CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 351 - 375 of 409
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C14966 Imaging artifact type

The artifacts present on the scan

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C15077 Brain atrophy cerebellum cortical neuronal loss in effective layer indicator

Indicator of cortical neuronal loss in the effective layer (Purkinje cells) of the cerebellum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14695 Berg Balance Scale (BBS) - unsupport sit scale

The scale for assessment of sitting with back unsupported but feet supported on floor or on a stool based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental-Highly Recommended Berg Balance Scale (BBS) Huntington's Disease Huntington's Disease
C15039 Brain atrophy fibrillary astrocytosis nucleus accumbens severity result

Quantitative result of the severity of firbrillary astrocytosis in the nucleus accumbens

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14971 Macroscopical examination fresh brain source

The part(s) of the fresh brain used for macroscopical examination

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14703 Berg Balance Scale (BBS) - turn around scale

The scale for assessment of turning 360 degrees based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental-Highly Recommended Berg Balance Scale (BBS) Huntington's Disease Huntington's Disease
C15047 Brain atrophy subthalamic nucleus neuronal loss indicator

Indicator of neuronal loss in the subthalamic nucleus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14708 Godin Leisure-Time Exercise Questionnaire - strenuous exercise per week frequency

Numeric value counting the average number of times per week that a participant/subject reports doing strenuous exercise (e.g., running, jogging, hockey, football, soccer, squash, basketball, cross country skiing, judo, roller skating, vigorous swimming, vigorous long distance bicycling)

Supplemental Godin Leisure-Time Exercise Questionnaire Huntington's Disease Huntington's Disease
C17691 Non-prescribed controlled psychoactive drug substance other text

The text specifying the drugs within the 'Others: (non-perscribed, non-over-the-counter)' categoryas an unprescribed, controlled psychoactive drugs or substances used by the participant/subject

Supplemental Non-prescribed Drug Use Questionnaire Huntington's Disease Huntington's Disease
C14979 Brain atrophy coronal sections cerebral white matter status

Status of cerebral white matter atrophy of the coronal section upon gross examination

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08083 Sibling name

Name of the sibling

Supplemental History of Early Exposure to Huntington's Disease Huntington's Disease Huntington's Disease
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core General Core Huntington's Disease Huntington's Disease
C14987 Brain atrophy striatum body of caudate nucleus (CN) severity result

Quantitative result of the severity of atrophy located in the body of the caudate nucleus (CN) (at the coronal section passing through the lateral geniculate body).

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08106 Day care end date

Date participant/subject ended day care outside of home

Supplemental History of Early Exposure to Huntington's Disease Huntington's Disease Huntington's Disease
C08153 Brain tissue formalin-fixed indicator

Indicator of whether formalin-fixed brain tissue is accessible

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C00031 Race expanded category

Category of race(s) or region(s) the participant/subject most closely identifies with

Supplemental-Highly Recommended Demographics Huntington's Disease Huntington's Disease
C18027 Comment text

Provide any additional information that pertains to the question

Supplemental Stroop Test Huntington's Disease Huntington's Disease
C15023 Brain atrophy striatum brainstem status

Status of brainstem atrophy in the striatum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08096 Influenza vaccine history indicator

Indicator of whether the participant/subject has ever received an influenza vaccination

Supplemental Infection History Huntington's Disease Huntington's Disease
C08163 CERAD neuropathological criteria scale

CERAD neuropathological criteria used to determine the probability of the participant/subject having Alzheimer's disease

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15031 Brain atrophy hippocampal formation neuronal loss indicator

Indicator of neuronal loss in the hippocampal formation

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08116 Meningitis or encephalitis episode age value

Participant's/subject's age at the time of the meningitis or encephalitis episode

Supplemental Infection History Huntington's Disease Huntington's Disease
C08175 Cortical microinfarct indicator

Indicator of the presence of one or more infarcts that are detected microscopically (including "granular atrophy") and may not be grossly visible, or may appear to the naked eye as cortical granularity

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14947 Family history relative type biological sample in repository count

The number of family members that have samples in a repository

Supplemental Family History Huntington's Disease Huntington's Disease
C17684 Non-prescribed controlled psychoactive drug substance stimulant cocaine text

The text specifying the drugs within the Stimulants: cocaine/crack category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject

Supplemental Non-prescribed Drug Use Questionnaire Huntington's Disease Huntington's Disease
Displaying 351 - 375 of 409

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.