CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 26 - 50 of 394
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C08170 Neuritic plaque density category

Density of neuritic plaques (plaques with argyrophilic dystrophic neurites with or without dense amyloid cores)

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17755 Striatum atrophy claustrum atrophy status

Status of atrophy in the claustrum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15077 Brain atrophy cerebellum cortical neuronal loss in effective layer indicator

Indicator of cortical neuronal loss in the effective layer (Purkinje cells) of the cerebellum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08236 Imaging scanner software name

Name of the scanner software that runs the imaging camera

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C14957 Huntingtons Disease developing motor symptom type

Type(s) of motor symptoms of Huntington disease (HD) which developed over the course of Illness

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C17690 Non-prescribed controlled psychoactive drug substance hallucinogen text

The text specifying the drugs within the 'Hallucinogens: ecstasy/MDMA, LSD, mescaline/peyote, psilocybin/mushrooms, PCP/phencylidine/angel dust, MDA/STP/DOM,' category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject

Supplemental Non-prescribed Drug Use Questionnaire Huntington's Disease Huntington's Disease
C15036 Brain atrophy neuronal loss and fibrillary astrocytosis pontes griseum or gray matter caudo-lenticular bridges anatomic site

Anatomic site in the pontes griseum or gray matter caudo-lenticular bridges where neuronal loss and/or fibrillary astrocytosis is/are present

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08082 Sibling rank type

Sibling rank order to identify who is the eldest sibling and the second eldest sibling

Supplemental History of Early Exposure to Huntington's disease Huntington's Disease Huntington's Disease
C08185 Amyloid angiopathy severity scale

Whether or not amyloid deposits are present in the walls of the blood vessels of the central nervous system and if so, their severity

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17763 Striatum atrophy red nucleus atrophy status

Status of atrophy in the red nucleus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15085 Silver staining methods type

Silver staining methods used for identifying Alzheimer disease type changes

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08245 Imaging slice count

Count representing the total number of single image planes captured during imaging acquisition

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C17737 Chorea anatomic site informant type

Anatomic site of the participant's/subject's body affected by chorea as noted by the informant

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C15044 Brain atrophy thalamus neuronal loss severity result

Quantitative result of the severity of neuronal loss in the thalamus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08105 Day care start date

Date participant/subject first started day care outside of home

Supplemental History of Early Exposure to Huntington's disease Huntington's Disease Huntington's Disease
C14976 Brain atrophy surface severity result

Quantitative result of the severity of cerebral atrophy on external brain surface

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15093 Lacunes singe or multiple vascular territories name

Name of the vascular territories where lacunes occur

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14962 Imaging acquisition entire brain coverage indicator

Indicator of whether the imaging acquisition covered the entire brain

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C15053 Brain atrophy substantia nigra pars compacta neuronal loss indicator

Indicator of neuronal loss in the pars compacta of the substantia nigra

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C18990 Huntingtons Disease motor symptom first appeared informant other text

The free-text field related to 'Huntingtons Disease motor symptom first appeared informant type' specifying other text. The type of initial motor symptoms of Huntington disease (HD) described by the informant

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C08113 Born prematurely indicator

Indicator of whether the participant/subject was informed by a physician or family member that he/she was born prematurely

Supplemental History of Early Exposure to Huntington's disease Huntington's Disease Huntington's Disease
C14984 Brain atrophy coronal sections amygdala severity result

Quantitative result of the severity of amygdala atrophy in the coronal sections of the brain

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C00720 Family history medical condition type

Type of medical condition or health related event for which the family history is taken

Supplemental Family History Huntington's Disease Huntington's Disease
C08149 Diagnosis final clinical death type

Physician's final clinical diagnosis for the participant/subject

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15101 Atherosclerotic vascular pathology indicator

Indicator of atherosclerotic, either non-stenotic or stenotic vascular changes (of the circle of Willis)

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
Displaying 26 - 50 of 394

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.