CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 351 - 375 of 427

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1211-C08081	C08081	Twin sibling type	Type of twin the participant/subject has	Supplemental	History of Early Exposure to Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15092	C15092	Lacunes single or multiple event category	Category of the lacunes	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F3143-C09590	C09590	Brief Psychiatric Rating Scale (BPRS) - somatic concern score	The score of the participant's/subject's somatic concern, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Exploratory	Brief Psychiatric Rating Scale (BPRS)	0	Huntington's Disease	Huntington's Disease
F1230-C19062	C19062	Cytosine Adenine Guanine repeat results provider other text	The free-text field related to 'Cytosine Adenine Guanine repeat results provider type' specifying other text. The type of provider who repeated the Cytosine Adenine Guanine (CAG) results	Supplemental-Highly Recommended	DNA Elements - Participant/Subject Information	False	Huntington's Disease	Huntington's Disease
F1237-C15052	C15052	Brain atrophy cerebral white matter myelin loss severity result	Quantitative result of the cerebral white matter myelin loss	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15100	C15100	Cortical laminar necrosis single or multiple text	The text description of the cortical laminar necrosis	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F3143-C09598	C09598	Brief Psychiatric Rating Scale (BPRS) - depressive mood score	The score of the participant's/subject's depressive mood, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Exploratory	Brief Psychiatric Rating Scale (BPRS)	0	Huntington's Disease	Huntington's Disease
F1237-C15060	C15060	Brain atrophy nucleus coeruleus neuronal loss severity result	Quantitative result of the severity of neuronal loss in the nucleus coeruleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1225-C14960	C14960	Diagnosis based abnormality type	What kind of abnormalities was the diagnosis based on?	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C15108	C15108	Diagnoses final clinicopathological severity scale	Scale of the severity or intensity of the diagnosis	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F3143-C09606	C09606	Brief Psychiatric Rating Scale (BPRS) - excitement score	The score of the participant's/subject's excitement, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Exploratory	Brief Psychiatric Rating Scale (BPRS)	0	Huntington's Disease	Huntington's Disease
F1237-C15068	C15068	Brain atrophy pontine nuclei globosum neuronal tangles (GNT) severity result	Quantitative result of the severity of globosum neuronal tangles in the pontine nuclei	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1225-C17740	C17740	Chorea anatomic site physician developing type	Anatomic site of the participant's/subject's body affected by chorea as noted by a physician as a developing issues from disease	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C17754	C17754	Microscopic examination brain text	Note regarding microscopic examination of blockage source	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1236-C14965	C14965	Imaging artifacts indicator	Indicator of any obvious artifacts in the image	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1237-C15076	C15076	Brain atrophy cerebellum cortical neuronal loss in receptive layer severity result	Quantitative result of the severity of cortical neuronal loss in the receptive layer of the cerebellum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1225-C19060	C19060	Physician specialty other text	The free-text field related to 'Physician specialty type' specifying other text. The specialty of the physician who made the diagnosis	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C17762	C17762	Striatum atrophy subthalamic nucleus atrophy severity result	Quantitative result of the severity of atrophy located in the subthalamic nucleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15084	C15084	Brain atrophy Braak and Braak neurofibrillary stage indicator	Indicator of whether neuronal tangles are present	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1229-C17746	C17746	Molecular study lab name	The name of the laboratory that completed the molecular study to determine number of cytosine adenine guanine (CAG) repeats	Supplemental-Highly Recommended	DNA Elements - Information from the Study Investigator	False	Huntington's Disease	Huntington's Disease
F1807-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	General Core	False	Huntington's Disease	Huntington's Disease
F1237-C14986	C14986	Brain atrophy striatum head of caudate nucleus severity result	Quantitative result of the severity of atrophy located in the head of the caudate nucleus (CN) (at the level where the anterior limb of the internal capsule [ALIC] joins with the basal white matter).	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C18997	C18997	Clinicopathology diagnosis final other text	the free-text related to 'Clinicopathology diagnosis final type' specifying other text. The participant/subject's final clinicopathological diagnosis	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1211-C08105	C08105	Day care start date	Date participant/subject first started day care outside of home	Supplemental	History of Early Exposure to Huntington's Disease	False	Huntington's Disease	Huntington's Disease

Displaying 351 - 375 of 427

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.