CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1237-C15036	C15036	Brain atrophy neuronal loss and fibrillary astrocytosis pontes griseum or gray matter caudo-lenticular bridges anatomic site	Anatomic site in the pontes griseum or gray matter caudo-lenticular bridges where neuronal loss and/or fibrillary astrocytosis is/are present	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C17761	C17761	Striatum atrophy subthalamic nucleus atrophy status	Status of atrophy in the subthalamic nucleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15083	C15083	Brain atrophy cerebellum dentate nucleus neuronal loss severity result	Quantitative result of the severity of neuronal loss in the dentate nucleus of the cerebellum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1229-C17745	C17745	Cytosine adenine guanine repeats information source type	The source of information used to determine whether the participant/subject had a molecular study done to determine the number of cytosine adenine guanine (CAG) repeats	Supplemental-Highly Recommended	DNA Elements - Information from the Study Investigator	False	Huntington's Disease	Huntington's Disease
F1237-C00035	C00035	Gender type	Self-reported gender of the participant/subject	Core	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15091	C15091	Cortical infarcts single or multiple description text	The text description of the cortical microinfarcts	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F3107-C17394	C17394	Berg Balance Scale (BBS) - stand one leg scale	The scale for assessment of standing on one leg based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental-Highly Recommended	Berg Balance Scale (BBS)	False	Huntington's Disease	Huntington's Disease
F1230-C17747	C17747	Cytosine Adenine Guanine repeat results provider type	The type of provider who repeated the Cytosine Adenine Guanine (CAG) results	Supplemental-Highly Recommended	DNA Elements - Participant/Subject Information	False	Huntington's Disease	Huntington's Disease
F1237-C15051	C15051	Brain atrophy cerebral white matter myelin loss indicator	Indicator of myelin loss in the cerebral white matter	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15099	C15099	Cortical laminar necrosis single or multiple vascular territories name	Name of the vascular territories where cortical laminar necrosis occurs	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F3143-C09597	C09597	Brief Psychiatric Rating Scale (BPRS) - grandiosity score	The score of the participant's/subject's grandiosity, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Exploratory	Brief Psychiatric Rating Scale (BPRS)	0	Huntington's Disease	Huntington's Disease
F1237-C15059	C15059	Brain atrophy nucleus coeruleus neuronal loss indicator	Indicator of neuronal loss in the nucleus coeruleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1225-C14959	C14959	Diagnosis physician year date	The year the physician diagnosed the participant/ subject	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C15107	C15107	Huntingtons Disease diagnosis grade	The grade of severity of HD or amyloid angiopathy severity	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F3143-C09605	C09605	Brief Psychiatric Rating Scale (BPRS) - blunted affect score	The score of the participant's/subject's blunted affect, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Exploratory	Brief Psychiatric Rating Scale (BPRS)	0	Huntington's Disease	Huntington's Disease
F1237-C15067	C15067	Brain atrophy pontine nuclei globosum neuronal tangles status	Status of globosum neuronal tangles (GNT) in the pontine nuclei	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1225-C17739	C17739	Informant participant family member relationship text	The free-text field to specify the relationship of the informant to a family member of the participant/subject	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C17753	C17753	Macroscopic examination brain text	Note regarding macroscopic examination of fresh or fixed brain parts	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15075	C15075	Brain atrophy cerebellum cortical neuronal loss in receptive layer indicator	Indicator of cortical neuronal loss in the receptive layer (granular) of the cerebellum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1225-C19059	C19059	Informant participant relationship other text	The free-text field related to 'Informant participant relationship type' specifying other text. The relationship of the informant to participant/subject	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1213-C08234	C08234	Drug or substance last illicit use date and time	Date (and time if applicable and known) of the participant's/subject's last use of an unprescribed, controlled psychoactive drugs or substances used by the participant/subject	Supplemental	Non-prescribed Drug Use Questionnaire	False	Huntington's Disease	Huntington's Disease
F1237-C14969	C14969	Cytosine adenine guanine repeat expansion result	Size of expansion of HD-IT 15 cytosine adenine guanine (CAG) repeats	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F3107-C14701	C14701	Berg Balance Scale (BBS) - retrieve floor object scale	The scale for assessment of picking up object from the floor from a standing position based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental-Highly Recommended	Berg Balance Scale (BBS)	False	Huntington's Disease	Huntington's Disease
F1237-C15045	C15045	Brain atrophy thalamus neuronal loss nuclei name	Name of the nuclei in the thalamus involved in the neuronal loss	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C14977	C14977	Brain atrophy coronal sections cerebral cortex status	Status of cerebral cortex atrophy of the coronal sections upon gross examination	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.