gap between slices measurement

Measurement of the gap between slices used in imaging acquisition

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C15070 Brain atrophy medulla oblongata dorsal nucleus of vagus reticular formation severity result

Quantitative result of the severity of dorsal nucleus of vagus reticular formation: LBCN and LN in the medulla oblongata

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17743 Physician confidence level basis type

What the physician confidence level is primarily based on

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C17756 Striatum atrophy claustrum atrophy severity result

Quantitative result of the severity of atrophy located in the claustrum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15572 Imaging diffusion direction count

Count of diffusion directions in the associated diffusion imaging study

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C15078 Brain atrophy cerebellum cortical neuronal loss in effective layer severity result

Quantitative result of the severity of cortical neuronal loss in the effective layer of the cerebellum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17764 Striatum atrophy red nucleus atrophy severity result

Quantitative result of the severity of atrophy located in the red nucleus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C18717 Imaging scanner model other text

The free-text field related to 'Imaging scanner model name' specifying other text. Name of model of imaging scanner

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
Displaying 251 - 275 of 409

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.