CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 26 - 50 of 1756
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C09106 Risk Factor Questionnaire (RFQ-U) - work chlorpyrifos terbufos use 46 55 age indicator

The indicator whether participant/subject used chlorpyrifos or terbufos at work from age 46 to 55 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08147 Data source

Source of the data provided on the case report form

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C08674 Risk Factor Questionnaire (RFQ) - age 18 25 residential history residence zip code number

Number specifying the participant's/subject's zip code of residence from 18-25 years of age

 Supplemental Risk Factor Questionnaire (RFQ) - Residential History True Huntington's Disease Huntington's Disease
C08941 Risk Factor Questionnaire (RFQ-U) - work permethrin other pyrethroid product use birth 25 age indicator

The indicator whether participant/subject used permethrin or other pyrethroid products at work from birth to age 25 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticide (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C09231 Risk Factor Questionnaire (RFQ-U) - work other rodenticide use 66 onward age indicator

The indicator whether participant/subject used other rodenticides at work from age 66 onward as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08107 Day care hour per week value

Approximate hours per week the participant/subject attended day care as a child

 Supplemental History of Early Exposure to Huntington's disease False Huntington's Disease Huntington's Disease
C08581 Risk Factor Questionnaire (RFQ) - age stopped regularly taking other CCB medication period 1 value

Age when the participant stopped regularly taking other CCB medication period 1 as part of the Risk Factor Questionnaire for Nonsteroidal Anti-Inflammatory Drugs (NSAIDS) and Calcium Channel Blockers (CCB)

 Supplemental Risk Factor Questionnaire (RFQ) - NSAIDS and Calcium Channel Blockers (CCB) True Huntington's Disease Huntington's Disease
C09066 Risk Factor Questionnaire (RFQ-U) - work other pesticide use 36 45 age indicator

The indicator whether participant/subject used another type of pesticide at work from age 36 to 45 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticide (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C09801 Food Frequency Questionnaire - (FFQ)-crackers regular low fat indicator

Average total amount of regular or low fat crackers the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C08901 Risk Factor Questionnaire (RFQ-U) - farm ranch work birth 25 age indicator

The indicator whether participant/subject worked in farming or ranching from birth to age 25 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C10264 Parkinson's Disease - Mini Environmental Risk Questionnaire (PD-DOC-MERQ) - ovary removal preparkinson's disease indicator

Indicator for whether the participant/subject has ever had one or both ovaries surgically removed before he or she was diagnosed with Parkinson's Disease, as a part of Parkinson's Disease - Mini Environmental Risk Questionnaire (PD-DOC-MERQ)

 Supplemental PD DOC Mini Environmental Risk Questionnaire for Parkinson's Disease Patients Baseline (PD DOC MERQ-PD-B) True Huntington's Disease Huntington's Disease
C09761 Food Frequency Questionnaire - (FFQ)-omega-3 fortified eggs indicator

Average total amount of omega-3 fortified eggs the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C10413 Scale for Outcomes of Parkinsons disease (SCOPA) - sleep asleep talk past month frequency

Pre-specified frequencies for falling asleep while talking to someone in the past month

 Supplemental Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-Sleep) True Huntington's Disease Huntington's Disease
C10224 Parkinson's Disease - Mini Environmental Risk Questionnaire (PD-DOC-MERQ) - age zero ten zip code

Zip code for the location that the participant/subject spent the majority of his or her time from 0-10 years, as a part of Parkinson's Disease - Mini Environmental Risk Questionnaire (PD-DOC-MERQ)

 Supplemental PD DOC Mini Environmental Risk Questionnaire for Parkinson's Disease Patients Baseline (PD DOC MERQ-PD-B) True Huntington's Disease Huntington's Disease
C16669 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - frightening dreams night indicator

The yes/no indicator for getting upsetting or frightening dreams at night from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep)

 Supplemental Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire True Huntington's Disease Huntington's Disease
C14990 Brain atrophy striatum globus pallidus internal segment severity result

Quantitative result of the severity of atrophy located in the globus pallidus, internal segment.

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C17199 Problem Behaviours Assessment - Short Form (PBA-S) - irritability severity score

The severity score for irritability as part of the Problem Behaviours Assessment - Short Form (PBA-S)

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Huntington's Disease Huntington's Disease
C08865 Risk Factor Questionnaire (RFQ-U) - herbicide exposure 46 55 age indicator

The indicator whether there was exposure to herbicides from ages 46 to 55 in a participant's/subject's life as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Home)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Home) True Huntington's Disease Huntington's Disease
C09302 Apathy Scale (AS) - Interest scale

The scale related to subject's interests, as part of the Apathy Scale (AS) form

 Supplemental Apathy Scale (AS) True Huntington's Disease Huntington's Disease
C09114 Risk Factor Questionnaire (RFQ-U) - work other insecticide use 46 55 age indicator

The indicator whether participant/subject used other insecticides at work from age 46 to 55 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08156 Specimen other postmortem indicator

Indicator whether other banked postmortem specimens (e.g., blood, spinal cord, nerve, muscle) exist

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C08949 Risk Factor Questionnaire (RFQ-U) - work methyl bromide use birth 25 age indicator

The indicator whether participant/subject used methyl bromide at work from birth to age 25 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticide (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C09239 Risk Factor Questionnaire (RFQ-U) - work pesticide exposure unusually high indicator

The indicator whether there was exposure to an unusually high amount of pesticides in a participant's/subject's life as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08097 Influenza vaccine first receive age value

Age participant/subject received his/her first influenza vaccination

 Supplemental Infection History False Huntington's Disease Huntington's Disease
C17710 Risk Factor Questionnaire (RFQ) - age started regularly taking CCB medication period 1 value

Age when the participant started regularly taking CCB medication period 1 as part of the Risk Factor Questionnaire for Nonsteroidal Anti-Inflammatory Drugs (NSAIDS) and Calcium Channel Blockers (CCB)

 Supplemental Risk Factor Questionnaire (RFQ) - NSAIDS and Calcium Channel Blockers (CCB) True Huntington's Disease Huntington's Disease
Displaying 26 - 50 of 1756

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.