CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3143-C09604	C09604	Brief Psychiatric Rating Scale (BPRS) - unusual thought content score	The score of the participant's/subject's unusual thought content, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Exploratory	Brief Psychiatric Rating Scale (BPRS)	0	Huntington's Disease	Huntington's Disease
F1237-C14980	C14980	Brain atrophy coronal sections cerebral white matter severity result	Quantitative result of the severity of cerebral white matter atrophy in the coronal sections of the brain	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1211-C08084	C08084	Sibling gender type	Reported gender of the sibling. Gender is the socially constructed identity of sex	Supplemental	History of Early Exposure to Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C14988	C14988	Brain atrophy striatum putamen severity result	Quantitative result of the severity of atrophy located in the putamen	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C08154	C08154	Brain tissue paraffin-embedded indicator	Indicator of whether paraffin-embedded blocks of brain tissue are accessible	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1207-C00035	C00035	Gender type	Self-reported gender of the participant/subject	Core	Demographics	False	Huntington's Disease	Huntington's Disease
F1237-C15024	C15024	Brain atrophy striatum brainstem severity result	Quantitative result of the severity of brainstem atrophy located in the striatum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1212-C08097	C08097	Influenza vaccine first receive age value	Age participant/subject received his/her first influenza vaccination	Supplemental	Infection History	False	Huntington's Disease	Huntington's Disease
F1237-C08166	C08166	Brain atrophy Braak and Braak neurofibrillary stage	Stages I and II correspond to NFT limited to the transentorhinal/entorhinal region; Stages III and IV to limbic stages; and Stages V and VI to neocortical stages. Stage VI implies involvement of primary cortices	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15032	C15032	Brain atrophy hippocampal formation neuronal loss severity result	Quantitative result of the severity of neuronal loss in the hippocampal formation	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F3107-C14706	C14706	Berg Balance Scale (BBS) - scale total score	The total score on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental-Highly Recommended	Berg Balance Scale (BBS)	False	Huntington's Disease	Huntington's Disease
F1212-C08117	C08117	Meningitis or encephalitis episode hospitalization indicator	Indicator of whether the participant/subject was hospitalized for the meningitis or encephalitis episode	Supplemental	Infection History	False	Huntington's Disease	Huntington's Disease
F1237-C08176	C08176	Lacunes single or multiple indicator	Indicator of the presence of one or more cystic/old infarcts or hemorrhages 1-cm or less in diameter that are usually grossly identified and in the distribution of small parenchymal vessels, most often in basal ganglia, thalamus, pons, cerebellum and cerebral white matter	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1209-C14948	C14948	Family history relative type no biological sample in repository count	The number of family members that do not have samples in a repository	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1237-C15040	C15040	Brain atrophy neuronal loss and fibrillary astrocytosis globus pallidus anatomic site	Anatomic site in the globus pallidus where neuronal loss and/or fibrillary astrocytosis is/are present	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F3143-C09596	C09596	Brief Psychiatric Rating Scale (BPRS) - mannerisms posturing score	The score of the participant's/subject's mannerisms and posturing, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Exploratory	Brief Psychiatric Rating Scale (BPRS)	0	Huntington's Disease	Huntington's Disease
F1237-C14972	C14972	Macroscopical examination fixed brain source	The part(s) of the fixed brain used for macroscopical examination	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1211-C08076	C08076	Breastfed indicator	Indicator of whether the participant/subject was breastfed by his/her mother	Supplemental	History of Early Exposure to Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1230-C14937	C14937	Cytosine adenine guanine repeats smaller allele number	The number of cytosine adenine guanine (CAG) repeats on the smaller allele	Supplemental-Highly Recommended	DNA Elements - Participant/Subject Information	False	Huntington's Disease	Huntington's Disease
F1237-C15095	C15095	Hemorrhages single or multiple event category	Category of the hemorrhages	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1236-C02497	C02497	Imaging scanner model name	Name of model of imaging scanner	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1237-C15055	C15055	Brain atrophy substantia nigra pars reticulata neuronal loss indicator	Indicator of neuronal loss in the pars reticulata of the substantia nigra	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1225-C14955	C14955	Motor symptom first appeared informant date	Date the first motor symptom(s) were noted by the person completing the form	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C15103	C15103	Amyloid angiopathy indicator	Indicator of presence of cerebral amyloid angiopathy	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1236-C08243	C08243	Imaging matrix size value	Value representing the imaging matrix size in millimeters	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.