CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 51 - 75 of 427

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2370-C53905	C53905	Stroop Color and Word Test (SCW) - Color word age educate predict score	Score (Age/Ed Predict) of the color-word test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Huntington's Disease	Huntington's Disease
F1269-C20371	C20371	Pittsburgh Sleep Quality Index (PSQI) - Partner report leg twitch jerk past month scale	The scale to which the subject's partner reported leg twitching or jerking during sleep past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
F1237-C17398	C17398	Specimen other postmortem text	Text area to describe other banked postmortem specimens (e.g., blood, spinal cord, nerve, muscle) exist	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1807-C58677	C58677	Gender identity type	Gender identity self-identified by the participant. Gender type may or may not match sex assigned at birth	Core	General Core	False	Huntington's Disease	Huntington's Disease
F1807-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text. Self-reported phenotypic sex of participant, assigned at birth	Supplemental	General Core	False	Huntington's Disease	Huntington's Disease
F1807-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text. Gender identity self-identified by the participant. Gender type may or may not match sex assigned at birth	Supplemental	General Core	False	Huntington's Disease	Huntington's Disease
F1807-C58676	C58676	Birth sex assigned type	Self-reported phenotypic sex of participant, assigned at birth	Core	General Core	False	Huntington's Disease	Huntington's Disease
F1209-C18678	C18678	Family history medical condition type other text	The free-text field related to 'Family history medical condition type', specifying other text. Type of medical condition or health related event for which the family history is taken	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1209-C18679	C18679	Family history medical condition relative type other text	The free-text field related to 'Family history medical condition relative type', specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1213-C18670	C18670	Subscribed drug or substance illicitly used category other text	The free-text field related to 'Subscribed drug or substance illicitly used category' specifying other text. Category of illegal drugs, prescription, or over-the-counter drugs the participant/subject used for purposes other than those for which they are meant to be used, or in large amounts	Supplemental	Non-prescribed Drug Use Questionnaire	False	Huntington's Disease	Huntington's Disease
F1236-C18700	C18700	Imaging matrix size value other text	The free-text field related to 'Imaging matrix size value', specifying other text. Value representing the imaging matrix size in millimeters	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1236-C18708	C18708	Imaging pulse sequence type other text	The free-text field related to 'Imaging pulse sequence type', specifying other text. Type of imaging pulse sequence used	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1236-C18716	C18716	Imaging scanner manufacturer name other text	The free-text field related to 'Imaging scanner manufacturer name', specifying other text. Name of manufacturer of imaging scanner	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1236-C18718	C18718	Imaging scanner strength value type other text	The free-text field related to 'Imaging scanner strength value type', specifying other text. Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1209-C14950	C14950	Family history relative order number	A numerical number assigned to each relative, if more than one	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F3107-C14698	C14698	Berg Balance Scale (BBS) - unsupport stand closed eyes scale	The scale for assessment of standing unsupported with eyes closed based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental-Highly Recommended	Berg Balance Scale (BBS)	False	Huntington's Disease	Huntington's Disease
F1237-C15042	C15042	Brain atrophy fibrillary astrocytosis severity result	Quantitative result of the severity of fibrillary astrocytosis in each location of the caudate nucleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C14974	C14974	Brain atrophy surface status	Status of cerebral atrophy on external surface of the brain upon gross examination	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15050	C15050	Brain atrophy red nucleus neuronal loss severity result	Quantitative result of the severity of neuronal loss in the red nucleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1278-C14711	C14711	Godin Leisure-Time Exercise Questionnaire - exercise per week scale	The value on a scale describing how often during a typical 7-day week that a participant/subject reports engaging in regular leisure time activity long enough to make the heart beat rapidly	Supplemental	Godin Leisure-Time Exercise Questionnaire	False	Huntington's Disease	Huntington's Disease
F1225-C14941	C14941	Diagnosis certainty percentage range type	Option for the range of the clinician's certainty of the medical diagnosis of the disease or disorder	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C14982	C14982	Brain atrophy coronal sections hippocampal formation severity result	Quantitative result of the severity of hippocampal formation atrophy in the coronal sections of the brain	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C18993	C18993	Macroscopical examination fixed brain other text	The free-text field related to 'Macroscopical examination fixed brain source' specifying other text. The part(s) of the fixed brain used for macroscopical examination	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1211-C08086	C08086	Sibling current age value	Current age of the living sibling	Supplemental	History of Early Exposure to Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C08147	C08147	Data source	Source of the data provided on the case report form	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.