CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 26 - 50 of 409
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C14705 Berg Balance Scale (BBS) - unsupport stand front foot scale

The scale for assessment of standing unsupported one foot in front based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental-Highly Recommended Berg Balance Scale (BBS) Huntington's Disease Huntington's Disease
C14694 Berg Balance Scale (BBS) - unsupport stand scale

The scale for assessment of standing unsupported based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental-Highly Recommended Berg Balance Scale (BBS) Huntington's Disease Huntington's Disease
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core Neuropathology Data Form Huntington's Disease Huntington's Disease
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core Demographics Huntington's Disease Huntington's Disease
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core General Core Huntington's Disease Huntington's Disease
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

Core General Core Huntington's Disease Huntington's Disease
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text

Supplemental General Core Huntington's Disease Huntington's Disease
C08112 Birth weight category

Categorization of the participant's/subject's birth weight

Supplemental History of Early Exposure to Huntington's Disease Huntington's Disease Huntington's Disease
C08113 Born prematurely indicator

Indicator of whether the participant was informed by a physician or family member that they were born prematurely

Supplemental History of Early Exposure to Huntington's Disease Huntington's Disease Huntington's Disease
C08167 Brain abnormality microscopic type

Type of microscopic brain abnormality identified through staining

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15033 Brain atrophy amygdala neuronal loss indicator

Indicator of neuronal loss in the amygdala

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15034 Brain atrophy amygdala neuronal loss severity result

Quantitative result of the severity of neuronal loss in the amygdala

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08166 Brain atrophy Braak and Braak neurofibrillary stage

Stages I and II correspond to NFT limited to the transentorhinal/entorhinal region; Stages III and IV to limbic stages; and Stages V and VI to neocortical stages. Stage VI implies involvement of primary cortices

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15084 Brain atrophy Braak and Braak neurofibrillary stage indicator

Indicator of whether neuronal tangles are present

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15073 Brain atrophy cerebellum cortical neuronal loss in associative layer indicator

Indicator of cortical neuronal loss in the associative layer (molecular) of the cerebellum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15074 Brain atrophy cerebellum cortical neuronal loss in associative layer severity result

Quantitative result of the severity of cortical neuronal loss in the associative layer of the cerebellum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15079 Brain atrophy cerebellum cortical neuronal loss in bergman gliosis status

Status of cortical neuronal loss in the Bergman gliosis (BG) of the cerebellum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15077 Brain atrophy cerebellum cortical neuronal loss in effective layer indicator

Indicator of cortical neuronal loss in the effective layer (Purkinje cells) of the cerebellum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15078 Brain atrophy cerebellum cortical neuronal loss in effective layer severity result

Quantitative result of the severity of cortical neuronal loss in the effective layer of the cerebellum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15075 Brain atrophy cerebellum cortical neuronal loss in receptive layer indicator

Indicator of cortical neuronal loss in the receptive layer (granular) of the cerebellum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15076 Brain atrophy cerebellum cortical neuronal loss in receptive layer severity result

Quantitative result of the severity of cortical neuronal loss in the receptive layer of the cerebellum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15082 Brain atrophy cerebellum dentate nucleus neuronal loss indicator

Indicator of neuronal loss in the dentate nucleus of the cerebellum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15083 Brain atrophy cerebellum dentate nucleus neuronal loss severity result

Quantitative result of the severity of neuronal loss in the dentate nucleus of the cerebellum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15080 Brain atrophy cerebellum myelin loss in cerebellar white matter indicator

Indicator of myelin loss in the cerebellar white matter of the cerebellum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15081 Brain atrophy cerebellum myelin loss in cerebellar white matter severity result

Quantitative result of the severity of myelin loss in the cerebellar white matter of the cerebellum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
Displaying 26 - 50 of 409

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.