CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 76 - 100 of 409
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C15048 Brain atrophy subthalamic nucleus neuronal loss severity result

Quantitative result of the severity of neuronal loss in the subthalamic nucleus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14709 Godin Leisure-Time Exercise Questionnaire - moderate exercise per week frequency

Numeric value counting the average number of times per week that a participant/subject reports doing moderate exercise (e.g., fast walking, baseball, tennis, easy bicycling, volleyball, badminton, easy swimming, alpine skiing, popular and folk dancing)

Supplemental Godin Leisure-Time Exercise Questionnaire Huntington's Disease Huntington's Disease
C14980 Brain atrophy coronal sections cerebral white matter severity result

Quantitative result of the severity of cerebral white matter atrophy in the coronal sections of the brain

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08084 Sibling gender type

Reported gender of the sibling. Gender is the socially constructed identity of sex

Supplemental History of Early Exposure to Huntington's Disease Huntington's Disease Huntington's Disease
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core General Core Huntington's Disease Huntington's Disease
C14988 Brain atrophy striatum putamen severity result

Quantitative result of the severity of atrophy located in the putamen

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08154 Brain tissue paraffin-embedded indicator

Indicator of whether paraffin-embedded blocks of brain tissue are accessible

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C00035 Gender type

Self-reported gender of the participant/subject

Core Demographics Huntington's Disease Huntington's Disease
C15103 Amyloid angiopathy indicator

Indicator of presence of cerebral amyloid angiopathy

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08243 Imaging matrix size value

Value representing the imaging matrix size in millimeters

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C15063 Brain atrophy nucleus coeruleus globosum neuronal tangles status

Status of globosum neuronal tangles (GNT) in the nucleus coeruleus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17735 Motor symptom first appeared self report status

The status of the first motor symptom(s) as noted by the participant/subject

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C15111 Arteriosclerosis severity score

Severity score for arteriosclerosis (small parenchymal arteriolar disease)

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15071 Brain atrophy medulla oblongata inferior olivary nucleus indicator

Indicator of neuronal loss of the inferior olivary nucleus in the medulla oblongata

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C18153 Data unknown text

The free-text field to Mark an "X" in to record if data are unknown or not available

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C17757 Striatum atrophy hypothalamus atrophy status

Status of atrophy in the hypothalamus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17748 Imaging neurologic other data collected indicator

The indicator whether other types of neuroimaging data were collected during this scan visit

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C15079 Brain atrophy cerebellum cortical neuronal loss in bergman gliosis status

Status of cortical neuronal loss in the Bergman gliosis (BG) of the cerebellum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17744 Molecular study laboratory name

Name of laboratory that performed the molecular study

Supplemental DNA Elements - Information from the Laboratory Huntington's Disease Huntington's Disease
C17765 Striatum atrophy hydrocephalus lateral ventricle severity result

Quantitative result of the severity of hydrocephalus located in the lateral ventricle

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15087 Ischemic or hemorrhagic vascular territories name

Name of the vascular territories where ischemic or hemorrhagic changes occur

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14937 Cytosine adenine guanine repeats smaller allele number

The number of cytosine adenine guanine (CAG) repeats on the smaller allele

Supplemental-Highly Recommended DNA Elements - Participant/Subject Information Huntington's Disease Huntington's Disease
C15095 Hemorrhages single or multiple event category

Category of the hemorrhages

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C02497 Imaging scanner model name

Name of model of imaging scanner

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C15055 Brain atrophy substantia nigra pars reticulata neuronal loss indicator

Indicator of neuronal loss in the pars reticulata of the substantia nigra

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
Displaying 76 - 100 of 409

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.