CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 176 - 200 of 409
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C15052 Brain atrophy cerebral white matter myelin loss severity result

Quantitative result of the cerebral white matter myelin loss

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15100 Cortical laminar necrosis single or multiple text

The text description of the cortical laminar necrosis

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15060 Brain atrophy nucleus coeruleus neuronal loss severity result

Quantitative result of the severity of neuronal loss in the nucleus coeruleus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14960 Diagnosis based abnormality type

What kind of abnormalities was the diagnosis based on?

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C15108 Diagnoses final clinicopathological severity scale

Scale of the severity or intensity of the diagnosis

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15068 Brain atrophy pontine nuclei globosum neuronal tangles (GNT) severity result

Quantitative result of the severity of globosum neuronal tangles in the pontine nuclei

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17740 Chorea anatomic site physician developing type

Anatomic site of the participant's/subject's body affected by chorea as noted by a physician as a developing issues from disease

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C14946 Family history medical condition relative count

Number of family members with medical condition

Supplemental Family History Huntington's Disease Huntington's Disease
C14694 Berg Balance Scale (BBS) - unsupport stand scale

The scale for assessment of standing unsupported based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental-Highly Recommended Berg Balance Scale (BBS) Huntington's Disease Huntington's Disease
C15038 Brain atrophy neuronal loss nucleus accumbens severity result

Quantitative result of the severity of neuronal loss in the nucleus accumbens

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08235 Drug or substance illicit use frequency

The subject's/participant's average or typical use frequency during the year of greatest use of an unprescribed, controlled psychoactive drugs or substances used by the participant/subject

Supplemental Non-prescribed Drug Use Questionnaire Huntington's Disease Huntington's Disease
C14970 Brain harvesting date and time

Date and time, if known the brain was harvested

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14702 Berg Balance Scale (BBS) - turn head scale

The scale for assessment of turning to look behind over left and right shoulders while standing based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental-Highly Recommended Berg Balance Scale (BBS) Huntington's Disease Huntington's Disease
C15046 Brain atrophy thalamus neuronal loss nuclei severity result

Quantitative result of the severity of neuronal loss in thalamic nuclei

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14978 Brain atrophy coronal sections cerebral cortex severity result

Quantitative result of the severity of cerebral cortex atrophy in the coronal sections of the brain

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08082 Sibling rank type

Sibling rank order to identify who is the eldest sibling and the second eldest sibling

Supplemental History of Early Exposure to Huntington's Disease Huntington's Disease Huntington's Disease
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core General Core Huntington's Disease Huntington's Disease
C14986 Brain atrophy striatum head of caudate nucleus severity result

Quantitative result of the severity of atrophy located in the head of the caudate nucleus (CN) (at the level where the anterior limb of the internal capsule [ALIC] joins with the basal white matter).

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C18997 Clinicopathology diagnosis final other text

the free-text related to 'Clinicopathology diagnosis final type' specifying other text. The participant/subject's final clinicopathological diagnosis

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08105 Day care start date

Date participant/subject first started day care outside of home

Supplemental History of Early Exposure to Huntington's Disease Huntington's Disease Huntington's Disease
C08152 Brain tissue frozen indicator

Indicator of whether banked frozen brain tissue is accessible

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core Demographics Huntington's Disease Huntington's Disease
C17733 Person completing form name

Name of person completing the form

Supplemental Stroop Test Huntington's Disease Huntington's Disease
C15022 Brain atrophy nucleus coeruleus appearance grade

Grade of pigmentation of the nucleus coeruleus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08162 National Institute on Aging (NIA) or Reagan Institute neuropathological criteria scale

National Institute on Aging (NIA)/Reagan Institute neuropathological criteria used to determine the likelihood of dementia being due to Alzheimer's disease.

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
Displaying 176 - 200 of 409

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.