CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 176 - 200 of 427
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C17759 Striatum atrophy thalamus atrophy status

Status of atrophy in the thalamus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17750 Imaging functional magnetic resonance imaging task type

Tasks performed during a functional magnetic resonance imaging (fMRI) scan

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C15081 Brain atrophy cerebellum myelin loss in cerebellar white matter severity result

Quantitative result of the severity of myelin loss in the cerebellar white matter of the cerebellum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14937 Cytosine adenine guanine repeats smaller allele number

The number of cytosine adenine guanine (CAG) repeats on the smaller allele

Supplemental-Highly Recommended DNA Elements - Information from the Study Investigator Huntington's Disease Huntington's Disease
C17767 Striatum atrophy hydrocephalus fourth ventricle severity result

Quantitative result of the severity of hydrocephalus located in the fourth ventricle

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C19064 Imaging functional magnetic resonance imaging task other text

The free-text field related to 'Imaging functional magnetic resonance imaging task type' specifying other text. Tasks performed during a functional magnetic resonance imaging (fMRI) scan

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C15089 Cortical infarcts single or multiple event category

Category of the cortical microinfarcts

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14705 Berg Balance Scale (BBS) - unsupport stand front foot scale

The scale for assessment of standing unsupported one foot in front based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental-Highly Recommended Berg Balance Scale (BBS) Huntington's Disease Huntington's Disease
C14939 Huntingtons disease risk grade

Participant's/subject's risk for HD based on number of CAG repeats

Supplemental-Highly Recommended DNA Elements - Participant/Subject Information Huntington's Disease Huntington's Disease
C18994 Microscopical examination blocks other text

The free-text field related to 'Microscopical examination blocks source' specifying other text. The source of blockage based on microscopical examination of brain

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08087 Sibling death age value

Age of sibling when he/she died

Supplemental History of Early Exposure to Huntington's Disease Huntington's Disease Huntington's Disease
C08148 Neuropath specimen identifier number

Unique identification number given to the neuropathology specimen

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14991 Brain atrophy striatum status cribrosus lacunaris status

Status of atrophy in the status cribrosus or lacunaris

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08110 Preschool end date

Date participant/subject ended preschool

Supplemental History of Early Exposure to Huntington's Disease Huntington's Disease Huntington's Disease
C08157 Photograph macroscopic indicator

Indicator of whether macroscopic photographs were taken

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C11138 Country of origin paternal ISO code

The ISO 3166-1 alpha-2 code for the participant's father's country of origin

Supplemental Demographics Huntington's Disease Huntington's Disease
C15027 Brain atrophy cortex neuronal loss indicator

Indicator of neuronal loss in the cerebral cortex

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08100 Pneumonia episode age value

Participant's/subject's age at the time of the pneumonia episode

Supplemental Infection History Huntington's Disease Huntington's Disease
C08169 Antibody stain method name

Name of staining method used for antibodies

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14943 Family history relative deceased indicator

Indicator of whether family member is deceased

Supplemental Family History Huntington's Disease Huntington's Disease
C15035 Brain atrophy neuronal loss fibrillary astrocytosis caudate nucleus anatomic site

Anatomic site in the caudate nucleus (CN) where neuronal loss and/or fibrillary astrocytosis is/are present

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08232 Drug or substance illicit use ever indicator

Indicator of participant's/subject's use of illegal drugs, prescription or over-the-counter drugs at any point in his/her lifetime for purposes other than those for which they are meant to be used, or in large amounts

Supplemental Non-prescribed Drug Use Questionnaire Huntington's Disease Huntington's Disease
C08181 Other pathology ischemic vascular disease indicator

Indicator of the presence of another ischemic or vascular disease not specifically mentioned previously

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14699 Berg Balance Scale (BBS) - unsupport feet together scale

The scale for assessment of standing unsupported with feet together based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental-Highly Recommended Berg Balance Scale (BBS) Huntington's Disease Huntington's Disease
C15043 Brain atrophy thalamus neuronal loss indicator

Indicator of neuronal loss in the thalamus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
Displaying 176 - 200 of 427

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.