CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 126 - 150 of 409

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1237-C14986	C14986	Brain atrophy striatum head of caudate nucleus severity result	Quantitative result of the severity of atrophy located in the head of the caudate nucleus (CN) (at the level where the anterior limb of the internal capsule [ALIC] joins with the basal white matter).	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C18997	C18997	Clinicopathology diagnosis final other text	the free-text related to 'Clinicopathology diagnosis final type' specifying other text. The participant/subject's final clinicopathological diagnosis	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15101	C15101	Atherosclerotic vascular pathology indicator	Indicator of atherosclerotic, either non-stenotic or stenotic vascular changes (of the circle of Willis)	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15061	C15061	Brain atrophy nucleus coeruleus Lewy body containing neurons Lewy neurites status	Status of lewy-body containing neurons (LBCN) and lewy neurites (LN) in the nucleus coeruleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1225-C17733	C17733	Person completing form name	Name of person completing the form	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C15109	C15109	Abnormality no diagnosis type	The diagnosis if there is no abnormality recognized	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15069	C15069	Brain atrophy medulla oblongata dorsal nucleus vagus reticular formation status	Status of dorsal nucleus of vagus reticular formation: Lewy body containing neurons (LBCN) and Lewy neurites (LN) in the medulla oblongata	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1225-C17742	C17742	Physician specialty type	The specialty of the physician who made the diagnosis	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C17755	C17755	Striatum atrophy claustrum atrophy status	Status of atrophy in the claustrum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1236-C14966	C14966	Imaging artifact type	The artifacts present on the scan	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1237-C15077	C15077	Brain atrophy cerebellum cortical neuronal loss in effective layer indicator	Indicator of cortical neuronal loss in the effective layer (Purkinje cells) of the cerebellum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1228-C14936	C14936	Cytosine adenine guanine repeats larger allele number	The number of cytosine adenine guanine (CAG) repeats on the larger allele	Supplemental-Highly Recommended	DNA Elements - Information from the Laboratory	False	Huntington's Disease	Huntington's Disease
F1237-C17763	C17763	Striatum atrophy red nucleus atrophy status	Status of atrophy in the red nucleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15085	C15085	Silver staining methods type	Silver staining methods used for identifying Alzheimer disease type changes	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1229-C19061	C19061	Cytosine Adenine Guanine repeats information source other text	The free-text field related to 'Cytosine adenine guanine repeats information source type' specifying other text. The source of information used to determine whether the participant/subject had a molecular study done to determine the number of cytosine adenine guanine (CAG) repeats	Supplemental-Highly Recommended	DNA Elements - Information from the Study Investigator	False	Huntington's Disease	Huntington's Disease
F3107-C14705	C14705	Berg Balance Scale (BBS) - unsupport stand front foot scale	The scale for assessment of standing unsupported one foot in front based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental-Highly Recommended	Berg Balance Scale (BBS)	False	Huntington's Disease	Huntington's Disease
F1237-C04802	C04802	Death date and time	Date (and time, if known) of participant's/subject's death	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15093	C15093	Lacunes singe or multiple vascular territories name	Name of the vascular territories where lacunes occur	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15053	C15053	Brain atrophy substantia nigra pars compacta neuronal loss indicator	Indicator of neuronal loss in the pars compacta of the substantia nigra	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1211-C08106	C08106	Day care end date	Date participant/subject ended day care outside of home	Supplemental	History of Early Exposure to Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C08153	C08153	Brain tissue formalin-fixed indicator	Indicator of whether formalin-fixed brain tissue is accessible	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1207-C00031	C00031	Race expanded category	Category of race(s) or region(s) the participant/subject most closely identifies with	Supplemental-Highly Recommended	Demographics	False	Huntington's Disease	Huntington's Disease
F2370-C18027	C18027	Comment text	Provide any additional information that pertains to the question	Supplemental	Stroop Test	True	Huntington's Disease	Huntington's Disease
F1237-C15023	C15023	Brain atrophy striatum brainstem status	Status of brainstem atrophy in the striatum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1212-C08096	C08096	Influenza vaccine history indicator	Indicator of whether the participant/subject has ever received an influenza vaccination	Supplemental	Infection History	False	Huntington's Disease	Huntington's Disease

Displaying 126 - 150 of 409

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.